My Tysabri experience

[Bamagal14]

I was on Tysabri for a little over 10 years. I had to come off of it due to my JCV being so high. It stayed positive but below 1 for almost 2 years. When it jumped to 1.71 my Neurologist took me off and 2 months later I started Kesimpta. It's very easy and convenient to use the injection pen just once a month and it is mailed to my house. I did well on Tysabri and I'm doing well on Kesimpta I think. I was diagnosed with MS in 2006 and 2 years ago with Connective Tissue Disease, my Rheumatologist is thinking Lupus. I have other chronic progressive diseases. I try to take it one day at a time.

[Jesmcd2 CommunityAmbassador]

Hi Bamagal14 welcome to the family no one wants to be part of! 🙂 Always glad to hear that you're meds are doing what you want them to do!

I love your attitude! 🤗💕🌠

[CatsandCars]

Welcome! I hope you do great on Kesimpta. 😊

[AquaZumbaFan]

One day at a time, sometimes one hour, one minute.. it all depends on the day 😊try to stay as active as possible and think about trying to move in the pool if at all possible..it has really helped me alot.. as Jesmcd2 said, welcome to the family.. I have found this forum to be very comforting and it is so nice to be able to reach out to other people who may be going through some of the same things as I am. It is a very nice group of people.

[Espeon]

Hi, I’ve been on Tysabri since 2008 but my jcv levels are lower than yours were. I do wonder what I would switch to if I had to come off if it. Having treatment once a month is great that you can do at home. I have to travel 3.5 hours every five weeks for my Tysabri. Glad to hear that Kesimpta is working for you.

[stepsforNeeC]

I pray 🙏 you continue to do well on your new DMT! I understand all too well about having multiple health issues. One day at a time, my friend. Blessings and Peace. NeeC

[Mandymae5]

Due to my liver enzymes fluctuating but mainly in hi

range I've recently had to come off Aubagio. That is one of the side effects but if understand right that can be side effect on all(?) MS meds. Have been on Aubagio well over 10 yrs & my MS has done great.My next appt with my Neurologist will go over & decide on what MS med to now put me on.

Good luck on what med is best for you.

[Greentime]

good luck to you too!