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Jakafi
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Susan 3025
Now he was denied the medication
Jakafi
which he needs after he got Medicare. What does this say about our system? He had excellent insurance when he was working. But since he became ill he cant work and lost his job and insurance. I am ashamed to say I work in the healthcare industry.
Now he was denied the medication
Jakafi
which he needs after he got Medicare. What does this say about our system? He had excellent insurance when he was working. But since he became ill he cant work and lost his job and insurance. I am ashamed to say I work in the healthcare industry.
Susan3925
in
MPN Voice
7 years ago
All about me and my Myelofibrosis
The ONLY drug I take is the
Jakafi
. My platelets are in the normal range, my white cells are three times higher than normal, and the rest of my results look as if they have been written in blood, very little in the way of black type.
The ONLY drug I take is the
Jakafi
. My platelets are in the normal range, my white cells are three times higher than normal, and the rest of my results look as if they have been written in blood, very little in the way of black type.
PeterNB
in
MPN Voice
7 years ago
Scuba & MF while on Jakafi?
Hey guys... :) Here's an interesting question for some of you to ponder... I have decided that life might be even shorter than I had originally perceived , due to my MF diagnosis of course. Since having commenced my new fitness regime, my endurance levels have become somewhat better, however, in all
Hey guys... :) Here's an interesting question for some of you to ponder... I have decided that life might be even shorter than I had originally perceived , due to my MF diagnosis of course. Since having commenced my new fitness regime, my endurance levels have become somewhat better, however, in all
socrates_8
in
MPN Voice
7 years ago
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A bit gloomy
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
beetle
in
MPN Voice
7 years ago
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to
Jakafi
or Pegasys alone - http://bit.ly/2tBjHVs
Cutting edge therapy for PV - MF patients who do not respond to
Jakafi
or Pegasys alone - http://bit.ly/2tBjHVs
PVReporter
in
MPN Voice
7 years ago
Jakavi and Valaciclovir
A couple of months ago my Jakavi treatment was reduced down to 5mg bid and the consultant stopped my Valaciclovir anti-viral treatment. This week my consultant contacted me back to instruct me to start up the Valaciclovir again - the reason given is that Jakavi increases the risk of VZV (chickenpox/shingles
A couple of months ago my Jakavi treatment was reduced down to 5mg bid and the consultant stopped my Valaciclovir anti-viral treatment. This week my consultant contacted me back to instruct me to start up the Valaciclovir again - the reason given is that Jakavi increases the risk of VZV (chickenpox/shingles
crapaud
in
MPN Voice
7 years ago
Hi Chris
Haven't seen much posting from you of late so hope things are progressing in the right direction. On a personal side my Jakavi was reduced but that resulted in skin issues so it's been increased again. Take care buddy. Gary
Haven't seen much posting from you of late so hope things are progressing in the right direction. On a personal side my Jakavi was reduced but that resulted in skin issues so it's been increased again. Take care buddy. Gary
crapaud
in
MPN Voice
7 years ago
Lowering of Jakavi dosage and eczema
My Jakavi was reduced from 10mg bid to 5mg bid 3 weeks ago. For the last 10 days my arms and legs have been covered with itchy red dry skin, my SCT doctor thinks it may be a form of eczema brought on by the reduction in Jakavi dosage. Anyone else experience this sort of thing? ps I have been prescribed
My Jakavi was reduced from 10mg bid to 5mg bid 3 weeks ago. For the last 10 days my arms and legs have been covered with itchy red dry skin, my SCT doctor thinks it may be a form of eczema brought on by the reduction in Jakavi dosage. Anyone else experience this sort of thing? ps I have been prescribed
crapaud
in
MPN Voice
7 years ago
Blood platelets still too high...?
:) Prior to commencing the
Jakafi
(Ruxolitinib) in December 2016, I was on Interferon (3M) every two (2) days, and my platelets had come right down to 537, before swapping over my med's.
:) Prior to commencing the
Jakafi
(Ruxolitinib) in December 2016, I was on Interferon (3M) every two (2) days, and my platelets had come right down to 537, before swapping over my med's.
socrates_8
in
MPN Voice
7 years ago
Initial weight gains & Higher platelet counts on Jakafi???
It is only my third week (on
Jakafi
), and perhaps I am expecting too much too soon...
It is only my third week (on
Jakafi
), and perhaps I am expecting too much too soon...
socrates_8
in
MPN Voice
7 years ago
ASH 2016 Dr Rampal shares MPN updates on Clinical Research with PV Reporter
Ruxolitinib (
Jakafi
) plus PIM and CDK4/6 Inhibitors First in ASH 2016 Series - http://www.pvreporter.com/ash-2016-dr-rampal-shares-mpn-updates-clinical-research-pv-reporter/
Ruxolitinib (
Jakafi
) plus PIM and CDK4/6 Inhibitors First in ASH 2016 Series - http://www.pvreporter.com/ash-2016-dr-rampal-shares-mpn-updates-clinical-research-pv-reporter/
PVReporter
in
MPN Voice
7 years ago
How to get Jakafi paid for when insurance denies it.
Does anyone every get denied
Jakafi
from their insurance company and eventually get it approved? Does anyone not ever get it approved? We have been denied twice but our dr office says everyone ends up getting it. I am so afraid my husband won't be able to get the
jakafi
and he is so sick.
Does anyone every get denied
Jakafi
from their insurance company and eventually get it approved? Does anyone not ever get it approved? We have been denied twice but our dr office says everyone ends up getting it. I am so afraid my husband won't be able to get the
jakafi
and he is so sick.
2hankers2
in
MPN Voice
8 years ago
ASAP/ALAP counts - what constitutes numbers to be worried about ?
14 months after my SCT I am going through a period of chronic GvHD in my liver. After 2 months of corticoids I have been switched to Jakavi - progressively increased from 2x5mg to 2x15mg per day. The Doctor has explained to me they are following my ASAT and ALAT counts to monitor progress; these counts
14 months after my SCT I am going through a period of chronic GvHD in my liver. After 2 months of corticoids I have been switched to Jakavi - progressively increased from 2x5mg to 2x15mg per day. The Doctor has explained to me they are following my ASAT and ALAT counts to monitor progress; these counts
crapaud
in
MPN Voice
8 years ago
I'm new at this website
My doctor put me on 25 mg of
Jakafi
2X per day. My platelets and white cells became perfect, but I am even more anemic. I'm on weekly Procrit shots which raised my hemoglobin from 7.0 to 7.9. Then the
Jakafi
was reduced to 20 mg which put my hemoglobin up to 9.0.
My doctor put me on 25 mg of
Jakafi
2X per day. My platelets and white cells became perfect, but I am even more anemic. I'm on weekly Procrit shots which raised my hemoglobin from 7.0 to 7.9. Then the
Jakafi
was reduced to 20 mg which put my hemoglobin up to 9.0.
zfatherhen
in
Fight MPN
8 years ago
Jplsuper
The best I have felt has been taking
Jakafi
. All other meds caused fever, bone pain, and fatigue. It is interesting to finally meet and see people talking about our disease. I've waited a long time.
The best I have felt has been taking
Jakafi
. All other meds caused fever, bone pain, and fatigue. It is interesting to finally meet and see people talking about our disease. I've waited a long time.
Jplsuper
in
Fight MPN
8 years ago
First Time MF Poster
I initially started on hydroxyurea and prednisolone, but after four months
Jakafi
(Jakavi in Australia) became available on the pharmaceutical benefits scheme and I changed to that drug (20mg. twice daily) which I have been taking for eight months.
I initially started on hydroxyurea and prednisolone, but after four months
Jakafi
(Jakavi in Australia) became available on the pharmaceutical benefits scheme and I changed to that drug (20mg. twice daily) which I have been taking for eight months.
47Robert
in
MPN Voice
8 years ago
Anyone heard of Promedior?
If something like this could be developed perhaps it could be used in conjunction with
Jakafi
to help those whose disease has progressed?
If something like this could be developed perhaps it could be used in conjunction with
Jakafi
to help those whose disease has progressed?
Jennifer1974
in
MPN Voice
8 years ago
Extremely sensitive finger tips due to chronic gvhd and cortisone
After almost 8 weeks of 40mg+40mg of cortisone to try to get to grips with a chronic gvhd in the liver my finger tips are extremly sensitive, cracked and painfull. Does anyone have any tips on how to alleviate and improve things? For information, the corticoid treatment isn't working well enough and
After almost 8 weeks of 40mg+40mg of cortisone to try to get to grips with a chronic gvhd in the liver my finger tips are extremly sensitive, cracked and painfull. Does anyone have any tips on how to alleviate and improve things? For information, the corticoid treatment isn't working well enough and
crapaud
in
MPN Voice
8 years ago
Just started Pegeses/Interferon
Hello all, I just started this drug Pegeses /Interferon, also taking 5 mg of
Jakafi
twice a day. I have MF 2-3, JAK+. Also transfusion dependent, platelets are low also, I am very nervous. Any insight would be much appreciated.
Hello all, I just started this drug Pegeses /Interferon, also taking 5 mg of
Jakafi
twice a day. I have MF 2-3, JAK+. Also transfusion dependent, platelets are low also, I am very nervous. Any insight would be much appreciated.
Realtorlin
in
MPN Voice
8 years ago
Ruxolitinib & GvHD
I've been on higher doses of cortisone the last month or so to get over a chronic GvHD in my liver, after initial improvement things have regressed, my consultant is seriously considering replacing the corticoid by Jakavi (Ruxolitinib). I'd never heard of Ruxo being used like this, anyone have any feedback
I've been on higher doses of cortisone the last month or so to get over a chronic GvHD in my liver, after initial improvement things have regressed, my consultant is seriously considering replacing the corticoid by Jakavi (Ruxolitinib). I'd never heard of Ruxo being used like this, anyone have any feedback
crapaud
in
MPN Voice
8 years ago
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