Hi Chris

[crapaud]

Haven't seen much posting from you of late so hope things are progressing in the right direction.

On a personal side my Jakavi was reduced but that resulted in skin issues so it's been increased again.

Take care buddy.

Gary

[JediReject]

Hi Gary, , just by chance I managed to log in as had issues with site playing up asking for log in every time and me not getting password correct doesn't help. I keep a watchful eye on posts but not always inclined to comment , , maybe a indicator of how I'm feeling as I tend to withdraw a tad when I'm under the cosh so to speak.

Won't bore you with detail but battling GVHD as ever, got possible infection at line entry points and come down with a cold , , so not much 😉.

Finding a balance with Jakafi is a real juggling act. My platelets are too low again to permit me having it just yet.

Thanks for your concern buddy and take care

Chris

[babbittybumble in reply to JediReject]

Hello Chris, Like Gary I think everyone on ths site who knows you is so wanting you to feel better soon. Take care. Love Gill

[JediReject in reply to babbittybumble]

Aye thanks Gill means a lot to me to know folk care. . Must admit tis a hard slog and improvements are incremental. Whereas setbacks seem to be monumental. My mobility is better as I've gained strength but my eyes are worse. I keep chatting to my Stem cells to let them know they are safe in me as I'm family and asking them to chill out a tad but so far they aren't listening.

Doing my bestest to cope with it day on day but sometimes I get frustrated with my situation though I'm grateful to be here to fight on. I haven't come this far to give up that's for sure.

Hope you are keeping as well as you can be Gill.

Cheers Chris

[lizzziep in reply to JediReject]

Hi Chris, I'd been wondering how you were. Pleased you're still battling on, you've come a long way, not by a very direct route (I'm afraid that could be because of the female stem cells - we're not good at maps!) but you'll get there!! Everyone on here is behind you, praying and wishing you well.

Best wishes

Lizzie

[Inca]

Folks do care Chris,I was wondering too how you were progressing.Its not easy is it to write in when feeling rough and miserable.You will come thru,you are a fighter.Great to see something from you,Best of everything and keep strong.Sally xx

[Stevesmum42]

Hi Chris. Good to see you on here, always watching out for posts from you to see how you are doing, sorry to hear that you are dealing with another problem. We have such admiration for your fortitude and strength you are an inspiration to us all, if love, thoughts , and good wishes can help, you have it in spades from us all on here.

I hope you get over this patch really soon.

My very best wishes to you and your wife.

Gentle hug. Sandy X

[linds]

Chris, just want to add my virtual hug to all the good wishes. You are never far from our thoughts.

Linda x