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Experiences with
Intravenous immunoglobulin (IVIg)
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Post 642 I have been scared 8 May 2020
IVIG
infusions helped her and they have worked for years. I am pretty sure that I feared the pain mostly, and if I could cope another night. Whoever says that there is no pain in RRms is lying or they do not know what they are talking about.
IVIG
infusions helped her and they have worked for years. I am pretty sure that I feared the pain mostly, and if I could cope another night. Whoever says that there is no pain in RRms is lying or they do not know what they are talking about.
RoyceNewton
in
My MSAA Community
4 years ago
Leukaemia Care Webinar 8th April - a bit more information
Regarding
ivig
- they have been giving their patients 3 months of antibiotics to see them through this period. Going to the day unit for
ivig
may not be possible and too great a risk to all concerned. Those with sc
ivig
should make sure they clean it well when it arrives.
Regarding
ivig
- they have been giving their patients 3 months of antibiotics to see them through this period. Going to the day unit for
ivig
may not be possible and too great a risk to all concerned. Those with sc
ivig
should make sure they clean it well when it arrives.
Jm954
Administrator
in
CLL Support
4 years ago
My son suffering with chronic itp
Hi, My son at 20months old he diagnosed ITP in 2011,treated with
ivig
, prednisolone, 2011 to 2013 we suffered a lot...2014 onward he is fine,upto 2020 jan he is fine,one morning he suffering with motions and low fever,That day onwards his platelets counts decreased to 40k...Still we r facing problem
Hi, My son at 20months old he diagnosed ITP in 2011,treated with
ivig
, prednisolone, 2011 to 2013 we suffered a lot...2014 onward he is fine,upto 2020 jan he is fine,one morning he suffering with motions and low fever,That day onwards his platelets counts decreased to 40k...Still we r facing problem
prasadyarra
in
ITP Support Association
4 years ago
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IVIG infusion in Mexico
Trying to find out if you can get
IVIG
infusion therapy done in Mexico and the cost?
Trying to find out if you can get
IVIG
infusion therapy done in Mexico and the cost?
pragnar
in
CLL Support
4 years ago
Structure of CD20 in complex with the therapeutic monoclonal antibody rituximab
***Up all night following an
IVIG
infusion and tired of reading about coronavirus. The latest issue of Science had this article, and I was drawn to the models.
***Up all night following an
IVIG
infusion and tired of reading about coronavirus. The latest issue of Science had this article, and I was drawn to the models.
gardening-girl
in
CLL Support
4 years ago
Newly diagnosed after years of problems
I was being treated with
IVIG
during this time, and my flare-ups responded well the
IVIG
. My MRI remained normal. In March of 2018, my flare-ups changed. This time, it involved both legs at once.
I was being treated with
IVIG
during this time, and my flare-ups responded well the
IVIG
. My MRI remained normal. In March of 2018, my flare-ups changed. This time, it involved both legs at once.
poppymom23
in
Functional Neurological Disorder - FND Hope
4 years ago
Have you had IVIG treatment for immune issues?
I am undecided whether to have
IVIG
prior to transfer or whether to take only once pregnancy is confirmed (given the cost).
IVIG
is not proven and it’s very expensive making my decision about if / when to have it hard. Thanks in advance.
I am undecided whether to have
IVIG
prior to transfer or whether to take only once pregnancy is confirmed (given the cost).
IVIG
is not proven and it’s very expensive making my decision about if / when to have it hard. Thanks in advance.
Mogwai_2
in
Fertility Network UK
4 years ago
March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan
30 AM Patient Q&A Rhodes, Barrientos,, Chong 9:55 AM Clinical Pharmacist Role in Multidisciplinary Approach as a CLL Care Team Charlene Kabel, PharmD 10:15 AM Break 10:30 AM New and Exciting Molecules in CLL Lindsey Roeker, MD 10:50 AM Supportive Care in the Management of CLL – The Role of Vaccines,
IVIG
30 AM Patient Q&A Rhodes, Barrientos,, Chong 9:55 AM Clinical Pharmacist Role in Multidisciplinary Approach as a CLL Care Team Charlene Kabel, PharmD 10:15 AM Break 10:30 AM New and Exciting Molecules in CLL Lindsey Roeker, MD 10:50 AM Supportive Care in the Management of CLL – The Role of Vaccines,
IVIG
lankisterguy
Volunteer
in
CLL Support
4 years ago
I was diagnosed 8 years ago today
I later had to have additional courses of Rituxan and then we ended up starting monthly
IVIG
a year ago and then IBTNB in April of last year. All I can say is watch your side effects closely and force your physician to help you manage them.
I later had to have additional courses of Rituxan and then we ended up starting monthly
IVIG
a year ago and then IBTNB in April of last year. All I can say is watch your side effects closely and force your physician to help you manage them.
KevinCLLITP
in
CLL Support
4 years ago
Advise please from anyone who’s had IVIG infusions as part of IVF/FET treatment
When my blood was tested for the best treatment to lower NK cells,
IVIG
was most effective. I have been advised to have an
IVIG
infusion 2 days prior to FET and then 2 weeks following a positive pregnancy test.
When my blood was tested for the best treatment to lower NK cells,
IVIG
was most effective. I have been advised to have an
IVIG
infusion 2 days prior to FET and then 2 weeks following a positive pregnancy test.
Mogwai_2
in
Fertility Network UK
4 years ago
Are there different IgG formulations for IVIG ?
I thought I read a year or so ago that there may be different formulations of IgG; some better and some not as good. Would someone confirm whether this thought is correct or not and if true, what manufactures are involved. I also understand that there are regional shortages of IgG for transfusions.
I thought I read a year or so ago that there may be different formulations of IgG; some better and some not as good. Would someone confirm whether this thought is correct or not and if true, what manufactures are involved. I also understand that there are regional shortages of IgG for transfusions.
markjeep51
in
CLL Support
4 years ago
Rife Ultrasonic therapy cured my platelet crashes by killing the organisim that I caught when I traveled abroad that caused my ITP
I want to say to the researchers that I was cured from a 7 month serious platlet crashing and every 2 weeks
IVIG
injection ITP ride within one month after a Sept 2017 Rife treatment and 2 weeks of Parasite medication.
I want to say to the researchers that I was cured from a 7 month serious platlet crashing and every 2 weeks
IVIG
injection ITP ride within one month after a Sept 2017 Rife treatment and 2 weeks of Parasite medication.
CDmom
in
ITP Support Association
4 years ago
If you want to learn about CLL text or video
https://www.uptodate.com/contents/overview-of-intravenous-immune-globulin-
ivig
-therapy https://healthunlocked.com/cllsupport/posts/private/133873829/my-first-
ivig
-infusion-antibodies-transplant-experience https://healthunlocked.com/cllsupport/posts/private/135862773/my-subcutaneous-sub-q-igg-infusion-experience
https://www.uptodate.com/contents/overview-of-intravenous-immune-globulin-
ivig
-therapy https://healthunlocked.com/cllsupport/posts/private/133873829/my-first-
ivig
-infusion-antibodies-transplant-experience https://healthunlocked.com/cllsupport/posts/private/135862773/my-subcutaneous-sub-q-igg-infusion-experience
lankisterguy
Volunteer
in
CLL Support
4 years ago
"Sticky Blood" - Antiphospholipid Syndrome, POTS, Chronic Fatigue Syndrome and Fibromyalgia - The Dysautonomia Conference
Schofield reported that anti-coagulation in combination with
IVIG
can result in “meaningful clinical improvement” in patients with autoimmune dsyautonomia.
Schofield reported that anti-coagulation in combination with
IVIG
can result in “meaningful clinical improvement” in patients with autoimmune dsyautonomia.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Nine months post chemo visit
So they don’t do anything except offer
IVIG
or SCIG but only if the IgG drops below a certain cut off (which seems to get lower by the year as rationing gets worse). But low neutrophils potentially pose a more immediate problem.
So they don’t do anything except offer
IVIG
or SCIG but only if the IgG drops below a certain cut off (which seems to get lower by the year as rationing gets worse). But low neutrophils potentially pose a more immediate problem.
AdrianUK
in
CLL Support
4 years ago
Follicular Lymphoma Patient: 8-Year Treatment Experience
Her only side effect was low immunoglobulins that require an
IVIG
infusion every 4 months. In July 2019 she relapsed after 38+ months in remission. She qualified for a 2nd NIH CAR-T infusion under the same trial, this time at 6e6 CAR-T cells per kg body weight – a 10-fold increase.
Her only side effect was low immunoglobulins that require an
IVIG
infusion every 4 months. In July 2019 she relapsed after 38+ months in remission. She qualified for a 2nd NIH CAR-T infusion under the same trial, this time at 6e6 CAR-T cells per kg body weight – a 10-fold increase.
wmay13241
in
Non Hodgkin's Lymphoma Friends
5 years ago
I’m at my wits end
During that stay it was believed I had stiff person syndrome and was given one round of
IVIG
which has been the only drug that really seemed to work. However once that diagnosis was eliminated they refuse to even entertain the idea. I have a very complex medical history.
During that stay it was believed I had stiff person syndrome and was given one round of
IVIG
which has been the only drug that really seemed to work. However once that diagnosis was eliminated they refuse to even entertain the idea. I have a very complex medical history.
Stanleyleonard12
in
Functional Neurological Disorder - FND Hope
5 years ago
Problems with Neulasta after IVIG and in Ibrutinib
Neutrophils dropped over the last couple of months while on IBN so my doctors gave me a shot of Neulasta. I have ended up with weeks or achy bones, problems breathing, enhanced neuropathy and mouth sores, which are like blood blisters. My experience is that I have had lots of side effects from every
Neutrophils dropped over the last couple of months while on IBN so my doctors gave me a shot of Neulasta. I have ended up with weeks or achy bones, problems breathing, enhanced neuropathy and mouth sores, which are like blood blisters. My experience is that I have had lots of side effects from every
KevinCLLITP
in
CLL Support
5 years ago
Just arrived!
I am susceptible to chest infections/pneumonia so I have
IVIG
infusion every 4 weeks to support my immune system. I am also susceptible to Basal Cell Carcinoma (skin cancer -usually harmless) as a result of sun damage and CLL, which is also treated at King’s.
I am susceptible to chest infections/pneumonia so I have
IVIG
infusion every 4 weeks to support my immune system. I am also susceptible to Basal Cell Carcinoma (skin cancer -usually harmless) as a result of sun damage and CLL, which is also treated at King’s.
Salvoboy
in
CLL Support
5 years ago
CAPS or Primary APS with Alveolar Hemorrhage
Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing
IVIG
if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience with any of this??
Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing
IVIG
if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience with any of this??
kiminabmw
in
Hughes Syndrome APS Forum
5 years ago
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