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Is my only answer RAI or a thyroidectomy?
Hello everyone. I am a 32 year old female and have been on Carbimazole for the last 9 months for Graves’ disease. For the last 5 months or so I have been struggling to get the thyroid under control and have had my dosage yo-yo from 20mg to 15 to 30 to 20 to 40 to 20...! My latest bloods showed my Trab
Hello everyone. I am a 32 year old female and have been on Carbimazole for the last 9 months for Graves’ disease. For the last 5 months or so I have been struggling to get the thyroid under control and have had my dosage yo-yo from 20mg to 15 to 30 to 20 to 40 to 20...! My latest bloods showed my Trab
HannahStevenson
in
Thyroid UK
3 years ago
Iodine and underactive thyroid
Hi my name is Julie, I am 49 years old and been living with underactive thyroid since 2004. I have recently been looking into taking iodine supplements as my neck as swollen and feels suffocating..I have also put weight on, although I do excercise twice a day. (Yoga)The reason I looked into iodine
Hi my name is Julie, I am 49 years old and been living with underactive thyroid since 2004. I have recently been looking into taking iodine supplements as my neck as swollen and feels suffocating..I have also put weight on, although I do excercise twice a day. (Yoga)The reason I looked into iodine
juils1
in
Thyroid UK
3 years ago
Dietitian today
Hi I have had Ibs for many years, my diet is really bad. I am also vegetarian. I have been taking individual supplements, the dietitian today said, I have been taking a high dosage of each and she recommended an A to Z multivitamin and mineral. She said my guidance is Vit d. = 15 mg B12. = 1.5 mg
Hi I have had Ibs for many years, my diet is really bad. I am also vegetarian. I have been taking individual supplements, the dietitian today said, I have been taking a high dosage of each and she recommended an A to Z multivitamin and mineral. She said my guidance is Vit d. = 15 mg B12. = 1.5 mg
Junie2
in
Healthy Eating
3 years ago
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Interpretation of Iodine test results
Can anyone advise me on these test results please. I have Hashimotos, CFS and am currently on a low dose of T3 so still feeling very poorly
Can anyone advise me on these test results please. I have Hashimotos, CFS and am currently on a low dose of T3 so still feeling very poorly
Rock_chick1
in
Thyroid UK
3 years ago
update on soreness after injections
I asked members here about washing out with saline after injections recently as I had started getting keratitis ( severe inflammation / inability to tolerate light/ pain) after last two lots of injections ( I have had 38 now) in both eyes. Studies were vague about whether washing iodine out after injection
I asked members here about washing out with saline after injections recently as I had started getting keratitis ( severe inflammation / inability to tolerate light/ pain) after last two lots of injections ( I have had 38 now) in both eyes. Studies were vague about whether washing iodine out after injection
rosyG
in
Macular Society
3 years ago
Overactive Thyroid
Hi, just been reading everyone's comments about RAI or surgery and I am shocked that I have a choice I was told I only had the 2 options and that staying on carbizmole 5mg was not an option. I now know I am being forced by my hospital rather than being given a choice. So glad I found your posts
Hi, just been reading everyone's comments about RAI or surgery and I am shocked that I have a choice I was told I only had the 2 options and that staying on carbizmole 5mg was not an option. I now know I am being forced by my hospital rather than being given a choice. So glad I found your posts
Hip40
in
Thyroid UK
3 years ago
Salivary glands
I had RAI in july last year and now have a swollen face and neck ob one side indicating possible gland blocked. Is it common to get this 9 months after RAI or is it unrelated? Anyone had this experience?
I had RAI in july last year and now have a swollen face and neck ob one side indicating possible gland blocked. Is it common to get this 9 months after RAI or is it unrelated? Anyone had this experience?
Ullallah-6
in
Thyroid UK
3 years ago
Advice please
Hi everyone, On 20 April I will have a radio iodine tablet due to thyroid cancer, my thyroid has been taken out. On 18& 19 April , I will be given Thyrogen injection . I have been told to take low iodine diet from 6 April.Can anyone on the group would like to advice me on diet and precautions that
Hi everyone, On 20 April I will have a radio iodine tablet due to thyroid cancer, my thyroid has been taken out. On 18& 19 April , I will be given Thyrogen injection . I have been told to take low iodine diet from 6 April.Can anyone on the group would like to advice me on diet and precautions that
Bashu2
in
Thyroid UK
3 years ago
Can anyone help or advise please?
Hi, I've had a swollen thyroid on one side for several months, the ultrasound scan I had in January found it to be about 40mm diameter. I have (as yet) had no symptoms thankfully & all blood tests came back ok so no hypo- or hyper- thyroidism. I had a FNA biopsy in January too & it was found to be "inconclusive
Hi, I've had a swollen thyroid on one side for several months, the ultrasound scan I had in January found it to be about 40mm diameter. I have (as yet) had no symptoms thankfully & all blood tests came back ok so no hypo- or hyper- thyroidism. I had a FNA biopsy in January too & it was found to be "inconclusive
micwally
in
Thyroid UK
3 years ago
Waiting on test results
How long does it normally take to know my test results of an Iodine test from yourselves via Genova?
How long does it normally take to know my test results of an Iodine test from yourselves via Genova?
Rock_chick1
in
Thyroid UK
3 years ago
Neck resection and thyroidectomy
I had a left hemi thyroidectomy 3 years ago and 3 doctors at the time felt that was sufficient. My latest US shows papillary cells in the lymph nodes on the left and central neck. I am scheduled for a left lymph node resection and removal of the right remaining thyroid at Mt Sinai on 4/20. I am so nervous
I had a left hemi thyroidectomy 3 years ago and 3 doctors at the time felt that was sufficient. My latest US shows papillary cells in the lymph nodes on the left and central neck. I am scheduled for a left lymph node resection and removal of the right remaining thyroid at Mt Sinai on 4/20. I am so nervous
kri312
in
Thyroid Cancer Support
3 years ago
Endocrinologist advice and T3 reaction
Hi there again, hope you are all well. I am looking for some recommendations and advice if possible please. So I started taking t3 alongside t4 in February (after some help from this forum) building the dose up slowly to 20mg a day alongside 100mg of Levo. I had a bad skin reaction mainly on my face
Hi there again, hope you are all well. I am looking for some recommendations and advice if possible please. So I started taking t3 alongside t4 in February (after some help from this forum) building the dose up slowly to 20mg a day alongside 100mg of Levo. I had a bad skin reaction mainly on my face
rosegold-rockchick
in
Thyroid UK
3 years ago
Long-Term Antithyroid Drug Treatment of Patients With Graves’ Disease
https://www.liebertpub.com/doi/full/10.1089/ct.2019%3B31.230-233 This cohort of antithyroid-drug–treated adult Graves’ disease patients is one of the largest reported in the literature and has one of the longest follow-up periods. The article presents new information regarding patterns of disappearance
https://www.liebertpub.com/doi/full/10.1089/ct.2019%3B31.230-233 This cohort of antithyroid-drug–treated adult Graves’ disease patients is one of the largest reported in the literature and has one of the longest follow-up periods. The article presents new information regarding patterns of disappearance
ling
in
Thyroid UK
3 years ago
Test results and advice
I am wondering if you can help. Recently had to change GP due to house move and the one I see has been very good t an extent. Today heard from a different one who was no use. I had requested certain blood tests but it seems these are the only ones they did.....managed to get a copy. Serum free T4 level
I am wondering if you can help. Recently had to change GP due to house move and the one I see has been very good t an extent. Today heard from a different one who was no use. I had requested certain blood tests but it seems these are the only ones they did.....managed to get a copy. Serum free T4 level
Hidden
in
Thyroid UK
3 years ago
I miss the old me 😟
I feel so sad. So exhausted. First day back in work after my thyroidectomy and RAI which were both a while ago but have been furloughed and I feel absolutely exhausted 😢 Will I ever get my energy back?
I feel so sad. So exhausted. First day back in work after my thyroidectomy and RAI which were both a while ago but have been furloughed and I feel absolutely exhausted 😢 Will I ever get my energy back?
rosieposie83
in
Thyroid UK
3 years ago
Carol p
Hello I was diagnosed November 2020 and am on alot of drugs One is Itraconozole 4 capsules a day is anyone else on these and how many a day do you take,now waiting for scan on kidney as got pain all the time in one of them,plus next month I am having radio iodine for thyroid, so feeling very low and
Hello I was diagnosed November 2020 and am on alot of drugs One is Itraconozole 4 capsules a day is anyone else on these and how many a day do you take,now waiting for scan on kidney as got pain all the time in one of them,plus next month I am having radio iodine for thyroid, so feeling very low and
Bearsdown
in
Aspergillosis and Rare Fungal Infection Support
3 years ago
From hyper to hypo after RAI. Glad to exchange with anybody who can relate.
I wrote my story on my profile. I’ll be glad to communicate with anyone who has / had a similar experience and of course all advice is gratefully accepted. This site has been, still is a lifeline to me and I’m extremely thankful to all the generous people who have advised me here. Unfortunately, I'm
I wrote my story on my profile. I’ll be glad to communicate with anyone who has / had a similar experience and of course all advice is gratefully accepted. This site has been, still is a lifeline to me and I’m extremely thankful to all the generous people who have advised me here. Unfortunately, I'm
Koola
in
Thyroid UK
3 years ago
Iodine urine test
Can anyone give me any advice on if there are any drugs or supplements I would need to stop prior to this test. I am on liothyronine, diazepam, bisoprolol and various supplements. No biotin
Can anyone give me any advice on if there are any drugs or supplements I would need to stop prior to this test. I am on liothyronine, diazepam, bisoprolol and various supplements. No biotin
Rock_chick1
in
Thyroid UK
3 years ago
Transitioning from 150mcg of Thyroxine to Metavive help please
Hi. I have been on 150 mcg of Thyroxine for 20 years. I am 54 and male. What prompted the switch: I recently started getting a lot of itching and hives on my arms particularly and other areas. I consulted a homeopath and found I was likely experiencing allergic reaction to Thyroxine. The treatment appears
Hi. I have been on 150 mcg of Thyroxine for 20 years. I am 54 and male. What prompted the switch: I recently started getting a lot of itching and hives on my arms particularly and other areas. I consulted a homeopath and found I was likely experiencing allergic reaction to Thyroxine. The treatment appears
DavidOl
in
Thyroid UK
3 years ago
Still battling with the docs 7 years on! :-(
Hi my name is Sarah Hardaker im 49 married with 4 children,i was diagnosed 8 years ago after having bloods done when i felt rotten,in all honesty id wished id not bothered with sergery and RAI treatment,I also had a goitre that was removed,I gradually put weight on over the 8 years going from a size
Hi my name is Sarah Hardaker im 49 married with 4 children,i was diagnosed 8 years ago after having bloods done when i felt rotten,in all honesty id wished id not bothered with sergery and RAI treatment,I also had a goitre that was removed,I gradually put weight on over the 8 years going from a size
hardakersarah1971
in
Thyroid UK
3 years ago
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