Advice please

[Bashu2]

Hi everyone,

On 20 April I will have a radio iodine tablet due to thyroid cancer, my thyroid has been taken out. On 18& 19 April , I will be given Thyrogen injection . I have been told to take low iodine diet from 6 April.Can anyone on the group would like to advice me on diet and precautions that should be taken during this procedure.

I would also like to know from someone who had gone through this treatment and now how they felt or feel after RAI.Thanks

[Bashu2]

Thank you ,how do you feel now??

[Bashu2]

Thank you very much, really appreciate your advice.

[Fruitandnutcase]

Hi, can’t help with diet etc but my sister in law had thyroid cancer about fifty years ago. She was very young - maybe just 20. She had just had her second baby when she noticed a lump on her throat. Unfortunately her doctors left it until she finished breast feeding so about a year later what they thought was a ‘only’ a cyst turned out to be a malignant tumour.

She had a total thyroidectomy to get rid of the cancer. At that point she was studying for an OU degree in maths. She even took her books into hospital with her when she was having radiotherapy after the operation - in plastic bags! Think that wad one of the things that helped her through it. That and my mom looking after the baby and a toddler.

Since then she has finished her degree, taught for years, hobbies included rock climbing, hill walking mountain biking, sailing, camping and has travelled all over the world. Obviously she has taken thyroxine all of her life but she is a pensioner and grandmother now but since her recovery from thyroid cancer she has had and is having a fantastic life.

I remember her hating and being really stressed when she had to go for her check ups afterwards, obviously it was terribly worrying, certainly in the beginning but all went well for her.

So good luck with it all.

[madge1979 in reply to Fruitandnutcase]

Oh how lovely for your Sister and her Caring Family what an inspiring story to share .Luv Mx🌹

[Bashu2 in reply to madge1979]

Yes it is inspiring

[Bashu2 in reply to Fruitandnutcase]

Thank you very much ,you reply made my day.

[Fruitandnutcase in reply to Bashu2]

Hopefully things will go just as well for you. It’s a very scary process and the shock when you hear the C word is terrible. But there is definitely light at the end of the tunnel. ☀️

[madge1979]

THAT was not meant to be in the least bit funny Scrumbler , but forgive me , I laughed. 🤭

On a much more serious note , you’re description was full and I’m sure, very accurate and a great help to anyone about to receive this treatment .

I’m forever grateful to learn ANYthing about Thyroids on this wonderful site , with so many generous people .... Thank You

[Batty1]

Go to Facebook and type Lid Life Community..... all the special dietary needs and advice you could ever imagine.

[Bashu2 in reply to Batty1]

Thanks

[Poniesrfun]

Lid Life Community also has a helpful web site lidlifecommunity.orgThyCa has a low iodine cookbook you can download thyca.org/pap-fol/lowiodine...

In the US, they usually send you home after you take your RAI pill and you have to isolate yourself for 3-7 days depending on the dose.

Patti in AZ