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Interferon
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Thank You For PegInterferon Rash Info
Stopping
interferon
will clear it up but that's not going to happen. :) Only concern thus far is not sure about getting another biopsy on shin. The dermatologist started the procedure with a pain shot to numb the area. It was extremely painful.
Stopping
interferon
will clear it up but that's not going to happen. :) Only concern thus far is not sure about getting another biopsy on shin. The dermatologist started the procedure with a pain shot to numb the area. It was extremely painful.
Mishie14
in
MPN Voice
1 year ago
Recombinant Interferon-β in the Treatment of Polycythemia Vera
Treatment with
interferon
(IFN) alpha-2 normalizes elevated blood cell counts within weeks to months. This treatment has been used off-label over the last 30 years. Today, a novel
interferon
alpha-2b formulation (Besremi) is marketed for treatment of the MPN disease polycythemia vera.
Treatment with
interferon
(IFN) alpha-2 normalizes elevated blood cell counts within weeks to months. This treatment has been used off-label over the last 30 years. Today, a novel
interferon
alpha-2b formulation (Besremi) is marketed for treatment of the MPN disease polycythemia vera.
Manouche
in
MPN Voice
1 year ago
ET Hydroxy/short break - Update
I did discuss with my Consultant at last telephone call the options of changing medication perhaps to Peg
Interferon
but this Dr. did not mention Peg. However I haven’t pursued the change as I had thought of going back on HU when necessary instead of Peg. as on reading possible side effects of Peg.
I did discuss with my Consultant at last telephone call the options of changing medication perhaps to Peg
Interferon
but this Dr. did not mention Peg. However I haven’t pursued the change as I had thought of going back on HU when necessary instead of Peg. as on reading possible side effects of Peg.
azaelea
in
MPN Voice
1 year ago
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Interferon side effects of
However l have appalling headache/Migraine and wonder if there are others with this side effect and how others have dealt with challenging early experience with
Interferon
. Adiewon
However l have appalling headache/Migraine and wonder if there are others with this side effect and how others have dealt with challenging early experience with
Interferon
. Adiewon
Hidden
in
MPN Voice
1 year ago
Switching to Interferon
I fear the long term side effects of the Hydrea and because if this community I'm no longer scared to try
Interferon
. I have been told from day one that they side effects of
Interferon
are "bad" but after hearing all your stories I think it might actually be a better fit for me.
I fear the long term side effects of the Hydrea and because if this community I'm no longer scared to try
Interferon
. I have been told from day one that they side effects of
Interferon
are "bad" but after hearing all your stories I think it might actually be a better fit for me.
Zeppelin11
in
MPN Voice
1 year ago
Side effects from weekly injections
My MPN treatment Hi all, been injecting for over a year with 90mgs of
interferon
weekly. I have been getting worse & worse with muscle, joint pain & breathing issues and a pain between my shoulder blades?! I am assessed 3 monthly over the phone ☎️ and was doing really well?!
My MPN treatment Hi all, been injecting for over a year with 90mgs of
interferon
weekly. I have been getting worse & worse with muscle, joint pain & breathing issues and a pain between my shoulder blades?! I am assessed 3 monthly over the phone ☎️ and was doing really well?!
Pappafraser
in
MPN Voice
1 year ago
dizzy, ET , aspirin and Peg interferon
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Sprat19
in
MPN Voice
1 year ago
Update on progress with MF and the FEDORA clinical trial
I understand the
interferon
will take up to 6 months to show some noticeable effects on the Jak-2. As an aside my WBC has reduced and my neutrophils need to be above 1 to be able to take the
interferon
so I have now also been prescribed GCF injections (300mcg) to be taken once a week.
I understand the
interferon
will take up to 6 months to show some noticeable effects on the Jak-2. As an aside my WBC has reduced and my neutrophils need to be above 1 to be able to take the
interferon
so I have now also been prescribed GCF injections (300mcg) to be taken once a week.
Flyingsteamer
in
MPN Voice
1 year ago
nausea feeling but in throat
I am ET Calr on aspirin and
interferon
65gl weekly, never had a problem with this before 🤷♀️
I am ET Calr on aspirin and
interferon
65gl weekly, never had a problem with this before 🤷♀️
Grendall
in
MPN Voice
1 year ago
Itchy patches
Since jabbing myself with Pegasys
interferon
alfa2a for CALR +ET diagnosis, I've noticed the appearance of several small itchy patches on my abdomen and back. The ones on the abdomen are not on the site of the jab.
Since jabbing myself with Pegasys
interferon
alfa2a for CALR +ET diagnosis, I've noticed the appearance of several small itchy patches on my abdomen and back. The ones on the abdomen are not on the site of the jab.
gilded
in
MPN Voice
1 year ago
IFN-1 levels before treatment may be biomarker of SLE activity: Study
The study, “Relationship of systemic type I
interferon
activity with clinical phenotypes, disease activity, and damage accrual in systemic lupus erythematosus in treatment-naive patients: a retrospective longitudinal analysis,” was published in the journal Arthritis Research & Therapy.
The study, “Relationship of systemic type I
interferon
activity with clinical phenotypes, disease activity, and damage accrual in systemic lupus erythematosus in treatment-naive patients: a retrospective longitudinal analysis,” was published in the journal Arthritis Research & Therapy.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
raised potassium levels
I’m ET, Calr and on Aspirin and
Interferon
I’m ET, Calr and on Aspirin and
Interferon
Grendall
in
MPN Voice
1 year ago
Interesting Presentation by Dr Silver re long term survival on Interferons
https://www.vjhemonc.com/video/
interferon
-in-polycythemia-vera-long-term-experience-from-a-single-center/ He says he would take Colchicine as well as interferons!
https://www.vjhemonc.com/video/
interferon
-in-polycythemia-vera-long-term-experience-from-a-single-center/ He says he would take Colchicine as well as interferons!
Paul123456
in
MPN Voice
1 year ago
Interferon and thyroid
Is anyone on
interferon
who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying
interferon
as I have an underactive thyroid and am on thyroxine.
Is anyone on
interferon
who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying
interferon
as I have an underactive thyroid and am on thyroxine.
jodary
in
MPN Voice
2 years ago
Anagrelid to Interferon and Hashimoto.
Anyone with Hasimoto on
Interferon
? She said I’d take one shot a week. appreciate every comment! 🙂 Anag
Anyone with Hasimoto on
Interferon
? She said I’d take one shot a week. appreciate every comment! 🙂 Anag
Anag
in
MPN Voice
2 years ago
new to interferon Hunter can you help ?
When switching to
interferon
injections, should you still be on 3 a day hydroxy at same time ?
When switching to
interferon
injections, should you still be on 3 a day hydroxy at same time ?
Hidden
in
MPN Voice
2 years ago
alcohol intolerance
Hello All, I am 51 male had ET for 20 years currently on
Interferon
. After drinking alcohol I have a feeling of nausea and tiredness for days after. I’m not sure if this is to do with the ET or my age. I don’t drink much, most weeks zero but do like a social drink when out with others.
Hello All, I am 51 male had ET for 20 years currently on
Interferon
. After drinking alcohol I have a feeling of nausea and tiredness for days after. I’m not sure if this is to do with the ET or my age. I don’t drink much, most weeks zero but do like a social drink when out with others.
stevenjust
in
MPN Voice
1 year ago
Peg Interferon or HU
Does anyone know if
Interferon
or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While
interferon
is safe for pregnancy, i am assuming it is the safest meds of all.
Does anyone know if
Interferon
or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While
interferon
is safe for pregnancy, i am assuming it is the safest meds of all.
Timtams
in
MPN Voice
2 years ago
Hello Hello Interferon users
Hi gave myself a third Pegusus injection last night all whent well sort of. Although the first 2 syringe needles appeared very fine, last night's needle looked larger in diameter and left a puncture mark. Should l be asking the pharmacy about needle size or perhaps it's just me lm still very new
Hi gave myself a third Pegusus injection last night all whent well sort of. Although the first 2 syringe needles appeared very fine, last night's needle looked larger in diameter and left a puncture mark. Should l be asking the pharmacy about needle size or perhaps it's just me lm still very new
Hidden
in
MPN Voice
2 years ago
Fascinating Results different drugs
Pegasus
Interferon
started at dose of 45 weekly But only coped with 4 injections as horrendous Migraines. However Haemotology at hospital today showed platelets down to 300 after only 4 injections.
Pegasus
Interferon
started at dose of 45 weekly But only coped with 4 injections as horrendous Migraines. However Haemotology at hospital today showed platelets down to 300 after only 4 injections.
Exeter21
in
MPN Voice
2 years ago
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