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Interferon beta-1b
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Beta-2 microglobulin
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with interferon? If yes, has been confirmed by MD that it is caused by interferon? Thank you in advance for your answers.
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with interferon? If yes, has been confirmed by MD that it is caused by interferon? Thank you in advance for your answers.
Dane12
in
MPN Voice
9 months ago
beta sitosterol
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Nowhereman9
in
Advanced Prostate Cancer
9 months ago
Driving myself Crazy,,, Genetic results
So I did the BlueHorizon genetic results posted for some reason on PA page 🤯, https://healthunlocked.com/pasoc/posts/149956199/genetic-test-results maybe not a good day for revisiting this having serious head wobble. I am confused, DIO1 rs 2235544 AA, normal not increased activity ,
So I did the BlueHorizon genetic results posted for some reason on PA page 🤯, https://healthunlocked.com/pasoc/posts/149956199/genetic-test-results maybe not a good day for revisiting this having serious head wobble. I am confused, DIO1 rs 2235544 AA, normal not increased activity ,
Polo22
in
Thyroid UK
9 months ago
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Coincidence or not?
After some female advice please. I am 45 and would like to know if anyone has experienced the same as me please. Diagnosed ET May 2017, started on Hydroxycabamide June 2018 and switched to Interferon in May this year. Whilst I was taking Hydroxy I had no periods for around 4 years, since coming off
After some female advice please. I am 45 and would like to know if anyone has experienced the same as me please. Diagnosed ET May 2017, started on Hydroxycabamide June 2018 and switched to Interferon in May this year. Whilst I was taking Hydroxy I had no periods for around 4 years, since coming off
beckyluck
in
MPN Voice
9 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
Fight MPN
9 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
MPN Voice
9 months ago
Damaged mitochondrial DNA fragments may spread throughout brain in sPD and sPDD
https://medicalxpress.com/news/2023-10-mitochondrial-dna-triggers-parkinson-disease-like.html Study: https://www.nature.com/articles/s41380-023-02251-4 Abstract:[i] "In the field of neurodegenerative diseases, especially sporadic Parkinson’s disease (sPD) with dementia (sPDD), the question of how the
https://medicalxpress.com/news/2023-10-mitochondrial-dna-triggers-parkinson-disease-like.html Study: https://www.nature.com/articles/s41380-023-02251-4 Abstract:[i] "In the field of neurodegenerative diseases, especially sporadic Parkinson’s disease (sPD) with dementia (sPDD), the question of how the
genesurf
in
Cure Parkinson's
9 months ago
Supplements - Dangerous, Essential or Useless?
Wizard recently made an interesting post on the "drive to minimize supplementation" that I wanted to respond to in-depth. The post: https://healthunlocked.com/pasoc/posts/150006558/the-drive-to-reduce-minimize-supplementation I decided a long form response would be better, thus my separate post here.
Wizard recently made an interesting post on the "drive to minimize supplementation" that I wanted to respond to in-depth. The post: https://healthunlocked.com/pasoc/posts/150006558/the-drive-to-reduce-minimize-supplementation I decided a long form response would be better, thus my separate post here.
Technoid
in
Pernicious Anaemia Society
10 months ago
Still waiting …
Quite a while ago I asked my haematologist to refer me to Professor Harrison at Guys, he says he now has eventually sent a letter via ‘snail mail’ ( royal mail) about 3 weeks ago, however Professor Harrison says they haven’t received anything yet. I rang my specialist nurse and asked if it had been sent
Quite a while ago I asked my haematologist to refer me to Professor Harrison at Guys, he says he now has eventually sent a letter via ‘snail mail’ ( royal mail) about 3 weeks ago, however Professor Harrison says they haven’t received anything yet. I rang my specialist nurse and asked if it had been sent
lizzziep
in
MPN Voice
9 months ago
Trouble getting interferon?
I was not tolerating hydroxyurea after taking it for a few years. My MPN specialist is trying to switch me to Jakafi, but we are having a hard time keeping RBCs up while getting platelets down. I am still using low doses of HU to keep platelets down, but that tack is also pushing towards anemia. We
I was not tolerating hydroxyurea after taking it for a few years. My MPN specialist is trying to switch me to Jakafi, but we are having a hard time keeping RBCs up while getting platelets down. I am still using low doses of HU to keep platelets down, but that tack is also pushing towards anemia. We
Owl-fan
in
MPN Voice
10 months ago
A bit disappointed
I’ve seen my haematologist today. My blood results were pretty good, all in normal levels except a bit anaemic, so the EPO dose has been increased. I’ve been on peg interferon for 8 weeks. However, I requested quite a few weeks ago for referral to Professor Harrison at Guys, my doctor was reluctant
I’ve seen my haematologist today. My blood results were pretty good, all in normal levels except a bit anaemic, so the EPO dose has been increased. I’ve been on peg interferon for 8 weeks. However, I requested quite a few weeks ago for referral to Professor Harrison at Guys, my doctor was reluctant
lizzziep
in
MPN Voice
10 months ago
Decisions, decisions
I was diagnosed with post ET MF earlier this year. After NGS I was told I had the ASLX1 gene, amongst others, doctor said I was high risk for transforming to AML, but it would probably be a few years. I asked to be referred to Professor Harrison, I have asked for this at each appointment. I managed
I was diagnosed with post ET MF earlier this year. After NGS I was told I had the ASLX1 gene, amongst others, doctor said I was high risk for transforming to AML, but it would probably be a few years. I asked to be referred to Professor Harrison, I have asked for this at each appointment. I managed
lizzziep
in
MPN Voice
10 months ago
platelet action level
hi all, I have been diagnosed with PV about two years ago. My consultant recommends that they monitor my blood level and treat it with venesection and a daily dose of aspirin. Steadily my platelet count has been rising towards 1000 while my haematocrit has remained steady below the threshold of 0.45
hi all, I have been diagnosed with PV about two years ago. My consultant recommends that they monitor my blood level and treat it with venesection and a daily dose of aspirin. Steadily my platelet count has been rising towards 1000 while my haematocrit has remained steady below the threshold of 0.45
STK52
in
MPN Voice
10 months ago
COVID and Pegylated Interferon
At my last Haematology appointment the Dr told me that Interferon helps strengthen the immune system. I have also read that Interferon has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required. Does anyone have
At my last Haematology appointment the Dr told me that Interferon helps strengthen the immune system. I have also read that Interferon has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required. Does anyone have
AnitaJ
in
MPN Voice
10 months ago
Pegasys and increasingly low haemoglobin count
Hi I’ve been on interferon for 5 years in total and pegasys for the last 2 or 3 years for my PV. I’ve been injecting 90mg weekly until July as both my platelets and haemoglobin have gradually been dropping. My frequency has therefore been changed to once every 2 weeks for the past month. Platelets
Hi I’ve been on interferon for 5 years in total and pegasys for the last 2 or 3 years for my PV. I’ve been injecting 90mg weekly until July as both my platelets and haemoglobin have gradually been dropping. My frequency has therefore been changed to once every 2 weeks for the past month. Platelets
PT99
in
MPN Voice
10 months ago
Açai powder
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Blonde25
in
MPN Voice
10 months ago
MF, considering interferon treatment
Hello everyone I haven't posted for a while. All has been well, but my spleen is getting bigger now at 19.4cm. I am MF patient and 54. Working full time. I have been ok with it, but I am more aware of it and sometimes uncomfortable, or have to lie right (I feel it under my ribs, in my back), and I
Hello everyone I haven't posted for a while. All has been well, but my spleen is getting bigger now at 19.4cm. I am MF patient and 54. Working full time. I have been ok with it, but I am more aware of it and sometimes uncomfortable, or have to lie right (I feel it under my ribs, in my back), and I
Mrs_Average
in
MPN Voice
10 months ago
Doctors opinion ….
I’ve seen the consultant this afternoon. I repeated I want a second opinion from Professor Harrison, he agreed, but said he’d never referred anyone to her and didn’t know what to do! Told him I had just emailed and asked about it, hopefully he will do the same. Anyway, after a month on peg interferon
I’ve seen the consultant this afternoon. I repeated I want a second opinion from Professor Harrison, he agreed, but said he’d never referred anyone to her and didn’t know what to do! Told him I had just emailed and asked about it, hopefully he will do the same. Anyway, after a month on peg interferon
lizzziep
in
MPN Voice
11 months ago
stinging under the skin with PV
for some reason I am suffering with horrible stinging.. not itching with PV. Lately it’s been practically all day long and it’s unbearable. I do take anti histamines but lately they aren’t helping. I also take hot bats which give temporary relief. Wondering if the Peg Interferon is making it worse suddenly
for some reason I am suffering with horrible stinging.. not itching with PV. Lately it’s been practically all day long and it’s unbearable. I do take anti histamines but lately they aren’t helping. I also take hot bats which give temporary relief. Wondering if the Peg Interferon is making it worse suddenly
Airslie
in
MPN Voice
11 months ago
What to do ….
Warning - long post! I’m not sure what I’m really asking here, or if I’m just looking for a sounding board. At my appointment last month my haematologist told me my ET had now changed to MF, after a bmb and NSG testing. He also said I had markers for high risk for leukaemia. I didn’t ask what the markers
Warning - long post! I’m not sure what I’m really asking here, or if I’m just looking for a sounding board. At my appointment last month my haematologist told me my ET had now changed to MF, after a bmb and NSG testing. He also said I had markers for high risk for leukaemia. I didn’t ask what the markers
lizzziep
in
MPN Voice
11 months ago
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