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Interferon beta-1b
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Advances in the Polycythemia Vera Paradigm Signal Hope for Providers in Pennsylvania Cluster Area
« The interferons are our older agents, but they're being studied in new ways. As we have molecular data available to us and as we have better tools to look at the marrow more closely, to assess what's happening, what we're finding is that some of these agents including the interferons, may be altering
« The interferons are our older agents, but they're being studied in new ways. As we have molecular data available to us and as we have better tools to look at the marrow more closely, to assess what's happening, what we're finding is that some of these agents including the interferons, may be altering
Manouche
in
MPN Voice
3 years ago
Interferon journey started with ET JAK+ at platelets counts 550
I start interferon journey yesterday after taking 4 months of hydroxyurea. My initial blood platelets was as high as ~950 in April, then gradually decreases to ~550 till yesterday when I switched to interferon. Although I don't have any severe side-effects on HU except I felt soar knee, I decided to
I start interferon journey yesterday after taking 4 months of hydroxyurea. My initial blood platelets was as high as ~950 in April, then gradually decreases to ~550 till yesterday when I switched to interferon. Although I don't have any severe side-effects on HU except I felt soar knee, I decided to
Sam2022
in
MPN Voice
3 years ago
Change to Interferon
Hi my MPN family. Today I had my first weekly -Interferon injection after being on Hydroxy for 6 years for my PV. What, if anything, can I expect to feel or not with this new course of treatment. I am still awaiting my antibody test results from Hematology. If I am found to have Lupus then I will
Hi my MPN family. Today I had my first weekly -Interferon injection after being on Hydroxy for 6 years for my PV. What, if anything, can I expect to feel or not with this new course of treatment. I am still awaiting my antibody test results from Hematology. If I am found to have Lupus then I will
jillydabrat
in
MPN Voice
3 years ago
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Pegasus interferon injection
I have just done my 7th injection and so pleased to say it went well. I was originally having problems with the prepping but thanks to all the advice different mpners on this site have given me I am feeling more confident now thank you . I have my next blood tests next Monday so keeping my fingers crossed
I have just done my 7th injection and so pleased to say it went well. I was originally having problems with the prepping but thanks to all the advice different mpners on this site have given me I am feeling more confident now thank you . I have my next blood tests next Monday so keeping my fingers crossed
Hughley
in
MPN Voice
3 years ago
Post 746 Powerlessness NOT YOU 10 Jul 2021
Back in the day, when I was on
Beta
1b
interferon
, each needle I used to imagine. The medicine going into my bloodstream and flowing around my body. Building barriers, repairing damage that ms had caused. Not getting all the damage, but some.
Back in the day, when I was on
Beta
1b
interferon
, each needle I used to imagine. The medicine going into my bloodstream and flowing around my body. Building barriers, repairing damage that ms had caused. Not getting all the damage, but some.
RoyceNewton
in
My MSAA Community
3 years ago
Lupus Foundation of America Celebrates FDA Approval of Saphnelo™ (Anifrolumab-fnia) as a New Treatment for Lupus
August 2, 2021 This type I interferon receptor antagonist demonstrated early and sustained benefits for people with moderate to severe systemic lupus erythematosus. The U.S. Food and Drug Administration (FDA) has approved Saphnelo™ (anifrolumab-fnia) as a treatment for adults with systemic lupus erythematosus
August 2, 2021 This type I interferon receptor antagonist demonstrated early and sustained benefits for people with moderate to severe systemic lupus erythematosus. The U.S. Food and Drug Administration (FDA) has approved Saphnelo™ (anifrolumab-fnia) as a treatment for adults with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
More variants TLR7 gene found in young healthy men with severe Covid-19.
Spanish-Dutch research has revealed two new mutations in the TLR7 gene in healthy young men who became seriously ill with severe Covid-19. It’s becoming increasingly plausible that such mutations undermine a sufficient immune response against SARS-CoV-2, the researchers write in Frontiers in Immunology
Spanish-Dutch research has revealed two new mutations in the TLR7 gene in healthy young men who became seriously ill with severe Covid-19. It’s becoming increasingly plausible that such mutations undermine a sufficient immune response against SARS-CoV-2, the researchers write in Frontiers in Immunology
2greys
in
Lung Conditions Community Forum
3 years ago
Taken off Hydrea effects
Hi all. I was hoping there might be someone out there that might be in the same position. I was on Hydrea for over two years. In the last six months I was also placed on Interferon. First a small amount and now the full the injection. My Hematologist is happy with my results and has taken me off Hydrea
Hi all. I was hoping there might be someone out there that might be in the same position. I was on Hydrea for over two years. In the last six months I was also placed on Interferon. First a small amount and now the full the injection. My Hematologist is happy with my results and has taken me off Hydrea
vegas22
in
MPN Voice
3 years ago
Pegasus interferon injection
I have just done my 5th injection and it’s the preparing that causes me a problem I can snap the needle out without a problem but having difficulties after attaching the needle to the syringe taking the needle cover off in fact today jabbed my finger has anyone got any hints how to make it easier. The
I have just done my 5th injection and it’s the preparing that causes me a problem I can snap the needle out without a problem but having difficulties after attaching the needle to the syringe taking the needle cover off in fact today jabbed my finger has anyone got any hints how to make it easier. The
Hughley
in
MPN Voice
3 years ago
Taking interferon in hot weather
Quick question, I took interferon on Saturday night and have been suffering since - very achy and then cold shivers at night... (Although periods of feeling normal too). Taken many covid tests, all negative... Previous post about heat and PV was very reassuring but I just wondered if I've made symptoms
Quick question, I took interferon on Saturday night and have been suffering since - very achy and then cold shivers at night... (Although periods of feeling normal too). Taken many covid tests, all negative... Previous post about heat and PV was very reassuring but I just wondered if I've made symptoms
hansyhand
in
MPN Voice
3 years ago
ALTERNATIVE TO RUXONLITINIB
Good afternoon After five years of excellent treatment on Ruxonlitinib to treat myelofibrosis and recent surgery to remove an aggressive SCC from my forehead , I am under consideration to crossover to an alternative treatment , namely interferon. I would be grateful for any accounts you may have on
Good afternoon After five years of excellent treatment on Ruxonlitinib to treat myelofibrosis and recent surgery to remove an aggressive SCC from my forehead , I am under consideration to crossover to an alternative treatment , namely interferon. I would be grateful for any accounts you may have on
kevinbros
in
MPN Voice
3 years ago
Pegasus interferon taking paracetamol before injection
I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still need to take 2 paracetamol prior to injecting as advised by the nurse when I had my first injection can anyone advise me thank you
I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still need to take 2 paracetamol prior to injecting as advised by the nurse when I had my first injection can anyone advise me thank you
Hughley
in
MPN Voice
3 years ago
Interferon
Just done my 1st injection, simple enough, now hoping any side effects will be minimal.
Just done my 1st injection, simple enough, now hoping any side effects will be minimal.
ciye
in
MPN Voice
3 years ago
Thursday Lunch/brunch: Pumpkin mushroom Coconut Milk Soup.😋🥣❤️🌺
Happy Thursday everyone! Hope your day is joyful so far! 🤗 For today, I made my pumpkin soup in my pressure cooker. Remove the skin was the hard part! 😅 I remember my grandma always said if you eat this, you will be so smart. 😂 I love this soup for many health benefits and great skin and eyes. 😄❤️
Happy Thursday everyone! Hope your day is joyful so far! 🤗 For today, I made my pumpkin soup in my pressure cooker. Remove the skin was the hard part! 😅 I remember my grandma always said if you eat this, you will be so smart. 😂 I love this soup for many health benefits and great skin and eyes. 😄❤️
Hidden
in
Healthy Eating
3 years ago
Pegasus interferon injection prepping
Well I have managed to do my first injection st home but had a bit of a problem prepping the injection I couldn’t seem to be able to snap the needle holder in fear of breaking it but a neighbour helped me just hope the new medication works for me.
Well I have managed to do my first injection st home but had a bit of a problem prepping the injection I couldn’t seem to be able to snap the needle holder in fear of breaking it but a neighbour helped me just hope the new medication works for me.
Hughley
in
MPN Voice
3 years ago
Change of treatment!
Hello again. Last time I wrote, I was about to start hydroxy. Started with 500mg a day, Monday to Friday for 4 weeks and then every day. To start with I didn’t have too many side effects but after 7 weeks things got worse. Not only the hot flushes increased drastically, I had mouth ulcers, itchy scalp
Hello again. Last time I wrote, I was about to start hydroxy. Started with 500mg a day, Monday to Friday for 4 weeks and then every day. To start with I didn’t have too many side effects but after 7 weeks things got worse. Not only the hot flushes increased drastically, I had mouth ulcers, itchy scalp
Cokopops
in
MPN Voice
3 years ago
ET - how many of you have this condition and then have it develop into MF or another condition
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
vickivicki
in
MPN Voice
3 years ago
Pegasys update
Hi all, So the blood results are in and I’ve had my consultation with my specialist nurse. My platelets after one week have dropped from 450 to 253!! I’ve gained at least 2 hours a day but not energy. My WBC have been compromised so I have a reduced immune system. I'm now dropping my 9 anagrelide
Hi all, So the blood results are in and I’ve had my consultation with my specialist nurse. My platelets after one week have dropped from 450 to 253!! I’ve gained at least 2 hours a day but not energy. My WBC have been compromised so I have a reduced immune system. I'm now dropping my 9 anagrelide
Wyebird
in
MPN Voice
3 years ago
Storage of Pegasus interferon
I started on Pegasus interferon last week and I am very concerned regarding the storage of the syringe in my fridge not being at the correct temperature 2-8 degrees centigrade I have bought a digital fridge thermometer but it fluctuates every time I open the door. Does anyone have any advice regarding
I started on Pegasus interferon last week and I am very concerned regarding the storage of the syringe in my fridge not being at the correct temperature 2-8 degrees centigrade I have bought a digital fridge thermometer but it fluctuates every time I open the door. Does anyone have any advice regarding
Hughley
in
MPN Voice
3 years ago
Macular Degeneration Information
Hello if you are interested in protecting your macular read the following link https://www.brightfocus.org/macular/news/macular-essential-facts It is very interesting, in order to protect your macular you should maybe take the following advice. The National Eye Institute’s Age-Related Eye Disease Study
Hello if you are interested in protecting your macular read the following link https://www.brightfocus.org/macular/news/macular-essential-facts It is very interesting, in order to protect your macular you should maybe take the following advice. The National Eye Institute’s Age-Related Eye Disease Study
valfrance
in
Glaucoma UK
3 years ago
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