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Interferon beta-1b
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Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
Success
My Haematoligist has agreed to put me on interferon. She has said it may not help with the fatigue, hopefully she is wrong. She also says the breathlessness isn't down to the hydroxcycarbamide despite the fact it's listed on the side effects. I will see how I go while on the interferon.
My Haematoligist has agreed to put me on interferon. She has said it may not help with the fatigue, hopefully she is wrong. She also says the breathlessness isn't down to the hydroxcycarbamide despite the fact it's listed on the side effects. I will see how I go while on the interferon.
ciye
in
MPN Voice
3 years ago
Advice wanted
Hello 1st time on this site but am feeling a bit more positive reading some of the posts. I am JAK positive Myeloproliferative Disorder and Portal Vein Thrombosis. I was diagnosed with Portal Vein Thrombosis in 2005 and MD in 2008. I was initially put on Interferon but could not tolerate the fevers
Hello 1st time on this site but am feeling a bit more positive reading some of the posts. I am JAK positive Myeloproliferative Disorder and Portal Vein Thrombosis. I was diagnosed with Portal Vein Thrombosis in 2005 and MD in 2008. I was initially put on Interferon but could not tolerate the fevers
taytokavo
in
MPN Voice
3 years ago
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Ruxolitinib discontinuation in polycythemia vera:
« After discontinuation, only 4 patients (18 %) received subsequent cytoreductive therapy, including hydroxyurea in one patient and pegylated interferon α-2a in three patients »… « discontinuation of ruxolitinib in PV was associated with generally favorable outcomes. However, there is a lack of available
« After discontinuation, only 4 patients (18 %) received subsequent cytoreductive therapy, including hydroxyurea in one patient and pegylated interferon α-2a in three patients »… « discontinuation of ruxolitinib in PV was associated with generally favorable outcomes. However, there is a lack of available
Manouche
in
MPN Voice
3 years ago
Research identifies potential antiviral compound for COVID-19, flu, other viral infection
UMass Medical School scientists Katherine A. Fitzgerald, PhD; Fiachra Humphries, PhD; and Liraz Galia, PhD, working with the British-based pharmaceutical company GlaxoSmithKline, have identified a novel molecule capable of stimulating the innate immune system against SARS-CoV-2 virus. A trigger for the
UMass Medical School scientists Katherine A. Fitzgerald, PhD; Fiachra Humphries, PhD; and Liraz Galia, PhD, working with the British-based pharmaceutical company GlaxoSmithKline, have identified a novel molecule capable of stimulating the innate immune system against SARS-CoV-2 virus. A trigger for the
2greys
in
Lung Conditions Community Forum
3 years ago
Is anyone concerned on the side-effect of taking hydroxyurea for long time?
Is anyone concerned on the side-effect of taking hydroxyurea for long time? I am taking 500mg/day and scared with the toxicity of this medicine in long term. I heard Interferon is much better than HU and has chance to change JAK2 + to negative. Anyone any recommendation? I am JAK2+ with platelets ~600
Is anyone concerned on the side-effect of taking hydroxyurea for long time? I am taking 500mg/day and scared with the toxicity of this medicine in long term. I heard Interferon is much better than HU and has chance to change JAK2 + to negative. Anyone any recommendation? I am JAK2+ with platelets ~600
Sam2022
in
MPN Voice
3 years ago
ASCO presentations on melanoma research this week
1. Iovance (advanced biotech company for use of Adoptive Cell Therapy/Tumor Infiltrating Lymphocytes (TIL) reports data at the 33 month follow up point. Early Intervention with Lifileucel Following Progression on Anti-PD-1 Therapy May Maximize Benefit. https://www.yahoo.com/now/iovance-biotherapeutics-announces
1. Iovance (advanced biotech company for use of Adoptive Cell Therapy/Tumor Infiltrating Lymphocytes (TIL) reports data at the 33 month follow up point. Early Intervention with Lifileucel Following Progression on Anti-PD-1 Therapy May Maximize Benefit. https://www.yahoo.com/now/iovance-biotherapeutics-announces
missyrand
Ambassador
in
Melanoma Caregivers
3 years ago
Testosterone & Covid-19
New study below [1] [2] When the pandemic began, it was quickly noted that a disproportionate number of men were dying from it. Made sense, since women mount a stronger immune response than me with high-normal testosterone [T]. And then the Italian study came out in May (2020) [3]: "Our data suggest
New study below [1] [2] When the pandemic began, it was quickly noted that a disproportionate number of men were dying from it. Made sense, since women mount a stronger immune response than me with high-normal testosterone [T]. And then the Italian study came out in May (2020) [3]: "Our data suggest
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Greater Understanding of PV, ET Drives Potential New Treatment Options
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
Manouche
in
MPN Voice
3 years ago
Cytoreductive surgery for Oligometastatic PCa.
New meta-analysis below [1]. "... ten studies were identified that met the conclusion {inclusion?} criteria. The total number of samples was 804; 449 patients underwent cytoreductive surgery, and 355 patients underwent endocrine therapy ... "... we found that between cytoreductive surgery and endocrine
New meta-analysis below [1]. "... ten studies were identified that met the conclusion {inclusion?} criteria. The total number of samples was 804; 449 patients underwent cytoreductive surgery, and 355 patients underwent endocrine therapy ... "... we found that between cytoreductive surgery and endocrine
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Covid jab and interferon injection
Hi Hope everyone is doing OK. Quick question. I had my second covid jab this morning. Iam due to have my interferon injection this evening. (45MG EVERY OTHER WEEK) wondering if it is OK to still have my injection same day as my covid jab Many thanks
Hi Hope everyone is doing OK. Quick question. I had my second covid jab this morning. Iam due to have my interferon injection this evening. (45MG EVERY OTHER WEEK) wondering if it is OK to still have my injection same day as my covid jab Many thanks
Elab
in
MPN Voice
3 years ago
Interferon side effects?
Hi everyone - I’m new to this community but have been reading your posts for several months and have already learned so much from all of you. Thanks! I was diagnosed with ET at age 58. I’m 62 now and began HU 500mg/day at 60. I also take baby aspirin, one in the morning and one in the evening. My platelets
Hi everyone - I’m new to this community but have been reading your posts for several months and have already learned so much from all of you. Thanks! I was diagnosed with ET at age 58. I’m 62 now and began HU 500mg/day at 60. I also take baby aspirin, one in the morning and one in the evening. My platelets
jevans59
in
MPN Voice
3 years ago
Unnumbered post Look for alternatives 12 May 2021
Good day family. I have no idea when "YOU" read this so I think day is safest. For me, it is nearly eleven am, right and sunny and I am debating buying more instant coffee. I am Australian so instant coffee is normal for me. I know how to brew coffee, but sometimes I am just far too lazy, no
Good day family. I have no idea when "YOU" read this so I think day is safest. For me, it is nearly eleven am, right and sunny and I am debating buying more instant coffee. I am Australian so instant coffee is normal for me. I know how to brew coffee, but sometimes I am just far too lazy, no
RoyceNewton
in
My MSAA Community
3 years ago
Interferon Injections tummy feels bruised.
Hello I have been on the Interferon Injections for over five months, once a week. I have noticed my tummy has become sore when I push down and feels slightly hard and internally bruised. I was on Clexane Injections and they left my tummy bruised with many large knots. I have been taken off Clexane and
Hello I have been on the Interferon Injections for over five months, once a week. I have noticed my tummy has become sore when I push down and feels slightly hard and internally bruised. I was on Clexane Injections and they left my tummy bruised with many large knots. I have been taken off Clexane and
vegas22
in
MPN Voice
3 years ago
Interferon Cough
I'm convinced I have the 'cough' , consultant not convinced.. Anyone else have the same and what are your symptoms? Is it a productive cough Treatment?
I'm convinced I have the 'cough' , consultant not convinced.. Anyone else have the same and what are your symptoms? Is it a productive cough Treatment?
shiftzz
in
MPN Voice
3 years ago
Update 5.0
I saw the MPN Specialist on Wednesday to review my status and treatment plan. I have been having issues that the doc agrees are likely related to chronic iron deficiency from the phlebotomies. There are of course, a host of secondary symptoms that the MPN Specialist also noted are quite common with
I saw the MPN Specialist on Wednesday to review my status and treatment plan. I have been having issues that the doc agrees are likely related to chronic iron deficiency from the phlebotomies. There are of course, a host of secondary symptoms that the MPN Specialist also noted are quite common with
hunter5582
in
MPN Voice
3 years ago
“Interferon” with MPN hematopoietic stem cells
« In this issue of Blood, Rao et al reveal important insights into how hematopoietic stem cell (HSC) subpopulations contribute to myeloproliferative neoplasm (MPN) pathogenesis, and how these populations are perturbed in the setting of pegylated-interferon (pegIFN) therapy.1 The advent of pegylated
« In this issue of Blood, Rao et al reveal important insights into how hematopoietic stem cell (HSC) subpopulations contribute to myeloproliferative neoplasm (MPN) pathogenesis, and how these populations are perturbed in the setting of pegylated-interferon (pegIFN) therapy.1 The advent of pegylated
Manouche
in
MPN Voice
3 years ago
Pegasys and high levels of liver enzyme or
Hi everyone! I was diagnosed with PV Jak2 back in 2012 and was advised to continue aspirin regimen with Phlebotomys every 3 months as I was not high risk. So, I turned 60 last fall (considered high risk now) and was placed on low dose Pegasys interferon. I've only been on this drug for 2 months and
Hi everyone! I was diagnosed with PV Jak2 back in 2012 and was advised to continue aspirin regimen with Phlebotomys every 3 months as I was not high risk. So, I turned 60 last fall (considered high risk now) and was placed on low dose Pegasys interferon. I've only been on this drug for 2 months and
ritaandscooter1
in
MPN Voice
3 years ago
Opinions about Hydroxyurea, vaccination and pregnancy with ET.
Hi everyone. My name is Kristina and I'm 32 years old diagnosed with ET. I discovered that my platelets were high in 2007, but was diagnosed with ET few years later. First I was put on only Aspirin, then when my platelets were around million I was given Interferon Alfa which I was taking irregularly
Hi everyone. My name is Kristina and I'm 32 years old diagnosed with ET. I discovered that my platelets were high in 2007, but was diagnosed with ET few years later. First I was put on only Aspirin, then when my platelets were around million I was given Interferon Alfa which I was taking irregularly
Kristina-T
in
MPN Voice
3 years ago
Covid antibodies
I was at my hospital for usual bloods pre starting interferon next month. They also tested me for covid antibodies as I had my second jab the week before. Does anyone know what a good value is for the antibodies and is a week to soon for them to have developed fully?
I was at my hospital for usual bloods pre starting interferon next month. They also tested me for covid antibodies as I had my second jab the week before. Does anyone know what a good value is for the antibodies and is a week to soon for them to have developed fully?
Jonnymitts
in
MPN Voice
3 years ago
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