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Interferon beta-1b
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MPN experts invaluable.
Thought I would share this useful information . Having been treated by my local Haemotology Department since early this year upon my ET Jak2 positive diagnosis I have done lots of reading on this valuable website we have. ET was discovered from my sports injury NOT any symptoms. Hydroxy
Thought I would share this useful information . Having been treated by my local Haemotology Department since early this year upon my ET Jak2 positive diagnosis I have done lots of reading on this valuable website we have. ET was discovered from my sports injury NOT any symptoms. Hydroxy
Exeter21
in
MPN Voice
2 years ago
headaches & Peg Interferon
on my 4 th dose of Peg Interferon. First 2 we’re ok headaches on day after injection. But after 3 & 4th injections I have constant headache & dizziness. I speak to consultant this week. I hoped for improvement by now but headaches continue. So annoying as Hydroxy was terrible effects also
on my 4 th dose of Peg Interferon. First 2 we’re ok headaches on day after injection. But after 3 & 4th injections I have constant headache & dizziness. I speak to consultant this week. I hoped for improvement by now but headaches continue. So annoying as Hydroxy was terrible effects also
Exeter21
in
MPN Voice
2 years ago
ET Jak2 Tet2
Hello, Recently diagnosed and Specialist wants to follow for a few years till I hit 60 and then begin Besremi or Interferon (Ropeg). Hunter5582 please weigh in. Last time my platelets WNL was 2012. Slow climb to above 800. Does anyone have specifically ET with Jak2 and Tet2. My specialist skimmed
Hello, Recently diagnosed and Specialist wants to follow for a few years till I hit 60 and then begin Besremi or Interferon (Ropeg). Hunter5582 please weigh in. Last time my platelets WNL was 2012. Slow climb to above 800. Does anyone have specifically ET with Jak2 and Tet2. My specialist skimmed
DiveGoddess
in
MPN Voice
2 years ago
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new to interferon Hunter can you help ?
When switching to interferon injections, should you still be on 3 a day hydroxy at same time ?
When switching to interferon injections, should you still be on 3 a day hydroxy at same time ?
Hidden
in
MPN Voice
2 years ago
Interferon beta 1b
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple
interferon
beta
1b
soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple
interferon
beta
1b
soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Jesusensenadamexico
in
My MSAA Community
2 years ago
Anagrelid to Interferon and Hashimoto.
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
Anag
in
MPN Voice
2 years ago
Living with ET+CALR and new to the group…Hello Everyone
Currently on a high dose of Hydro (3 pills a day) and trying to keep consistent numbers. My platelets spiked up to the millions last month because we have been adjusting my dosage and it backfired. I’m currently in normal range but the high dose is daunting, especially because I’m only 38 years old.
Currently on a high dose of Hydro (3 pills a day) and trying to keep consistent numbers. My platelets spiked up to the millions last month because we have been adjusting my dosage and it backfired. I’m currently in normal range but the high dose is daunting, especially because I’m only 38 years old.
Zeppelin11
in
MPN Voice
2 years ago
Peg Interferon or HU
Hi everyone! Does anyone know if Interferon or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While interferon is safe for pregnancy, i am assuming it is the safest meds of all. I have been on HU for 3 months and it gave me thick
Hi everyone! Does anyone know if Interferon or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While interferon is safe for pregnancy, i am assuming it is the safest meds of all. I have been on HU for 3 months and it gave me thick
Timtams
in
MPN Voice
2 years ago
2nd dose of interferon
l have awful flu like symptoms, headache and migraine a week following my first Pegasys injection also ceased Hydroxycarbamide on the same day. 2nd injection this Thursday. These symptoms are not uncommon apparently for Pegasys interferon but apart from paracetamol any other suggestions would be most
l have awful flu like symptoms, headache and migraine a week following my first Pegasys injection also ceased Hydroxycarbamide on the same day. 2nd injection this Thursday. These symptoms are not uncommon apparently for Pegasys interferon but apart from paracetamol any other suggestions would be most
Hidden
in
MPN Voice
2 years ago
Update of Mithradite Trial
I am now one year into the Mithradite trial and thought a good time for update. The Mithradite trial is a randomised trial of Ruxolitnib against best available therapy which is either Hydrea or Interferon. My background is diagnosed with ET three years at age 67 and prescribed Hydrea. The Hydrea
I am now one year into the Mithradite trial and thought a good time for update. The Mithradite trial is a randomised trial of Ruxolitnib against best available therapy which is either Hydrea or Interferon. My background is diagnosed with ET three years at age 67 and prescribed Hydrea. The Hydrea
JP1952
in
MPN Voice
2 years ago
Travel with Interferon
I have read posts regarding travel and transporting my drug whilst flying. I'm travelling from Heathrow to Sydney in December with a stopover in Malaysia. So far through my research I have found out I must not take the phials out of the box they come in and find some sort of container that with keep
I have read posts regarding travel and transporting my drug whilst flying. I'm travelling from Heathrow to Sydney in December with a stopover in Malaysia. So far through my research I have found out I must not take the phials out of the box they come in and find some sort of container that with keep
Abrams
in
MPN Voice
2 years ago
Interferon and thyroid
Is anyone on interferon who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying interferon as I have an underactive thyroid and am on thyroxine. I am aware that interferon can affect the thyroid and they have to monitor it but if it is already
Is anyone on interferon who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying interferon as I have an underactive thyroid and am on thyroxine. I am aware that interferon can affect the thyroid and they have to monitor it but if it is already
jodary
in
MPN Voice
2 years ago
Anagrelide
I know we all react very differently to meds can I ask those who take Anagrelide for et how they have found it. I can't take interferon currently on hu.
I know we all react very differently to meds can I ask those who take Anagrelide for et how they have found it. I can't take interferon currently on hu.
ciye
in
MPN Voice
2 years ago
pegasys interferon injections & flu jab
Hello there, Just need some advice. I've been taking my interferon injections every Tues eve for a few months & am due a flu jab. I would imagine it's not good to have it same day as my injections.So should leave it for a few days?... ie:interferon injections Tue evening & flu jab on a friday?
Hello there, Just need some advice. I've been taking my interferon injections every Tues eve for a few months & am due a flu jab. I would imagine it's not good to have it same day as my injections.So should leave it for a few days?... ie:interferon injections Tue evening & flu jab on a friday?
keviekev
in
MPN Voice
2 years ago
Recent TSH Results
Hi All, It's been a while since I posted anything about myself. Since my last post maybe a year ago, my thyroid blood results have been very stable since deciding NOT to take the radioiodine option, I was offered. My latest results after being on 5mg carbimazole for 16 months has seen my: TSH rise
Hi All, It's been a while since I posted anything about myself. Since my last post maybe a year ago, my thyroid blood results have been very stable since deciding NOT to take the radioiodine option, I was offered. My latest results after being on 5mg carbimazole for 16 months has seen my: TSH rise
LadyAbash
in
Thyroid UK
2 years ago
Interferon transportation on flights
We are hoping to fly to Thailand next year, just been in contact with the airline regarding keeping the interferon refrigerated. They said no, doe to Health and safety. Any suggestions? Will a cool bag be good enough to keep cool for possibly up to 17 hours? Is there a small usb cool bag?
We are hoping to fly to Thailand next year, just been in contact with the airline regarding keeping the interferon refrigerated. They said no, doe to Health and safety. Any suggestions? Will a cool bag be good enough to keep cool for possibly up to 17 hours? Is there a small usb cool bag?
shiftzz
in
MPN Voice
2 years ago
Make claim for PIP Allowance
I have polycythemia vera have since 2019. I want to claim PIP not sure i am entitled to it. My family telling me i should be applying for this because of my condtion. I make sure my consultant knows i am feeling ok with the lowest dosage interferon every 2 weeks. I dont want to loose my treatment saying
I have polycythemia vera have since 2019. I want to claim PIP not sure i am entitled to it. My family telling me i should be applying for this because of my condtion. I make sure my consultant knows i am feeling ok with the lowest dosage interferon every 2 weeks. I dont want to loose my treatment saying
Taz777
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
pain and numbness in finger tips
hi I wrote a couple of weeks ago re starting interferon. Thank you everyone for your helpful words. Will be starting end of October. I have another question. Over the last year I’ve been getting an intense pain and heat in my thumb , index and middle fingers preceded by numbness and/or tingling.
hi I wrote a couple of weeks ago re starting interferon. Thank you everyone for your helpful words. Will be starting end of October. I have another question. Over the last year I’ve been getting an intense pain and heat in my thumb , index and middle fingers preceded by numbness and/or tingling.
Sanga
in
MPN Voice
2 years ago
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