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Interferon beta-1b
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Why do we use IFN-α vs IFN-β? Might IFN-β be preferred?
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
EPguy
in
MPN Voice
2 years ago
dizzy, ET , aspirin and Peg interferon
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Sprat19
in
MPN Voice
2 years ago
would it matter if
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my interferon pegasys injections was delayed by a day or so? have a great Christmas everyone….
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my interferon pegasys injections was delayed by a day or so? have a great Christmas everyone….
Yvette49
in
MPN Voice
2 years ago
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nausea feeling but in throat
just wanted to ask, over the last couple of days I have a ‘sicky feeling’ but in my throat. It’s like any food I have eaten has not gone down and is stuck in my throat as though you are going to be sick from it…. Not sure if it’s in relation to any other medication I take but not started any new meds
just wanted to ask, over the last couple of days I have a ‘sicky feeling’ but in my throat. It’s like any food I have eaten has not gone down and is stuck in my throat as though you are going to be sick from it…. Not sure if it’s in relation to any other medication I take but not started any new meds
Grendall
in
MPN Voice
2 years ago
Itchy patches
Since jabbing myself with Pegasys interferon alfa2a for CALR +ET diagnosis, I've noticed the appearance of several small itchy patches on my abdomen and back. The ones on the abdomen are not on the site of the jab. My GP prescribed the application of a moderate steroid cream and one other non-steroid
Since jabbing myself with Pegasys interferon alfa2a for CALR +ET diagnosis, I've noticed the appearance of several small itchy patches on my abdomen and back. The ones on the abdomen are not on the site of the jab. My GP prescribed the application of a moderate steroid cream and one other non-steroid
gilded
in
MPN Voice
2 years ago
Update 7.1 - Very Good News
Very good news from the Quantitative Analysis regarding JAK2v617f Variant Allele Frequency.
JAK2 V617F Mutation Analysis by Real-time PCR
INTERPRETATION: T
he Quantitative Real-Time PCR assay is positive for V617F JAK2 mutation and mutant V617F JAK2 represents
9% of total JAK2 alleles
Very good news from the Quantitative Analysis regarding JAK2v617f Variant Allele Frequency.
JAK2 V617F Mutation Analysis by Real-time PCR
INTERPRETATION: T
he Quantitative Real-Time PCR assay is positive for V617F JAK2 mutation and mutant V617F JAK2 represents
9% of total JAK2 alleles
hunter5582
in
MPN Voice
2 years ago
Switching to Interferon
Did my labs this week and my platelets were in the the 900,000's. Trying to factor in why they continue to go up but I have a feeling the Hydrea isn't doing the job anymore, especially with me taking 3 pills a day. I fear the long term side effects of the Hydrea and because if this community I'm no longer
Did my labs this week and my platelets were in the the 900,000's. Trying to factor in why they continue to go up but I have a feeling the Hydrea isn't doing the job anymore, especially with me taking 3 pills a day. I fear the long term side effects of the Hydrea and because if this community I'm no longer
Zeppelin11
in
MPN Voice
2 years ago
raised potassium levels
I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500 mg 3 times a week. The last 3 blood tests show my potassium levels creeping up above normal. No changes in my diet. I am on my third blood
I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500 mg 3 times a week. The last 3 blood tests show my potassium levels creeping up above normal. No changes in my diet. I am on my third blood
Grendall
in
MPN Voice
2 years ago
Rising platelet count whilst on hydroxy
Hi there, please could I ask for some advise on my situation. I have been on hydroxycarbomide for a few years . It initially brought my platelet count right down, but it also reduced my neutrophils and I have had neutropenia for at least 2 years. They have been experimentally reducing my HU each visit
Hi there, please could I ask for some advise on my situation. I have been on hydroxycarbomide for a few years . It initially brought my platelet count right down, but it also reduced my neutrophils and I have had neutropenia for at least 2 years. They have been experimentally reducing my HU each visit
UKZA
in
MPN Voice
2 years ago
ET and lumps?
hi, this is my first time posting and new to this site. I was diagnosed with ET in May 2020 after finding my platelets were high whilst pregnant with my second daughter. I was just put on aspirin daily until my platelets shot up to 1500 and stayed that high for a few week/a month in February/March of
hi, this is my first time posting and new to this site. I was diagnosed with ET in May 2020 after finding my platelets were high whilst pregnant with my second daughter. I was just put on aspirin daily until my platelets shot up to 1500 and stayed that high for a few week/a month in February/March of
Lena1992
in
MPN Voice
2 years ago
Interesting Presentation by Dr Silver re long term survival on Interferons
https://www.vjhemonc.com/video/interferon-in-polycythemia-vera-long-term-experience-from-a-single-center/ He says he would take Colchicine as well as interferons! I’ll ask my Hems next appointment, I have JAK2 and TET2 (which reduces Pegasys efficacy) so always on the look out for something that might
https://www.vjhemonc.com/video/interferon-in-polycythemia-vera-long-term-experience-from-a-single-center/ He says he would take Colchicine as well as interferons! I’ll ask my Hems next appointment, I have JAK2 and TET2 (which reduces Pegasys efficacy) so always on the look out for something that might
Paul123456
in
MPN Voice
2 years ago
Interferon side effects of
HelloI recently stopped taking Hydroxy after 2 years and changed to Pegusus Interferon and in many ways feel better. I had my first dose of 30 micrograms on the 13th of October and every 2 weeks since the. However l have appalling headache/Migraine and wonder if there are others with this side effect
HelloI recently stopped taking Hydroxy after 2 years and changed to Pegusus Interferon and in many ways feel better. I had my first dose of 30 micrograms on the 13th of October and every 2 weeks since the. However l have appalling headache/Migraine and wonder if there are others with this side effect
Hidden
in
MPN Voice
2 years ago
CATCH-UP ET JAK2+
Hello my friends. It’s a while since I wrote about my various problems and said aid report back. My main problem was pain under ribs in right abdomen, which caused bad nausea and ache in pelvic area. First Ultrasound scan did not reveal anything untoward, apart from prominence in the collecting system
Hello my friends. It’s a while since I wrote about my various problems and said aid report back. My main problem was pain under ribs in right abdomen, which caused bad nausea and ache in pelvic area. First Ultrasound scan did not reveal anything untoward, apart from prominence in the collecting system
azaelea
in
MPN Voice
2 years ago
Fascinating Results different drugs
My journey on different drugs shows the reaction they can have in short periods. I am ET Jak2 positive diagnosed March 2022. Took Hydroxy 500mg daily 5 days week .My body reacted very badly to it but platelet’s of 590 dropped to 420 in 6 weeks. Off everything from May until September stuck to Mediterranean
My journey on different drugs shows the reaction they can have in short periods. I am ET Jak2 positive diagnosed March 2022. Took Hydroxy 500mg daily 5 days week .My body reacted very badly to it but platelet’s of 590 dropped to 420 in 6 weeks. Off everything from May until September stuck to Mediterranean
Exeter21
in
MPN Voice
2 years ago
PPMS...
~No l dont have this, but we never do posts on PPMS. (I have been told🤣)~ ~Please Let Me Know What Your Thoughts Are!~ Per... https://my.clevelandclinic.org/health/diseases/14202-primary-progressive-multiple-sclerosis-ppms What is primary progressive multiple sclerosis? Multiple sclerosis (MS)
~No l dont have this, but we never do posts on PPMS. (I have been told🤣)~ ~Please Let Me Know What Your Thoughts Are!~ Per... https://my.clevelandclinic.org/health/diseases/14202-primary-progressive-multiple-sclerosis-ppms What is primary progressive multiple sclerosis? Multiple sclerosis (MS)
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
Waste
I have just over £900 worth of interferon in my fridge I no longer take and it will have to be destroyed. It was delivered in a cool bag and went straight in fridge but rules prevent hospitals reusing it. I recently checked medication in chemist, which I couldn't take as I hadn't left chemist it could
I have just over £900 worth of interferon in my fridge I no longer take and it will have to be destroyed. It was delivered in a cool bag and went straight in fridge but rules prevent hospitals reusing it. I recently checked medication in chemist, which I couldn't take as I hadn't left chemist it could
ciye
in
MPN Voice
2 years ago
New here - help needed
Back story, I have a chronic blood disease which is now controlled well with interferon. I should be feeling good but I'm not (one of the side effects of interferon can be that it has an effect on the thyroid). The blood disease and thyroid problems seem to have a lot of similar symptoms I'm especially
Back story, I have a chronic blood disease which is now controlled well with interferon. I should be feeling good but I'm not (one of the side effects of interferon can be that it has an effect on the thyroid). The blood disease and thyroid problems seem to have a lot of similar symptoms I'm especially
Izzys-Mum
in
Thyroid UK
2 years ago
Hello Hello Interferon users
Hi gave myself a third Pegusus injection last night all whent well sort of. Although the first 2 syringe needles appeared very fine, last night's needle looked larger in diameter and left a puncture mark. Should l be asking the pharmacy about needle size or perhaps it's just me lm still very new
Hi gave myself a third Pegusus injection last night all whent well sort of. Although the first 2 syringe needles appeared very fine, last night's needle looked larger in diameter and left a puncture mark. Should l be asking the pharmacy about needle size or perhaps it's just me lm still very new
Hidden
in
MPN Voice
2 years ago
Gout in back?
Hi all, I have seen a few posts recently regarding Gout. My query is a recent CT scan to check for kidney stones showed Degenerative disc disease as I have had 3 recent episodes (still ongoing) with severe nerve pain generating from my spine in my lower back. I have also read someone had said it could
Hi all, I have seen a few posts recently regarding Gout. My query is a recent CT scan to check for kidney stones showed Degenerative disc disease as I have had 3 recent episodes (still ongoing) with severe nerve pain generating from my spine in my lower back. I have also read someone had said it could
Grendall
in
MPN Voice
2 years ago
Checks up appointments
Hi guys Haven't been om a while has had quite a few appointments and still git few on the way ,I mentioned symptoms to my haematologist in August she saw me face to face explain to me now am in the medium risk group has age (40-60 years old ) and has platelets are rising up and not going down not alot
Hi guys Haven't been om a while has had quite a few appointments and still git few on the way ,I mentioned symptoms to my haematologist in August she saw me face to face explain to me now am in the medium risk group has age (40-60 years old ) and has platelets are rising up and not going down not alot
Jody00
in
MPN Voice
2 years ago
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