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Interferon beta-1a
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Best treatment for Post PV/MF ?
I'm wondering Which medication is more effective for post pv/mf. Ruxolitinib or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with
I'm wondering Which medication is more effective for post pv/mf. Ruxolitinib or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with
MCW22
in
MPN Voice
5 months ago
Allele Burden
Quick update My interferon is currently 135 per week, its been extended from 7 to 10 days, numbers are all ok HCT 0.455, not concerned. My Allele Burden results Jan 2021 2.04% March 2023 1.62% Slightly elevated LFT ALT 54 down from 60 down from 66 GGT 64 down from 94 eGFR 89 Ferritin 34
Quick update My interferon is currently 135 per week, its been extended from 7 to 10 days, numbers are all ok HCT 0.455, not concerned. My Allele Burden results Jan 2021 2.04% March 2023 1.62% Slightly elevated LFT ALT 54 down from 60 down from 66 GGT 64 down from 94 eGFR 89 Ferritin 34
shiftzz
in
MPN Voice
5 months ago
Splenomegaly and Interferon
Hi! Did anyone who has been treated with Interferon for PV or MF and got their allele burden down see any reduction in splenomegaly? And if so, to what extent?
Hi! Did anyone who has been treated with Interferon for PV or MF and got their allele burden down see any reduction in splenomegaly? And if so, to what extent?
Dovakin
in
MPN Voice
5 months ago
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Interferon reaction
Hi all,I've recently joined the group and already have found it a great source of information & reassuring messages. I started interferon back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works? The nurses
Hi all,I've recently joined the group and already have found it a great source of information & reassuring messages. I started interferon back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works? The nurses
RuaSaoirse
in
MPN Voice
5 months ago
starting hydroxy as pathway to Rux
hello I’m 58 and diagnosed with PV 8 years ago which was managed up to October 22 with aspirin and venesection. My platelets and white blood cells started shifting so my haem consultant put me on interferon which controlled my blood beautifully. it took me a couple of months of flu symptoms and settled
hello I’m 58 and diagnosed with PV 8 years ago which was managed up to October 22 with aspirin and venesection. My platelets and white blood cells started shifting so my haem consultant put me on interferon which controlled my blood beautifully. it took me a couple of months of flu symptoms and settled
Sanga
in
MPN Voice
5 months ago
Cataract surgery?
Has anyone had any cataract surgery while taking Pegasys? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Has anyone had any cataract surgery while taking Pegasys? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
5 months ago
Interferon dose.
I started peg interferon on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week. I was feeling fine on 45 but I'm experiencing a
I started peg interferon on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week. I was feeling fine on 45 but I'm experiencing a
conno61
in
MPN Voice
6 months ago
PV and hypertension
Hello lovely forum members. I hope you are all as well as can be and are staying safe in all the crazy weather currently blowing around the world! With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with polycythaemia
Hello lovely forum members. I hope you are all as well as can be and are staying safe in all the crazy weather currently blowing around the world! With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with polycythaemia
Skyehope
in
MPN Voice
6 months ago
Low hemoglobin but high erythrocytes count
Hello 😊 I would like to ask if anyone here has experience with such a development of the disease. I have polycythemia vera and was on interferon for almost a year but had to stop it due to mental health side effects. Since then, it's been 2 years, I only take asprin 100mg daily. According to the
Hello 😊 I would like to ask if anyone here has experience with such a development of the disease. I have polycythemia vera and was on interferon for almost a year but had to stop it due to mental health side effects. Since then, it's been 2 years, I only take asprin 100mg daily. According to the
DariBee
in
MPN Voice
6 months ago
changed from hydroxyurea to anargalide
Hi everyone, My platelets were not getting reduced with hydroxyurea, so today dr put me on anargalide. Interferon is not available in my country (Malaysia) so I do have only two options. Any insight on ur experience with anargalide?. Thanks
Hi everyone, My platelets were not getting reduced with hydroxyurea, so today dr put me on anargalide. Interferon is not available in my country (Malaysia) so I do have only two options. Any insight on ur experience with anargalide?. Thanks
mustabshra
in
MPN Voice
6 months ago
Peg Interferon
Hello everyone.I check into this site every day because your input has helped me on my journey with Jak2 pos. I have been on hydroxycarmide 500mg daily for 4yrs, along with clopidogrel, side effects, hair thinning, along with skin, nails and 20lbs weight gain. Platelets have remained between 450- 550
Hello everyone.I check into this site every day because your input has helped me on my journey with Jak2 pos. I have been on hydroxycarmide 500mg daily for 4yrs, along with clopidogrel, side effects, hair thinning, along with skin, nails and 20lbs weight gain. Platelets have remained between 450- 550
Charliemills
in
MPN Voice
6 months ago
ET, platelets and stroke risk
Hello all from another new member. I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-interferon. I seem to have responded well to the interferon, as my platelets
Hello all from another new member. I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-interferon. I seem to have responded well to the interferon, as my platelets
Ginevra
in
MPN Voice
6 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
6 months ago
changing medication
hi Wondering what people’s thoughts or experiences are on being on rux? I have PV diagnosed 8 years ago and all good with venesection and aspirin only. Until my platelets and white cells started rising. I’ve been on interferon 95mcg for a year but with horrid side effects, however kept my blood
hi Wondering what people’s thoughts or experiences are on being on rux? I have PV diagnosed 8 years ago and all good with venesection and aspirin only. Until my platelets and white cells started rising. I’ve been on interferon 95mcg for a year but with horrid side effects, however kept my blood
Sanga
in
MPN Voice
6 months ago
Monday MRI
just wanted some good vibes from all my MPN warriors out there. Monday I have a MRI to see what is happening with my MS. Prayers Besremi has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to
just wanted some good vibes from all my MPN warriors out there. Monday I have a MRI to see what is happening with my MS. Prayers Besremi has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to
KLCTJC
in
MPN Voice
6 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
7 months ago
Hyperthyroid update
Happy New Year, everyone! Since my last post, I received an appointment with my Endo department for this coming Thursday 11th. Since being put back on carbimazole and propanolol, my heart rate in particular is back to normal. I checked with the Endo department whether I needed a blood test beforehand
Happy New Year, everyone! Since my last post, I received an appointment with my Endo department for this coming Thursday 11th. Since being put back on carbimazole and propanolol, my heart rate in particular is back to normal. I checked with the Endo department whether I needed a blood test beforehand
LadyAbash
in
Thyroid UK
7 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
7 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
7 months ago
interferon
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
jodary
in
MPN Voice
7 months ago
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