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Interferon alfa-2a
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My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
5 months ago
changing medication
hi Wondering what people’s thoughts or experiences are on being on rux? I have PV diagnosed 8 years ago and all good with venesection and aspirin only. Until my platelets and white cells started rising. I’ve been on interferon 95mcg for a year but with horrid side effects, however kept my blood
hi Wondering what people’s thoughts or experiences are on being on rux? I have PV diagnosed 8 years ago and all good with venesection and aspirin only. Until my platelets and white cells started rising. I’ve been on interferon 95mcg for a year but with horrid side effects, however kept my blood
Sanga
in
MPN Voice
6 months ago
Monday MRI
just wanted some good vibes from all my MPN warriors out there. Monday I have a MRI to see what is happening with my MS. Prayers Besremi has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to
just wanted some good vibes from all my MPN warriors out there. Monday I have a MRI to see what is happening with my MS. Prayers Besremi has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to
KLCTJC
in
MPN Voice
6 months ago
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Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
6 months ago
Hyperthyroid update
Happy New Year, everyone! Since my last post, I received an appointment with my Endo department for this coming Thursday 11th. Since being put back on carbimazole and propanolol, my heart rate in particular is back to normal. I checked with the Endo department whether I needed a blood test beforehand
Happy New Year, everyone! Since my last post, I received an appointment with my Endo department for this coming Thursday 11th. Since being put back on carbimazole and propanolol, my heart rate in particular is back to normal. I checked with the Endo department whether I needed a blood test beforehand
LadyAbash
in
Thyroid UK
6 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
6 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
6 months ago
interferon
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
jodary
in
MPN Voice
6 months ago
Pegasus - how long to work
Happy Christmas to everyone in this amazing group. For those taking it, I just wondered what your experience was when first taking Pegasus Interferon. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started interferon injections). Red and white
Happy Christmas to everyone in this amazing group. For those taking it, I just wondered what your experience was when first taking Pegasus Interferon. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started interferon injections). Red and white
Fivecatsandcounting
in
MPN Voice
6 months ago
The time has come
I start taking peg interferon early January. I've not got the greatest haemotologist in the world and he's simply told me to pick up the prescription from the hospital pharmacy and go to 2a, whatever that is, and they will teach me how to administer it. I know it's been asked before but what's the best
I start taking peg interferon early January. I've not got the greatest haemotologist in the world and he's simply told me to pick up the prescription from the hospital pharmacy and go to 2a, whatever that is, and they will teach me how to administer it. I know it's been asked before but what's the best
conno61
in
MPN Voice
6 months ago
Pegasys starting dose for PMF
Hello everyone! I have primary myelofibrosis since February 2021 Doctor put me on Hydroxyurea because of elevated platelets(1700). Now, because of my age(41 yrs old) want to put me on Pegasys but with a starting dose of 135 mcg/week and 500 mg Hydrea/day. I have read that must begin with a lower dose
Hello everyone! I have primary myelofibrosis since February 2021 Doctor put me on Hydroxyurea because of elevated platelets(1700). Now, because of my age(41 yrs old) want to put me on Pegasys but with a starting dose of 135 mcg/week and 500 mg Hydrea/day. I have read that must begin with a lower dose
Goldie41
in
MPN Voice
6 months ago
Probiotics.
Wishing everyone on this fantastic supportive. Group a Very Happy Christmas and New Year. Can anyone tell me if I can take probiotics with interferon. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
Wishing everyone on this fantastic supportive. Group a Very Happy Christmas and New Year. Can anyone tell me if I can take probiotics with interferon. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
lindyloulou
in
MPN Voice
7 months ago
Advice about Hydroxycarbamide/ Anagrelide please
Hi everyone I've not posted for a while . I was diagnosed with PV in December 2022 and I have been taking peg interferon since February this year. At my last review on the 8th December my HB 15.8 HC 0.523 was still 0.523 white cell 8.1 MCV 88 platelets 300 neutrophils 4.67 . I've been for another
Hi everyone I've not posted for a while . I was diagnosed with PV in December 2022 and I have been taking peg interferon since February this year. At my last review on the 8th December my HB 15.8 HC 0.523 was still 0.523 white cell 8.1 MCV 88 platelets 300 neutrophils 4.67 . I've been for another
Blonde25
in
MPN Voice
7 months ago
Interferon
ET / JAK2pos diagnosed September 2023 age 66yrs. I’m collecting my Interferon therapy today after seeing my Specialist in Oxford (UK) yesterday. Recent platelet count is 506 and my BMB is showing no fibrosis. I’m feeling a little apprehensive but hopefully won’t have too many side effects. I also
ET / JAK2pos diagnosed September 2023 age 66yrs. I’m collecting my Interferon therapy today after seeing my Specialist in Oxford (UK) yesterday. Recent platelet count is 506 and my BMB is showing no fibrosis. I’m feeling a little apprehensive but hopefully won’t have too many side effects. I also
Carol0925
in
MPN Voice
7 months ago
Help! anagrelide
Hi mpners,A bit of help needed, a balanced opinion on anagrelide please. I've an appointment tomorrow to decide on next treatment and there's lots of info on interferon but not for anagrelide. I've got AT jak2 plus seronegative arthritis and spinal nerve damage,so I take another cytoxic drug which reduces
Hi mpners,A bit of help needed, a balanced opinion on anagrelide please. I've an appointment tomorrow to decide on next treatment and there's lots of info on interferon but not for anagrelide. I've got AT jak2 plus seronegative arthritis and spinal nerve damage,so I take another cytoxic drug which reduces
Spanelmad
in
MPN Voice
7 months ago
Good News: Pegasys finally working! Bad News: Pulmonary embolus!
First the good news: After 7 months of gradually increasing dosages, the Pegasys finally kicked in, as members of this forum told me it would. For months, both my platelets and Hct slowly rose, and it wasn’t until I got to 180mcg/week that the numbers started coming down. I’ve been on the max dose
First the good news: After 7 months of gradually increasing dosages, the Pegasys finally kicked in, as members of this forum told me it would. For months, both my platelets and Hct slowly rose, and it wasn’t until I got to 180mcg/week that the numbers started coming down. I’ve been on the max dose
Minify
in
MPN Voice
7 months ago
Individualized Dosing of Ropeginterferon Alfa-2b Ensures Optimal Response in Patients with Low-Risk Polycythemia Vera (PV)
Conclusions: High long-term response rates (80.4% at 24 months; 73.2% at 72 months) were achieved with ropeginterferon alfa-2b treatment in the low-risk PV population when the dose was optimized on an individual basis. No specific baseline characteristics among low-risk PV patients appear to be associated
Conclusions: High long-term response rates (80.4% at 24 months; 73.2% at 72 months) were achieved with ropeginterferon alfa-2b treatment in the low-risk PV population when the dose was optimized on an individual basis. No specific baseline characteristics among low-risk PV patients appear to be associated
Manouche
in
MPN Voice
7 months ago
PV treatment follow-Up
I previous wrote to the community a few months ago. I explained that I am 57 year old male in excellent condition taking no medications except for 81 mg aspirin daily and going for phlebotomy every 3 to 4 months for PV JAK2 Axon 12. I am asymptomatic and feel great. Had genetic blood work almost 3
I previous wrote to the community a few months ago. I explained that I am 57 year old male in excellent condition taking no medications except for 81 mg aspirin daily and going for phlebotomy every 3 to 4 months for PV JAK2 Axon 12. I am asymptomatic and feel great. Had genetic blood work almost 3
FlTodd
in
MPN Voice
7 months ago
Besremi and the heart
I restarted a moderate and steady 100mcg dose of Besremi this fall, after being off it all summer. (Most recent test showed my platelets continuing down but HCT and liver enzymes a bit up.) The day after my last shot I had a strange episode while cooking dinner. For 5 or 10 minutes I felt a pounding,
I restarted a moderate and steady 100mcg dose of Besremi this fall, after being off it all summer. (Most recent test showed my platelets continuing down but HCT and liver enzymes a bit up.) The day after my last shot I had a strange episode while cooking dinner. For 5 or 10 minutes I felt a pounding,
Ovidess
in
MPN Voice
7 months ago
painkillers for toothache
I have ET and am on Pegasys Interferon. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ? Thank you for reading this
I have ET and am on Pegasys Interferon. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ? Thank you for reading this
Abrams
in
MPN Voice
7 months ago
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