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Interferon alfa-2a
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9 months on interferon
Hello lovely MPN folk in my laptop! Yesterday I took my 40th injection of interferon and I had the results of my latest blood test today. Since starting, my dose was increased gradually from 45 to 180mcg a week and I've been on the 180mcg since the start of February. My blood counts were showing
Hello lovely MPN folk in my laptop! Yesterday I took my 40th injection of interferon and I had the results of my latest blood test today. Since starting, my dose was increased gradually from 45 to 180mcg a week and I've been on the 180mcg since the start of February. My blood counts were showing
Skyehope
in
MPN Voice
4 months ago
Mithridate trial
Hi everyone I have PV and diagnosed in Dec 2022. I started peg interferon in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing
Hi everyone I have PV and diagnosed in Dec 2022. I started peg interferon in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing
Blonde25
in
MPN Voice
4 months ago
Depression and peg interferon
hi all, does anyone with a history of depression have experience of using peg interferon? I suffer from what you might call “mild” depression but it’s controlled very effectively these days with citalopram to the extent where I feel fine. Just wondered if anyone in a similar boat has started on the
hi all, does anyone with a history of depression have experience of using peg interferon? I suffer from what you might call “mild” depression but it’s controlled very effectively these days with citalopram to the extent where I feel fine. Just wondered if anyone in a similar boat has started on the
Timjonze
in
MPN Voice
4 months ago
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Interferon impact on fertility
Hi everyone, Its been awhile since I've been on here . I would welcome your advice pls. I was diagnosed with Triple Negative-Essential Thrombesemia last year. We are on our fertility journey and was wondering if anyone had any advice on the following questions: 1. Does interferon have any side effects
Hi everyone, Its been awhile since I've been on here . I would welcome your advice pls. I was diagnosed with Triple Negative-Essential Thrombesemia last year. We are on our fertility journey and was wondering if anyone had any advice on the following questions: 1. Does interferon have any side effects
Biscuitlove
in
MPN Voice
4 months ago
Starting dose for pegasys?
Im a 37 year old female dg. with ET JAK2 . My illness is showing symptoms of masked PV and we are now starting pegasys interferon, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues. I have always had very thin hair
Im a 37 year old female dg. with ET JAK2 . My illness is showing symptoms of masked PV and we are now starting pegasys interferon, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues. I have always had very thin hair
Ninete
in
MPN Voice
4 months ago
Effective Management of Polycythemia Vera With Ropeginterferon Alfa-2b Treatment
Discussion; The results in our study demonstrate that the new dosing regimen of 250-350-500 µg of ropeginterferon alfa-2b is well-tolerated and highly efficacious in patients suffering from PV. This dosing regimen was associated with a rapid achievement of CHR without the need for phlebotomy or erythrocyte
Discussion; The results in our study demonstrate that the new dosing regimen of 250-350-500 µg of ropeginterferon alfa-2b is well-tolerated and highly efficacious in patients suffering from PV. This dosing regimen was associated with a rapid achievement of CHR without the need for phlebotomy or erythrocyte
Manouche
in
MPN Voice
4 months ago
ET + Anagrelide
Is anyone taking Angrelide and dealing with side effects? I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of Interferon. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats
Is anyone taking Angrelide and dealing with side effects? I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of Interferon. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats
Zeppelin11
in
MPN Voice
4 months ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
4 months ago
Treatment Change, question
Hi Everyone, I'm enjoying all of the posts and replies they are really informative. I'm in the process in changing my medication from hydroxycarbamide to Pegasys. I'm currently on both whilst still taking the hydroxycarbamide I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm
Hi Everyone, I'm enjoying all of the posts and replies they are really informative. I'm in the process in changing my medication from hydroxycarbamide to Pegasys. I'm currently on both whilst still taking the hydroxycarbamide I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm
Swim360
in
MPN Voice
4 months ago
Still undecided about Inteferon
As my clinic appointment approaches I am getting more and more undecided about Interferon. I am currently on 500mg Hydroxycarbomide daily and platelets stay in the late 700s to 800s . My haematologist says we need to get them under control and as I have declined an increase in HU is keen to get me to
As my clinic appointment approaches I am getting more and more undecided about Interferon. I am currently on 500mg Hydroxycarbomide daily and platelets stay in the late 700s to 800s . My haematologist says we need to get them under control and as I have declined an increase in HU is keen to get me to
jodary
in
MPN Voice
4 months ago
Anagrelide success 😃
hi everyone, just wanted to share some positive news this weekend 😃, I have ET with MPL mutation. After persisting with weekly peg interferon alpha injections for 12 months at the highest dose with minimal platelet reduction (1400 - 1180), my count has been over 1000 for 2 years. I have successfully
hi everyone, just wanted to share some positive news this weekend 😃, I have ET with MPL mutation. After persisting with weekly peg interferon alpha injections for 12 months at the highest dose with minimal platelet reduction (1400 - 1180), my count has been over 1000 for 2 years. I have successfully
Maxamber
in
MPN Voice
4 months ago
Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
5 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
5 months ago
PV fatigue
My first time posting. I’m seeking advice, tips and help understanding my symptoms. I have PV +Jak2. I have just started Pegasys interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope
My first time posting. I’m seeking advice, tips and help understanding my symptoms. I have PV +Jak2. I have just started Pegasys interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope
CherokeeBlue
in
MPN Voice
5 months ago
Pain in heels.. Interferon related or not?
Hi, just wondering if anyone has had painful heels especially when walking while being on Interferon? I’ve been on interferon for around 9 months and every so often I struggle to walk due to the pain, it does ease off and it happens randomly. I didn’t have this before taking interferon. I have heard
Hi, just wondering if anyone has had painful heels especially when walking while being on Interferon? I’ve been on interferon for around 9 months and every so often I struggle to walk due to the pain, it does ease off and it happens randomly. I didn’t have this before taking interferon. I have heard
beckyluck
in
MPN Voice
5 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
5 months ago
Peg and rash
Hi,I dx 2011 with Et jak2. Treated with 500mg HU and aspirin until experiencing Amouris fugax (TIA). So then clopidogrel. Fatigue has always been my worst symptom. I changed to peg interferon in Oct 23 dose 45mg every fortnight. I have very dry skin and a rash on my arms,legs, chest and we're iv scratched
Hi,I dx 2011 with Et jak2. Treated with 500mg HU and aspirin until experiencing Amouris fugax (TIA). So then clopidogrel. Fatigue has always been my worst symptom. I changed to peg interferon in Oct 23 dose 45mg every fortnight. I have very dry skin and a rash on my arms,legs, chest and we're iv scratched
gbeam
in
MPN Voice
5 months ago
Interferon alpha
I got diagnosed with ET Jak2 positive back in November and 42 years old. I've had my latest blood results back and my platlets are just under 600. Having read a number of posts, this seems quite low compared to others. My doctor has suggested putting me on Interferon Alpha and sent me the leaflet guide
I got diagnosed with ET Jak2 positive back in November and 42 years old. I've had my latest blood results back and my platlets are just under 600. Having read a number of posts, this seems quite low compared to others. My doctor has suggested putting me on Interferon Alpha and sent me the leaflet guide
Carlalawoo
in
MPN Voice
5 months ago
Approved or Trials of RBC lowering drugs?
Does anyone know of any FDA approved drugs that are more effective at lowering RBC's? I have been losing the battle using interferon. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
Does anyone know of any FDA approved drugs that are more effective at lowering RBC's? I have been losing the battle using interferon. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
jon1972
in
MPN Voice
5 months ago
Post ET MF - Advice Please
Hello, I am new here - really wish I had found you sooner. My Dad is usually a very active 77 year old. He found out he had ET aged 46 and was initially treated with aspirin. He then started taking Hydroxycarbamide, but he didn't tolerate it well so was switched to Anegrelide, which suited him well
Hello, I am new here - really wish I had found you sooner. My Dad is usually a very active 77 year old. He found out he had ET aged 46 and was initially treated with aspirin. He then started taking Hydroxycarbamide, but he didn't tolerate it well so was switched to Anegrelide, which suited him well
moongazer100
in
MPN Voice
6 months ago
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