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Interferon alfa-2a
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Interferon or Anagrelide ?
Morning everyone . Having to decide between Peg or Anagrelide for my next consultation in October at Haemotology. Also my history has been discussed with Dr Claire Harrison at Guys . The decision is mine . I reacted badly to Hydroxy & taken off it . I appreciate we are all different but
Morning everyone . Having to decide between Peg or Anagrelide for my next consultation in October at Haemotology. Also my history has been discussed with Dr Claire Harrison at Guys . The decision is mine . I reacted badly to Hydroxy & taken off it . I appreciate we are all different but
Exeter21
in
MPN Voice
2 years ago
pegalated interferon and thyroid
hi all, I’ve been on interferon 45 weekly for about two years now, and have had an under active thyroid for about 10 years, treated and maintained successfully with thyroxine . About a month ago I noticed my thyroid was enlarged so went to GP and had a scan and blood tests. The scan is not showing
hi all, I’ve been on interferon 45 weekly for about two years now, and have had an under active thyroid for about 10 years, treated and maintained successfully with thyroxine . About a month ago I noticed my thyroid was enlarged so went to GP and had a scan and blood tests. The scan is not showing
SuET2017
in
MPN Voice
2 years ago
A new symptom with ET? And let down with Heam doc
Hi all, Another symptom I think I am experiencing is tingling or pin/needles in my finger ends but mainly in the morning. Is this a proper thing only you start getting a bit paranoid with all this? I went to see Heam doc last week and felt the appointment was very rushed, I found him hard to understand
Hi all, Another symptom I think I am experiencing is tingling or pin/needles in my finger ends but mainly in the morning. Is this a proper thing only you start getting a bit paranoid with all this? I went to see Heam doc last week and felt the appointment was very rushed, I found him hard to understand
Grendall
in
MPN Voice
2 years ago
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Effective INF Dose Part 2, more considerations, research, and Dr vs patient wishes
https://ashpublications.org/blood/article/134/18/1498/374977/Pegylated-
interferon
-
alfa
-
2a
-for-polycythemia-vera It goes to 4 years end of study. See image #3 in reply below. In Fig.
https://ashpublications.org/blood/article/134/18/1498/374977/Pegylated-
interferon
-
alfa
-
2a
-for-polycythemia-vera It goes to 4 years end of study. See image #3 in reply below. In Fig.
EPguy
in
MPN Voice
2 years ago
ET and PV Treatments Are Moving Toward Disease Modification
« An improved understanding of these myeloproliferative neoplasms, including the identification of driver mutations in JAK2, CALR, and MPL, has opened the door to treatments that enable the natural history of these diseases to be altered » « There are preclinical data suggesting [that interferons suppress
« An improved understanding of these myeloproliferative neoplasms, including the identification of driver mutations in JAK2, CALR, and MPL, has opened the door to treatments that enable the natural history of these diseases to be altered » « There are preclinical data suggesting [that interferons suppress
Manouche
in
MPN Voice
2 years ago
itching with ET and frofenadine?
hi all, so I have just got back from my first hospital appointment and the Doc has told me to try the above for my uncontrollable itching!! He says give it a couple of weeks if not helping can add another antihistamine taken at night and if that doesn’t then will put me in interferon.. He says he doesn
hi all, so I have just got back from my first hospital appointment and the Doc has told me to try the above for my uncontrollable itching!! He says give it a couple of weeks if not helping can add another antihistamine taken at night and if that doesn’t then will put me in interferon.. He says he doesn
Grendall
in
MPN Voice
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
ET diagnosed at 85 yrs. Failed HU because of side effects but platelets down to 555. Considering age and quality of life issues..........
What we would like to know is what approaches have other 85 yr olds taken. My husband is CALR pos. No hx of Thrombotic event. Has h/o borderline kidney disease per labs. Getting injections in the eye for macular degeneration. From my reading, he would be considered moderate category for ET. The Hematologist
What we would like to know is what approaches have other 85 yr olds taken. My husband is CALR pos. No hx of Thrombotic event. Has h/o borderline kidney disease per labs. Getting injections in the eye for macular degeneration. From my reading, he would be considered moderate category for ET. The Hematologist
endlessfun
in
MPN Voice
2 years ago
Interferon and alcohol interaction
Hi all! Since starting Pegasys about a year ago I've found that I struggle to drink alcohol anymore. I've never drunk heavily (would drink on average twice a week, and up to 2 glasses of wine or a few beers per time) but since starting interferon, even drinking just 1 glass of wine is unpleasant! It
Hi all! Since starting Pegasys about a year ago I've found that I struggle to drink alcohol anymore. I've never drunk heavily (would drink on average twice a week, and up to 2 glasses of wine or a few beers per time) but since starting interferon, even drinking just 1 glass of wine is unpleasant! It
cgcheets
in
MPN Voice
2 years ago
Post Covid infection - nearly 4 weeks since positive test and treated with antivirals - have ET and still feel awful
Hi I tested positive with covid 4 weeks ago and was prescribed antivirals as I have ET. I tested positive for 6 days only and after 10 days felt loads better - however on day 19 i ended up in a and e with a suspected heart arithymia and body going into shock, I couldn’t walk or stand, couldn’t eat,
Hi I tested positive with covid 4 weeks ago and was prescribed antivirals as I have ET. I tested positive for 6 days only and after 10 days felt loads better - however on day 19 i ended up in a and e with a suspected heart arithymia and body going into shock, I couldn’t walk or stand, couldn’t eat,
BeckyDing
in
MPN Voice
2 years ago
interferon and psoriasis
morning I have an appointment with haematology at St James hospital Leeds this week to discuss changing from hydroxia to interferon. Comments have already been made that there is a risk of more side effects due to age (71) and that it can effect psoriasis. I have a small patch on back and on my scalp
morning I have an appointment with haematology at St James hospital Leeds this week to discuss changing from hydroxia to interferon. Comments have already been made that there is a risk of more side effects due to age (71) and that it can effect psoriasis. I have a small patch on back and on my scalp
2212df
in
MPN Voice
2 years ago
Pegasys - Withdrawal side effects in the days prior to injection
Hi everyone, I'm Charlie, I'm 27 and have ET. I've been on Peg-interferon for the last year and I just wondered if anyone else experiences worse symptoms in the few days leading up to their injection. I do my injection every Sunday evening, and from Friday I started to feel a bit off (mainly mild
Hi everyone, I'm Charlie, I'm 27 and have ET. I've been on Peg-interferon for the last year and I just wondered if anyone else experiences worse symptoms in the few days leading up to their injection. I do my injection every Sunday evening, and from Friday I started to feel a bit off (mainly mild
cgcheets
in
MPN Voice
2 years ago
Pv interferon 0.5ml dosage have itching
Past month I have been suffering from itching on both arms and stomach. Tried e45 and now amphetamine tablet and Eumovate cream twice a day. Still itching. Has anyone mange to control their itching and if so how. pv since 2019. On the lowest dosage 0.5ml every 2 weeks.
Past month I have been suffering from itching on both arms and stomach. Tried e45 and now amphetamine tablet and Eumovate cream twice a day. Still itching. Has anyone mange to control their itching and if so how. pv since 2019. On the lowest dosage 0.5ml every 2 weeks.
Taz777
in
MPN Voice
2 years ago
Inteferon benefits
While my platelets refused to budge much on Interferon since stopping it the joints in my hands and feet have become painful my hips and lower back ache. My skin is much dryer and nails more brittle. I have a colonoscopy booked next week once done I will restart the dreaded HU. It will be interesting
While my platelets refused to budge much on Interferon since stopping it the joints in my hands and feet have become painful my hips and lower back ache. My skin is much dryer and nails more brittle. I have a colonoscopy booked next week once done I will restart the dreaded HU. It will be interesting
ciye
in
MPN Voice
2 years ago
Side effects of Interferon
i have just had my 5 th weekly Interferon Injection . having weened off Ruxolitinib . I thought by now the side effects of nausea dizziness fatigue and feeling depressed would have improved but they seem to be getting worse each time and not better . I did improve after a few days in the beginning
i have just had my 5 th weekly Interferon Injection . having weened off Ruxolitinib . I thought by now the side effects of nausea dizziness fatigue and feeling depressed would have improved but they seem to be getting worse each time and not better . I did improve after a few days in the beginning
Heather270240
in
MPN Voice
2 years ago
Bmb confirms ET mpl
Results from bmb all good nothing different from original blood work. Platelets currently 650 need to restart HU, sadly organist didn't work for me,I have been off it for 3 weeks and feel much better. Heamatolgist can only prescribe interferon HU Anagrelide not suitable for me. Referral for
Results from bmb all good nothing different from original blood work. Platelets currently 650 need to restart HU, sadly organist didn't work for me,I have been off it for 3 weeks and feel much better. Heamatolgist can only prescribe interferon HU Anagrelide not suitable for me. Referral for
ciye
in
MPN Voice
2 years ago
Anyone on Interferon for 5 years or more??
I just read a post of a member who has been on Peg for 5 years and has an AB of 1%. Wondering what the experiences of those who have taken interferon for at least 5 years, both good and bad have been. Have you had lowering of AB, CHR, any effect on bone marrow, have you progressed to another mpn
I just read a post of a member who has been on Peg for 5 years and has an AB of 1%. Wondering what the experiences of those who have taken interferon for at least 5 years, both good and bad have been. Have you had lowering of AB, CHR, any effect on bone marrow, have you progressed to another mpn
Meatloaf9
in
MPN Voice
2 years ago
Questions about AEs on Interferons w.r.t. liver enzymes
I have seen erratic liver enzyme levels while attempting to transition from hydroxyurea to Pegasys. I'm not convinced that the Peg is the cause of the issue but my Dr has stopped the Peg and I’m back to 2g of HU with platelets at about 1400 and increasing at a good pace. It is not good. Other than a
I have seen erratic liver enzyme levels while attempting to transition from hydroxyurea to Pegasys. I'm not convinced that the Peg is the cause of the issue but my Dr has stopped the Peg and I’m back to 2g of HU with platelets at about 1400 and increasing at a good pace. It is not good. Other than a
LongETinUS
in
MPN Voice
2 years ago
AE's on interferon
No drastic new info here, but interesting as we experience INF together. A report on MPN Hub has >3 level adverse effects on INF vs HU. A few of note, many of us are seeing these, if not at these severe levels: Severe AEs: -Lymphopenia, (Low Lymphocyte WBCs) HU: 1%, PEG: 4%. -Neutrophenia, HU:
No drastic new info here, but interesting as we experience INF together. A report on MPN Hub has >3 level adverse effects on INF vs HU. A few of note, many of us are seeing these, if not at these severe levels: Severe AEs: -Lymphopenia, (Low Lymphocyte WBCs) HU: 1%, PEG: 4%. -Neutrophenia, HU:
EPguy
in
MPN Voice
2 years ago
Covid
Hi I have caught Covid (in Spain)2days ago I was allowed to skip my pegylated interferon dose for this holiday ( choir tour) as it’s a tiring week. On return (in 4 days) I have to take my ‘increased’ dose of Peg(60mg) Has anyone taken Peg with Covid and does it increase the side effects much? I do feel
Hi I have caught Covid (in Spain)2days ago I was allowed to skip my pegylated interferon dose for this holiday ( choir tour) as it’s a tiring week. On return (in 4 days) I have to take my ‘increased’ dose of Peg(60mg) Has anyone taken Peg with Covid and does it increase the side effects much? I do feel
Bobadog
in
MPN Voice
2 years ago
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