interferon and psoriasis : morning I have an... - MPN Voice

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interferon and psoriasis

2212df profile image
9 Replies

morning I have an appointment with haematology at St James hospital Leeds this week to discuss changing from hydroxia to interferon. Comments have already been made that there is a risk of more side effects due to age (71) and that it can effect psoriasis. I have a small patch on back and on my scalp. I have P.V. and had it for 21 years. Was wondering if anyone had same situation and any comments. Thank you.

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9 Replies
EPguy profile image
EPguy

I'm on Besremi. I have occasional psoriasis back of knees for years. I expected it to get worse on INF but so far it's same at most. I also take anti inflammatory supplements (n-acetyl cysteine and Curcumin), it's possible these help but I have no certain evidence.

2212df profile image
2212df in reply toEPguy

Thanks for your reply

Grendall profile image
Grendall

Hi 2212

Someone from my area. I have had my first telephone appt with the hemo doc from Jimmys who just told me to start on aspirin, appt with nurses next week. Just wondered in your opinion, do you feel they are experienced in MPN and know what they are talking about please? X

2212df profile image
2212df in reply toGrendall

I first started at St. James’s many years ago and I found the whole process really time consuming. Moved away and then come back to them just over two years ago. No face to face appointment till this week, get bloods checked at GP then phone call. The phone calls have been ok and have been satisfied with their actions so far. Recently I have had to have venesection and the staff there have been brilliant. I not had any contact with the nurses yet. The last doctor I talked to seemed very knowledgeable about MPNs not sure about others as there weren’t any issues to discuss. Good luck Grendall

Phil1955 profile image
Phil1955

Hi I’m on hydroxycarbamide my psoriasis has got worse over last 12 months with intermittent outbreaks everywhere Recently seen a dermatologist who wasn’t really interested

My Gp has given me lots different creams to keep under control seems to come out more when stressed

Grendall profile image
Grendall

Thank you so much for your prompt reply.I have found this forum to be an excellent place to find info and knowledge on the topics.

Keep my fingers crossed then

Thanks again x

havashan profile image
havashan

I am on Pegasys 45 MCG every other week. I have had psoriasis my whole life but a very mild case mostly in my scalp. My Hem did not think such a small dose of INF would cause a problem, but soon after starting Peg, my psoriasis became significantly worse -- lesions all over my back and arms. I started UVB light therapy and used various cortisone lotions and eventually the psoriasis improved.

2212df profile image
2212df in reply tohavashan

Thank you that helpful havashan

Mirror368 profile image
Mirror368

I am newly diagnosed Edith ET JAK2. I am taking 500 mg daily Hydroxyurea for the past month. My scalp and scattered psoriasis on my legs have actually improved since I started taking HU.

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