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Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
6 days ago
Ask the Authors Q & A: The Complete Guide to Overcoming Health Anxiety
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
ADAATeamRachel
Partner
in
Anxiety and Depression Support
7 days ago
Ask the Authors Q & A: The Complete Guide to Overcoming Health Anxiety
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
ADAATeamRachel
Administrator
in
PTSD Support
7 days ago
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Ask the Authors Q & A: The Complete Guide to Overcoming Health Anxiety
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
ADAATeamRachel
Partner
in
Major Depressive Disorder (MDD) Support
7 days ago
Introduction and help navigating our NHS for Thyroid hormone replacement. Tips and support needed as it's a very tricky business.
Hi everyone. Been on my autoimmune thyroid journey for a few years now, was on 125mcg teva for a while, this dose almost suppressed the tsh, lowest was 0.003, it did however rise to 0.03. Gp reduced dose to 100mcg and TSH has now risen to 2.1. However (my bio gives loads of symptoms) I'm feeling steadily
Hi everyone. Been on my autoimmune thyroid journey for a few years now, was on 125mcg teva for a while, this dose almost suppressed the tsh, lowest was 0.003, it did however rise to 0.03. Gp reduced dose to 100mcg and TSH has now risen to 2.1. However (my bio gives loads of symptoms) I'm feeling steadily
Curlywurly70
in
Thyroid UK
7 days ago
My recent Hysteroscopy
Hello I posted a short while ago about my upcoming hysteroscopy. Just to update I had it last week, and if anyone is feeling scared/anxious about having it done, I assure you I was in the best hands and very well looked after. My gynaecologist is absolutely lovely and I am very lucky. She and the
Hello I posted a short while ago about my upcoming hysteroscopy. Just to update I had it last week, and if anyone is feeling scared/anxious about having it done, I assure you I was in the best hands and very well looked after. My gynaecologist is absolutely lovely and I am very lucky. She and the
pickles36
in
Endometriosis UK
8 days ago
A bit shell shocked by Hysterectomy recommendation
I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see someone. Last year the heavy bleeding and pain got so bad I went private to see someone and had a further laparoscopy in December 2023. During
I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see someone. Last year the heavy bleeding and pain got so bad I went private to see someone and had a further laparoscopy in December 2023. During
Charlamine2023
in
Endometriosis UK
8 days ago
Help please with test results. Needing to adjust thyroid replacement due to huge weight loss...
Background.* Hashimotos, for which I take Bovine replacement "Metavive". I am allergic to Thyroxine and cannot tolerate Porcine. * Sjogren's. * 17 different food allergies. * Gall bladder issues. * HRT replacement. * Huge stress; mother very unwell post Covid / PMR & GCA, and other huge stress issues
Background.* Hashimotos, for which I take Bovine replacement "Metavive". I am allergic to Thyroxine and cannot tolerate Porcine. * Sjogren's. * 17 different food allergies. * Gall bladder issues. * HRT replacement. * Huge stress; mother very unwell post Covid / PMR & GCA, and other huge stress issues
Poppy_the_cat
in
Thyroid UK
8 days ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
8 days ago
Zometa and Dexa scan
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Proflac
in
Advanced Prostate Cancer
8 days ago
A maternal brain hormone that builds bone - Nature - Published: 10 July 2024
[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation
[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation
cujoe
in
Fight Prostate Cancer
8 days ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
8 days ago
Building Bones and Shrinking Moobs
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Flydad
in
Advanced Prostate Cancer
9 days ago
Metathesized Breast Cancer after 28 years
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
Notofu4me
in
SHARE Metastatic Breast Cancer
10 days ago
update to my last post on hrt
Hi I recently posted about starting new hrt and experiencing nausea and loss of appetite. My symptoms were down to a UTI and kidney pain - so not down to new hrt - so mystery solved!!!! Lara
Hi I recently posted about starting new hrt and experiencing nausea and loss of appetite. My symptoms were down to a UTI and kidney pain - so not down to new hrt - so mystery solved!!!! Lara
Lara1244
in
Menopause and Perimenopause Support
10 days ago
Taxol-Anyone had experience with Taxol
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
DinNorCal
in
SHARE Metastatic Breast Cancer
11 days ago
primary tumor
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
muttonman
in
Advanced Prostate Cancer
11 days ago
Slight PSA rise and MO discontinuing ADT due to fatigue
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Superbfloor
in
Advanced Prostate Cancer
11 days ago
A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
11 days ago
Help interpreting results please
Hello, I wondered if anyone could help me out with interpreting the results I've just obtained from Blue Horizons, please? Blood taken at 9am (earliest I could book nurse, as I failed to draw blood successfully myself), after fasting. I take 100mg Levothyroxine (in the night, well after and before
Hello, I wondered if anyone could help me out with interpreting the results I've just obtained from Blue Horizons, please? Blood taken at 9am (earliest I could book nurse, as I failed to draw blood successfully myself), after fasting. I take 100mg Levothyroxine (in the night, well after and before
BornFlippy
in
Thyroid UK
11 days ago
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