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Hydroxycarbamide
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PV on hydroxycarbamide and aspirin ckd 3 Coronavirus no letter or text from nhs
I have an appointment next week and have to go to the hospitals main phlebotomy department and then go back after my telephone consultation to pick up my
hydroxycarbamide
.
I have an appointment next week and have to go to the hospitals main phlebotomy department and then go back after my telephone consultation to pick up my
hydroxycarbamide
.
Hughley
in
MPN Voice
4 years ago
EVER HAVE MENTAL FOG? YOU MAY WANT TO READ THIS...?
Post by MPN-MATE Admin » Thu May 07, 2020 1:17 pm Afternoon all... :D Just prior to my own diagnosis, (almost four years ago today), I was studying for a 2nd degree at university, when things suddenly somehow became harder to do... Finally, after struggling for about a term, I decided that perhaps
Post by MPN-MATE Admin » Thu May 07, 2020 1:17 pm Afternoon all... :D Just prior to my own diagnosis, (almost four years ago today), I was studying for a 2nd degree at university, when things suddenly somehow became harder to do... Finally, after struggling for about a term, I decided that perhaps
socrates_8
in
MPN Voice
4 years ago
Hydroxyurea vs interferon for younger patients
My 18yr old son has JAK2+ ET. Right now he only takes daily 81 aspirin. During my discussion with the hematologist, their drug of choice, if needed, is hydroxyurea. Everything I’ve read and have seen on this board is that interferon (peg) is preferred for the younger ET patients. She said HU is better
My 18yr old son has JAK2+ ET. Right now he only takes daily 81 aspirin. During my discussion with the hematologist, their drug of choice, if needed, is hydroxyurea. Everything I’ve read and have seen on this board is that interferon (peg) is preferred for the younger ET patients. She said HU is better
Nmom
in
MPN Voice
4 years ago
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Letter Arrived to Confirm if Vulnerable etc, Covid-19 & Hydroxycarbamide...
I take 8.5 grams of
Hydroxycarbamide
(17 Capsules) per week, Clopidagrel and 3 lots of Venesection since Polycythemia was added to my list in January.. To all my fellow MPN sufferers no matter your circumstances etc, we are on this journey together.
I take 8.5 grams of
Hydroxycarbamide
(17 Capsules) per week, Clopidagrel and 3 lots of Venesection since Polycythemia was added to my list in January.. To all my fellow MPN sufferers no matter your circumstances etc, we are on this journey together.
pontygirl
in
MPN Voice
4 years ago
No face to face haematology hospital appointments for at least 4 months
I was asked to pick up my medication -
hydroxycarbamide
, directly from the department and not from the hospital pharmacy. Any future blood tests should be carried out at my surgery and I would be contacted when arrangements had been arranged as to where I could pick up my future supplies of meds.
I was asked to pick up my medication -
hydroxycarbamide
, directly from the department and not from the hospital pharmacy. Any future blood tests should be carried out at my surgery and I would be contacted when arrangements had been arranged as to where I could pick up my future supplies of meds.
Judi150
in
MPN Voice
4 years ago
Shoulder and hand pain
I am on
Hydroxycarbamide
500mg a day. Recently my blood count went from 450 to 630 with horrendous fatigue, which is far worse than normal and also pains in my shoulders and hands which I have never had before. Can anyone tell me whether the pains are connected with ET please?
I am on
Hydroxycarbamide
500mg a day. Recently my blood count went from 450 to 630 with horrendous fatigue, which is far worse than normal and also pains in my shoulders and hands which I have never had before. Can anyone tell me whether the pains are connected with ET please?
Heather270240
in
MPN Voice
4 years ago
Backache
Also has anyone put on weight since taking
Hydroxycarbamide
?
Also has anyone put on weight since taking
Hydroxycarbamide
?
Tilly_Rose
in
MPN Voice
4 years ago
Covid 19/MPNs - Shielding or Not!
Bloods taken but was told ET was very unlikely (between 1 and 3 in every 100000). 3 weeks later I was back with consultant and given the news that I had tested positive for the JAK 2 mutation (put on
hydroxycarbamide
and aspirin) My whole point in sharing this is to highlight that when we are told that
Bloods taken but was told ET was very unlikely (between 1 and 3 in every 100000). 3 weeks later I was back with consultant and given the news that I had tested positive for the JAK 2 mutation (put on
hydroxycarbamide
and aspirin) My whole point in sharing this is to highlight that when we are told that
Trueblue8
in
MPN Voice
4 years ago
Hair loss ET treatment
I am 72 and suffer from ET I took
Hydroxycarbamide
for six months, various problems plus hair loss. ( Hair loss normalised a few months after ceasing hydro.) Now prescribed interferon alfa, still hair loss if I was prescribed Anagnelide would it cause hair loss?
I am 72 and suffer from ET I took
Hydroxycarbamide
for six months, various problems plus hair loss. ( Hair loss normalised a few months after ceasing hydro.) Now prescribed interferon alfa, still hair loss if I was prescribed Anagnelide would it cause hair loss?
presto21
in
MPN Voice
4 years ago
Blood tests & Venesections during self isolation
Also, we all need regular blood tests to make sure our blood counts are ok, especially on drugs such as
Hydroxycarbamide
. If the situation arises where we need a venesection how can that be done if you have to self isolate? Mark
Also, we all need regular blood tests to make sure our blood counts are ok, especially on drugs such as
Hydroxycarbamide
. If the situation arises where we need a venesection how can that be done if you have to self isolate? Mark
MarkD6701
in
MPN Voice
4 years ago
Immune system + coronovirus advice
I’m on
hydroxycarbamide
for ET. My consultant said last week my immune system is compromised but didn’t say to self isolate. Not sure what extra precautions I should be taking other than the extra hand washing etc. Any advice on here?
I’m on
hydroxycarbamide
for ET. My consultant said last week my immune system is compromised but didn’t say to self isolate. Not sure what extra precautions I should be taking other than the extra hand washing etc. Any advice on here?
LightOfErendil
in
Leukaemia CARE
4 years ago
Biopsy for Dx essential thrombocytomia
Just Dx with ET and went for second opinion. Jak 2 positive, platelets between 485-550 (currently) 515, I’m in my 7O’s. 1st dr wanted to schedule biopsy, 2nd dr said she felt it wasn’t necessary as addition blood tests did not reveal other causes for high platelets. She said it’s not that it was wrong
Just Dx with ET and went for second opinion. Jak 2 positive, platelets between 485-550 (currently) 515, I’m in my 7O’s. 1st dr wanted to schedule biopsy, 2nd dr said she felt it wasn’t necessary as addition blood tests did not reveal other causes for high platelets. She said it’s not that it was wrong
Doggy555
in
MPN Voice
4 years ago
MPN ET JAK2 - Coronavirus risk?
He made more of saying I ‘must’ tell them if I get mouth ulcers as the
hydroxycarbamide
can cause them!?!
He made more of saying I ‘must’ tell them if I get mouth ulcers as the
hydroxycarbamide
can cause them!?!
CooperS1
in
MPN Voice
4 years ago
Worried
Just had a conversation with my Chemo nurse, as I have my four monthly appointment Wednesday week, and has told me that I might get cancelled but as I take
Hydroxycarbamide
she suspects that I will just attend for a blood test and then either a letter or a telephone conversation regarding the results
Just had a conversation with my Chemo nurse, as I have my four monthly appointment Wednesday week, and has told me that I might get cancelled but as I take
Hydroxycarbamide
she suspects that I will just attend for a blood test and then either a letter or a telephone conversation regarding the results
Superwoman
in
MPN Voice
4 years ago
Problem reflux
I was diagnosed with essential thrombocythaemia jak2 positive 3 weeks ago so all this is new to me been on
hydroxycarbamide
and aspirin but now I'm getting a lot of burping and bloating am taking omeprazole but doesn't seem to be helping I don't think I drink enough fluids has anyone else had this
I was diagnosed with essential thrombocythaemia jak2 positive 3 weeks ago so all this is new to me been on
hydroxycarbamide
and aspirin but now I'm getting a lot of burping and bloating am taking omeprazole but doesn't seem to be helping I don't think I drink enough fluids has anyone else had this
Chel1
in
MPN Voice
4 years ago
tingling in left sole
I have a tingling and burning on my left sole for a month, I am taking hydroxyurea 3 times aweek, and aspirin, for ET. Ιnteresting to see other people's experiences on that. Should I contact my doctor sooner? Platelets are 330. All the best, Anastasia.
I have a tingling and burning on my left sole for a month, I am taking hydroxyurea 3 times aweek, and aspirin, for ET. Ιnteresting to see other people's experiences on that. Should I contact my doctor sooner? Platelets are 330. All the best, Anastasia.
krotsida
in
MPN Voice
4 years ago
Mpn
Am about to start
HYDROXYCARBAMIDE
. After reading links people have suggested it says the drug is used to treat chronic leukaemia.Have i got leukaemia?.
Am about to start
HYDROXYCARBAMIDE
. After reading links people have suggested it says the drug is used to treat chronic leukaemia.Have i got leukaemia?.
glyndale
in
MPN Voice
4 years ago
Surgery
Hi I have been taking
hydroxycarbamide
and low dose aspirin for 8 years and these have been successful in bringing my blood counts to within tolerances. I have had no adverse side effects. I now have a decision to make whether to have surgery or radiotherapy to remove a cancerous prostate.
Hi I have been taking
hydroxycarbamide
and low dose aspirin for 8 years and these have been successful in bringing my blood counts to within tolerances. I have had no adverse side effects. I now have a decision to make whether to have surgery or radiotherapy to remove a cancerous prostate.
Roverjohn
in
MPN Voice
4 years ago
Hydroxycarbamide and platelet count: is my experience so far typical?
My CNS ordered my next lot of drugs, with a small increase in the
Hydroxycarbamide
dose: until the next review I should take 500mg 1 a day Mon to Sat but 2 a day on Sundays. Is this experience typical?
My CNS ordered my next lot of drugs, with a small increase in the
Hydroxycarbamide
dose: until the next review I should take 500mg 1 a day Mon to Sat but 2 a day on Sundays. Is this experience typical?
JaK2ET
in
MPN Voice
4 years ago
ET jak2 negative, first post
The thing that made it worse, was the following day, i had a call from the consultant, letting me know that my blood sample the previous day had come back at 1751, she was concerned, so wanted me to start
Hydroxycarbamide
straight away and have a BMB.
The thing that made it worse, was the following day, i had a call from the consultant, letting me know that my blood sample the previous day had come back at 1751, she was concerned, so wanted me to start
Hydroxycarbamide
straight away and have a BMB.
Wednesdaylad
in
MPN Voice
4 years ago
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