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Goods news
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
Bibicata
in
The Roy Castle Lung Cancer Foundation
4 months ago
PSMA/PET SCAN methodology
I'm having PSMA next week and am confused a little about the equipment used. In all my reading about the test, a CT or MRI is used in conjunction with the PSMA Pet, When I looked at my upcoming test on the portal it says PET SKULLBASE TO MIDTHIGH NOPR SUBSEQUENT. That tells me it's a PET Scan and
I'm having PSMA next week and am confused a little about the equipment used. In all my reading about the test, a CT or MRI is used in conjunction with the PSMA Pet, When I looked at my upcoming test on the portal it says PET SKULLBASE TO MIDTHIGH NOPR SUBSEQUENT. That tells me it's a PET Scan and
hwrjr
in
Prostate Cancer Network
4 months ago
Pre Op assessment
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
EvilEdna77
in
Endometriosis UK
4 months ago
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2nd recurrence
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hota
in
My Ovacome
4 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
4 months ago
A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
bennevisplace
in
CLL Support
4 months ago
Another Lu-177 solution gets fast tracked: Lu-177-DGUL, secures 'GIFT' designation
"On Monday, the Ministry of Food and Drug Safety (MFDS) designated Lu-177-DGUL as the 11th agent to benefit from its “Global Innovative Products on Fast Track” (GIFT) program, signifying a significant milestone in the quest to offer a beacon of hope for prostate cancer patients who currently have limited
"On Monday, the Ministry of Food and Drug Safety (MFDS) designated Lu-177-DGUL as the 11th agent to benefit from its “Global Innovative Products on Fast Track” (GIFT) program, signifying a significant milestone in the quest to offer a beacon of hope for prostate cancer patients who currently have limited
Maxone73
in
Advanced Prostate Cancer
4 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
4 months ago
liver concerns
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
Marieck
in
My Ovacome
4 months ago
low hemoglobin
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
alysona828
in
Advanced Prostate Cancer
4 months ago
Hello
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Bella_mum
in
SHARE Metastatic Breast Cancer
4 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
4 months ago
Spinal mets.
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
APK3
in
Advanced Prostate Cancer
4 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
4 months ago
Chemotherapy
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
Petalka32
in
SHARE Metastatic Breast Cancer
4 months ago
Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
4 months ago
16cm Fibroid
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Dem92
in
Pelvic Pain Support Network
4 months ago
Liquid Biopsy
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
RedwoodLady
in
SHARE Metastatic Breast Cancer
4 months ago
CA 27.29 Blood test
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
4 months ago
Colostomy
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
DIYdiva
in
SHARE Ovarian Cancer Support
4 months ago
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