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It wont be long
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
TheFlyer
in
CLL Support
4 months ago
radiation treatments led to perforated colon?
St. Patrick’s Day I collapsed in pain and was rushed to ER. A CT ABD PE revealed a perforated colon near my rectum, broad internal infection (sepsis) with kidneys and liver shutting down. A life flight, three surgeries later, 3 weeks sedated and immobile in an ICU, and seven weeks in hospital rehabs
St. Patrick’s Day I collapsed in pain and was rushed to ER. A CT ABD PE revealed a perforated colon near my rectum, broad internal infection (sepsis) with kidneys and liver shutting down. A life flight, three surgeries later, 3 weeks sedated and immobile in an ICU, and seven weeks in hospital rehabs
kreg001
in
Advanced Prostate Cancer
2 months ago
salvage radiation after surgery?
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Granolaberry
in
Prostate Cancer Network
4 months ago
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Why don’t doctors read notes properly before calling patients?
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
AthenaJason
in
British Liver Trust
4 months ago
Update: NEPC Treatment
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
antisocialsocialwrkr
in
Advanced Prostate Cancer
4 months ago
My dad has CLL with TP53 mutation
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
Ornate2001
in
CLL Support
4 months ago
cisplatin
Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin for my 5 session. I am wondering if someone has been on Cisplatin and what’s yours experience with Cisplatin?
Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin for my 5 session. I am wondering if someone has been on Cisplatin and what’s yours experience with Cisplatin?
Green999
in
My Ovacome
2 months ago
Malecare newsletter reports Finish study glucocorticoids (e.g. prednisone, prednisolone, dexamethasone) can lead to castrate resistance
“However, recent studies have shown that the glucocorticoid receptor also has an oncogenic, or cancer-promoting, effect in cancers like breast and prostate cancer. In prostate cancer, the glucocorticoid receptor can replace the activity of the androgen receptor, which is main oncogenic factor in this
“However, recent studies have shown that the glucocorticoid receptor also has an oncogenic, or cancer-promoting, effect in cancers like breast and prostate cancer. In prostate cancer, the glucocorticoid receptor can replace the activity of the androgen receptor, which is main oncogenic factor in this
Graham49
in
Advanced Prostate Cancer
4 months ago
how to reduce testosterone after orchiectomy
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Support in your local community.
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
Denzie
Volunteer
in
Lung Cancer Support
4 months ago
Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
4 months ago
Looking for advice for my newly diagnosed dad
Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with urine retention. A Ct scan he had in hospital showed 2 small mets in pelvic area. He’s had a biopsy which showed Gleason 4 +5 and his PSA in hospital
Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with urine retention. A Ct scan he had in hospital showed 2 small mets in pelvic area. He’s had a biopsy which showed Gleason 4 +5 and his PSA in hospital
Springsunshi
in
Advanced Prostate Cancer
4 months ago
Pulmonary metastasectomy anyone?
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
Kahe
in
SHARE Metastatic Breast Cancer
4 months ago
thinning hair and skin problem with IBS
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
Mascot68
in
IBS Network
2 months ago
Bladder Cancer Update and More. UPDATE.
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Ern007
in
Lung Conditions Community Forum
4 months ago
Fulvestrant side effects and updates
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
JonaC38
in
SHARE Metastatic Breast Cancer
4 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
4 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
4 months ago
Autovaccination seems a hot topic lately: Mt. Sinai autovaccination technique to turn cold prostate cancer hot (Phase 1)
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
Maxone73
in
Advanced Prostate Cancer
4 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
4 months ago
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