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Humira
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Hi to everyone, I have been on Humira for 8 weeks, anyone in a similar position would love to hear of any experiences, Carole
Nantucket
in
NRAS
11 years ago
WHAT NEXT.
I have been on mtx,
humira
, super yin, enbrel and now I am going to betaken off Tocilizamub as it is having no effect on my rheumatoid disease. What. Can I expect next or more to the point is there much more that I canbeput on?
I have been on mtx,
humira
, super yin, enbrel and now I am going to betaken off Tocilizamub as it is having no effect on my rheumatoid disease. What. Can I expect next or more to the point is there much more that I canbeput on?
jeanabelle
in
NRAS
11 years ago
Insurance denied Infliximab - $28k bill
I recently had to stop taking
Humira
and start taking Remicade. Remicade is IV infusion, only. When I went for my first infusion, I found out my hemoglobin was 5, so they had to start IV iron before I could start Remicade.
I recently had to stop taking
Humira
and start taking Remicade. Remicade is IV infusion, only. When I went for my first infusion, I found out my hemoglobin was 5, so they had to start IV iron before I could start Remicade.
Kayhold
in
Behçet's UK
11 years ago
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2nd Anti-tnf Assessment
Next the nurse has to present my case to 2 consultants who decide which therapy to go for (Cimzia,
Humira
or Enbrel) then it is passed to the head pharmacist before finally heading to the PCT for a yay or nay.
Next the nurse has to present my case to 2 consultants who decide which therapy to go for (Cimzia,
Humira
or Enbrel) then it is passed to the head pharmacist before finally heading to the PCT for a yay or nay.
Mags126
in
NRAS
11 years ago
The vagueness intensifies!
Anyway he had a prod at my joints and told me I must still stay off the
Humira
until he has talked to the Neurologist again. Even though he emphasised the spots that indicated bleed damage were tiny and may be very old. I think they are communicating via message tortoise.
Anyway he had a prod at my joints and told me I must still stay off the
Humira
until he has talked to the Neurologist again. Even though he emphasised the spots that indicated bleed damage were tiny and may be very old. I think they are communicating via message tortoise.
Dogrose
in
NRAS
11 years ago
RA is behaving but..........
not been ill before on the biologics not even when i was on
Humira
, not sure wot to do ?? gp or rhumy nurse, any advice anyone xxxxxx
not been ill before on the biologics not even when i was on
Humira
, not sure wot to do ?? gp or rhumy nurse, any advice anyone xxxxxx
alibonura
in
NRAS
11 years ago
So Much Anxiety
I am now taking weekly
Humira
shots, which is helping a bit plus Cymbalta and methoxerate. So here I am four years into this nightmare and the reality of probably never going back to work is hitting me hard. I've worked steadily for almost forty years, 25 in the same company.
I am now taking weekly
Humira
shots, which is helping a bit plus Cymbalta and methoxerate. So here I am four years into this nightmare and the reality of probably never going back to work is hitting me hard. I've worked steadily for almost forty years, 25 in the same company.
Lynn610
in
NRAS
11 years ago
Crunch Time!!
This is my second anti TNf after initially failing on
humira
. I think they want to try rutuximab next.... I'm getting really fed up now and keep looking at all these tablets and crap that we have to take and wondering why when it doesn't seem to be working. Has anybody else failed 2 TNf,s??
This is my second anti TNf after initially failing on
humira
. I think they want to try rutuximab next.... I'm getting really fed up now and keep looking at all these tablets and crap that we have to take and wondering why when it doesn't seem to be working. Has anybody else failed 2 TNf,s??
donnalouisec
in
NRAS
11 years ago
Behcets and I
My babies are 2 and 1 I am now on
humira
40 weekly 90 mgs steroids daily and 20mg Leflunomide and still in a really bad way.
My babies are 2 and 1 I am now on
humira
40 weekly 90 mgs steroids daily and 20mg Leflunomide and still in a really bad way.
infliximab74
in
Behçet's UK
11 years ago
Just whisper it
Shhhhhh, at last was well enough to have my first dose of my fourth anti tnf
Humira
.,,,,,,shhh my hands moving today, don't tell my body ok? :)
Shhhhhh, at last was well enough to have my first dose of my fourth anti tnf
Humira
.,,,,,,shhh my hands moving today, don't tell my body ok? :)
allanah
in
NRAS
11 years ago
hi peeps just a quickie after having an allergic reaction to humira i am soon to begin treatment with Etanercept what are your thoughts ?
dannyt
in
NRAS
11 years ago
Response to Sue about severe headaches
The next step up is often drugs that treat your Behcet's inflammation systemically, such as the biologics Enbrel, Remicade,
Humira
, and that whole family of TNF inhibitors. More aggressive treatments would include immunosuppressants and chemo drugs.
The next step up is often drugs that treat your Behcet's inflammation systemically, such as the biologics Enbrel, Remicade,
Humira
, and that whole family of TNF inhibitors. More aggressive treatments would include immunosuppressants and chemo drugs.
amietamant
in
Behçet's UK
11 years ago
Still in limbo..
Finally have an appointment through to see my Rheumy, he has sent me another letter saying still stay off the
Humira
(he knows I have a fridge full of the stuff, probably scared I'll take it anyway). I'm down to just 5mg Prednisolone now and my joints are really starting to play up again.
Finally have an appointment through to see my Rheumy, he has sent me another letter saying still stay off the
Humira
(he knows I have a fridge full of the stuff, probably scared I'll take it anyway). I'm down to just 5mg Prednisolone now and my joints are really starting to play up again.
Dogrose
in
NRAS
11 years ago
Enbrel, Humira and latex? Allergy the same as Elastoplast? Is latex in the solutions of Enbrel and Humira or just the needle covers?
I have only just read towards the end of my research that Enbrel and
Humira
contain latex in the needle cover (how is the clicpen affected?) Really disappointed if it is actually in the solution? ... as I do want to Take Enbrel. I do want so much to try Enbrel for my RA which is flaring badly.
I have only just read towards the end of my research that Enbrel and
Humira
contain latex in the needle cover (how is the clicpen affected?) Really disappointed if it is actually in the solution? ... as I do want to Take Enbrel. I do want so much to try Enbrel for my RA which is flaring badly.
Neonkitty
in
NRAS
11 years ago
choice
IF an infusion was offered for ra injectable enbrel, cimza or
humira
, which would you chose and why? I Value advice and opinions on this one.
IF an infusion was offered for ra injectable enbrel, cimza or
humira
, which would you chose and why? I Value advice and opinions on this one.
Hidden
in
NRAS
11 years ago
Becoming informed about Behcet's
In 2010, I spoke at the Behcet's Patient Conference in London about the dangers of fungal infections for patients taking biologics (anti-TNF a drugs like Enbrel, Remicade,
Humira
, Cimzia, etc.).
In 2010, I spoke at the Behcet's Patient Conference in London about the dangers of fungal infections for patients taking biologics (anti-TNF a drugs like Enbrel, Remicade,
Humira
, Cimzia, etc.).
amietamant
in
Behçet's UK
11 years ago
Small receptacles for disposal of syringes when travelling/holidaying abroad ?
I have read through my info packs from Enbrel,
Humira
and Simponi whilst making my decision on which to take (think it will be Enbrel) and lots of info there re temperatures and storage but there's one thing that perplexed me in one of my info packs. It said on preparation for holidays ...
I have read through my info packs from Enbrel,
Humira
and Simponi whilst making my decision on which to take (think it will be Enbrel) and lots of info there re temperatures and storage but there's one thing that perplexed me in one of my info packs. It said on preparation for holidays ...
Neonkitty
in
NRAS
11 years ago
Confused.com ENBREL
I fve already failed on
humira
and am due back at the hospital on the 4th of April. If the enbrel is found not to be working then I'm told it will be rituxibab infusions for me!!! Even more daunting toxins in my body. I'm scared stiff to say the least and really confused.
I fve already failed on
humira
and am due back at the hospital on the 4th of April. If the enbrel is found not to be working then I'm told it will be rituxibab infusions for me!!! Even more daunting toxins in my body. I'm scared stiff to say the least and really confused.
donnalouisec
in
NRAS
11 years ago
Anemia causing flares?
I am swapping from
Humira
to Remicaide, and when I went to the infusion center for the workup prior to my first treatment, I found out my hemoglobin was 5.1. My b12 was also really low. Now, I am giving myself daily b12 shots, and I am getting iron transfusions by IV weekly.
I am swapping from
Humira
to Remicaide, and when I went to the infusion center for the workup prior to my first treatment, I found out my hemoglobin was 5.1. My b12 was also really low. Now, I am giving myself daily b12 shots, and I am getting iron transfusions by IV weekly.
Kayhold
in
Behçet's UK
11 years ago
new to this site
a different doctor in the same practice and within 5 months i had a confirmed diagnosis BD,but because i was left to my own devices for so long i have most all symptoms and am getting flare up every few weeks which as all you guys know are pretty hard to deal with.I am on 50mg pred,dapsone 20mg and
humira
a different doctor in the same practice and within 5 months i had a confirmed diagnosis BD,but because i was left to my own devices for so long i have most all symptoms and am getting flare up every few weeks which as all you guys know are pretty hard to deal with.I am on 50mg pred,dapsone 20mg and
humira
scruffy1
in
Behçet's UK
11 years ago
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