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Hoyeraal-Hreidarsson syndrome
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Opiates. Each and everyone
Will add to your ability to not be able to sleep sound. Twilight sleep Especially with oxycodone and cotin. Most people on them long term take some type of benzo or z drug which cause up problems . To help with sleep and the dam irritability oxys cause. Something you all should consider. They cause
Will add to your ability to not be able to sleep sound. Twilight sleep Especially with oxycodone and cotin. Most people on them long term take some type of benzo or z drug which cause up problems . To help with sleep and the dam irritability oxys cause. Something you all should consider. They cause
Hidden
in
Restless Legs Syndrome
4 years ago
What to ask after miscarriage?
I have a follow up phone call today with my clinic today to discuss treatment following our mmc 6 weeks ago. I hope you could give me some help and ideas on questions to ask about the mmc and the next IVF cycle. To give you some background, this is my second mmc. First, ironically was 2yrs ago today
I have a follow up phone call today with my clinic today to discuss treatment following our mmc 6 weeks ago. I hope you could give me some help and ideas on questions to ask about the mmc and the next IVF cycle. To give you some background, this is my second mmc. First, ironically was 2yrs ago today
Miracle43
in
Fertility Network UK
4 years ago
RLS, Food and the wonder drug Pramipexol
I've reported, that intermittend fasting improved my RLS but christmas threw me out of it and I couldn't get back into anymore. My RLS is so bad that I have to eat to calm it down, my brain is screaming like a baby and I can't manage to overcome it. It's like the craving for a drug. But when I eat I
I've reported, that intermittend fasting improved my RLS but christmas threw me out of it and I couldn't get back into anymore. My RLS is so bad that I have to eat to calm it down, my brain is screaming like a baby and I can't manage to overcome it. It's like the craving for a drug. But when I eat I
silkyreg
in
Restless Legs Syndrome
4 years ago
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Augmentation?
For 7 years I have taken one 50mg Tramador and 0.5mg Ropinirole. Lately the rls has kept me awake unusually from around 3am for 4 hours. I feel fortunate that I have no underlying illnesses and have regular blood tests which show amonst other readings my ferritin levels hovver around 100. I am 74 The
For 7 years I have taken one 50mg Tramador and 0.5mg Ropinirole. Lately the rls has kept me awake unusually from around 3am for 4 hours. I feel fortunate that I have no underlying illnesses and have regular blood tests which show amonst other readings my ferritin levels hovver around 100. I am 74 The
m1946
in
Restless Legs Syndrome
4 years ago
Lyrica dose
I take Sifrol 0,25mg per day which gives me partial absence of symptoms for some of the time. I was prescribed 0.25mg twice daily but after experiencing augmentation a while ago would rather stay on the once a day dose. My GP has prescribed Lyrica 200mg at night or 100mg twice daily. I don't feel
I take Sifrol 0,25mg per day which gives me partial absence of symptoms for some of the time. I was prescribed 0.25mg twice daily but after experiencing augmentation a while ago would rather stay on the once a day dose. My GP has prescribed Lyrica 200mg at night or 100mg twice daily. I don't feel
kelirock
in
Restless Legs Syndrome
4 years ago
Anyone based in Suffolk?
Hi, any lady based in Suffolk could be of great help to the community. Matt Hancock is MP there and also Minister for health. I cannot wrote to him as he only deals with his constituents. If you are based in Suffolk and happy to help on IVF, please get in touch here or on PM. I am trying to raise awareness
Hi, any lady based in Suffolk could be of great help to the community. Matt Hancock is MP there and also Minister for health. I cannot wrote to him as he only deals with his constituents. If you are based in Suffolk and happy to help on IVF, please get in touch here or on PM. I am trying to raise awareness
Lilly12255
in
Fertility Network UK
4 years ago
Just joined
Hello All, Good to have found this and I identify with lots that have been written about. I got a diagnosis of Fibromyalgia a few years ago and hypermobility, Brighton score 6/9 so not as bad as some though in my opinion he didn't check other places that I think there may be some hypermobility issues
Hello All, Good to have found this and I identify with lots that have been written about. I got a diagnosis of Fibromyalgia a few years ago and hypermobility, Brighton score 6/9 so not as bad as some though in my opinion he didn't check other places that I think there may be some hypermobility issues
Soracha36
in
Ehlers-Danlos Support UK
4 years ago
Baby with genetic disorder and pregnant again
Would anyone be able to help? I have a 10month old son who was diagnosed with William's syndrome a few weeks ago and I have just found out I am pregnant. Does anyone know the next steps, I was waiting to see a genetics counsellor however we are currently self isolating due to covid-19 and I'm to scared
Would anyone be able to help? I have a 10month old son who was diagnosed with William's syndrome a few weeks ago and I have just found out I am pregnant. Does anyone know the next steps, I was waiting to see a genetics counsellor however we are currently self isolating due to covid-19 and I'm to scared
Natasha213
in
Pregnancy and Parenting Support
4 years ago
RLS better but depression worse
So with my doctors help, I’ve decided to come off of Citalopram 40mg daily. My circumstances have greatly changed and I felt it was a good time to see if I could come off. I am completely weened off now. Surprisingly my RLS has been getting better but I’m now feeling that low mood and foggy feeling return
So with my doctors help, I’ve decided to come off of Citalopram 40mg daily. My circumstances have greatly changed and I felt it was a good time to see if I could come off. I am completely weened off now. Surprisingly my RLS has been getting better but I’m now feeling that low mood and foggy feeling return
Hidden
in
Restless Legs Syndrome
4 years ago
2nd night with no sleep
Hi, I’m only 17 and I started noticing symptoms of RLS at the beginning of this year once I started taking my antidepressants (Lexapro). When I told my doctor she just lowered my dosage which was helpful for a bit but it eventually got worse again. About a month ago I decided to stop taking my antidepressants
Hi, I’m only 17 and I started noticing symptoms of RLS at the beginning of this year once I started taking my antidepressants (Lexapro). When I told my doctor she just lowered my dosage which was helpful for a bit but it eventually got worse again. About a month ago I decided to stop taking my antidepressants
Janis67J
in
Restless Legs Syndrome
4 years ago
For women with low ovarian reserve hoping to restart IVF
I have Severely diminished ovarian reserve (DOR) and I am desperate to be able to do IVF again. I came across an article of the British Fertility Society. They are currently reviewing members‘ proposals on next steps. I emailed my clinic and asked them to email the BFS to request that treatment can
I have Severely diminished ovarian reserve (DOR) and I am desperate to be able to do IVF again. I came across an article of the British Fertility Society. They are currently reviewing members‘ proposals on next steps. I emailed my clinic and asked them to email the BFS to request that treatment can
Lilly12255
in
Fertility Network UK
4 years ago
Anyone with DOR hoping for treatment
Hi, I have DOR and I am desperate to be able to do IVF again. I came across an article of the British Fertility Society. They are currently reviewing members‘ proposals on next steps. I emailed my clinic and asked them to email the BFS to request that treatment can resume for women with DOR. For us
Hi, I have DOR and I am desperate to be able to do IVF again. I came across an article of the British Fertility Society. They are currently reviewing members‘ proposals on next steps. I emailed my clinic and asked them to email the BFS to request that treatment can resume for women with DOR. For us
Lilly12255
in
Fertility Network UK
4 years ago
Xarasho
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
Xarasho
in
Restless Legs Syndrome
4 years ago
Determined to walk Darcy this morning
3 weeks now I have walked Darcy 2 miles every morning. Woke this morning stiff and sore had to take codeine, Etoricoxib and paracetamol but determined to walk. 1/2 a mile less but it took an extra 45 minutes. Hate when this disease beats me I’m a bad looser. Thanks for listening to my grump. I’m off
3 weeks now I have walked Darcy 2 miles every morning. Woke this morning stiff and sore had to take codeine, Etoricoxib and paracetamol but determined to walk. 1/2 a mile less but it took an extra 45 minutes. Hate when this disease beats me I’m a bad looser. Thanks for listening to my grump. I’m off
Hidden
in
NRAS
4 years ago
BFN CD1 Not this month 😞
Af arrived bang on time this evening. While I didn’t quite “feel it” over the entire 2ww, I cannot help but feel extremely disappointed. By the time my ivf clinic reopens, there will be a long waiting list. I was half way through my monitoring cycle only, so I surely won’t be one of their priority patients
Af arrived bang on time this evening. While I didn’t quite “feel it” over the entire 2ww, I cannot help but feel extremely disappointed. By the time my ivf clinic reopens, there will be a long waiting list. I was half way through my monitoring cycle only, so I surely won’t be one of their priority patients
Mmmpudding
in
Fertility Network UK
4 years ago
Does anyone else have Hot Feet with RLS?
Hi Everyone, It's so interesting to read everyone's experiences with RLS. I have had RLS since I was about 15 (I am 50 now). I used to call it "Hot Feet Syndrome" because I had never heard of RLS, and it is only my feet that are affected. My feet get super hot most nights, I have to sleep with them
Hi Everyone, It's so interesting to read everyone's experiences with RLS. I have had RLS since I was about 15 (I am 50 now). I used to call it "Hot Feet Syndrome" because I had never heard of RLS, and it is only my feet that are affected. My feet get super hot most nights, I have to sleep with them
TwitchyFeet50
in
Restless Legs Syndrome
4 years ago
Body odor from thiamine hydrochloride?
Hi, I am newly diagnosed with PD and have not started with any medication yet. But I take a daily "coctail" of: B1 Thiamine hydrochloride powder 2 ml (close to 1 g) NAC powder 1,5 g l-citrulline 1 g Glutathione 200 mg Mannitol 4 ml Creatine occationally My spouse is complaining about my new body
Hi, I am newly diagnosed with PD and have not started with any medication yet. But I take a daily "coctail" of: B1 Thiamine hydrochloride powder 2 ml (close to 1 g) NAC powder 1,5 g l-citrulline 1 g Glutathione 200 mg Mannitol 4 ml Creatine occationally My spouse is complaining about my new body
Mimer
in
Cure Parkinson's
4 years ago
Just when your getting somewhere
It started raining yesterday evening and as the night wore on I got stiffer and my balance was a bit dodgy. Restless night burning feet and ankles ligaments stiff and sore. Was also very hot. Paracetamol and Etoricoxib before I could get out of bed. I have had a really good run after a med tweak . Had
It started raining yesterday evening and as the night wore on I got stiffer and my balance was a bit dodgy. Restless night burning feet and ankles ligaments stiff and sore. Was also very hot. Paracetamol and Etoricoxib before I could get out of bed. I have had a really good run after a med tweak . Had
Hidden
in
NRAS
4 years ago
Restless Legs in Pregnancy
Hi everyone, I am not even sure why I am writing this message - partly because I want to vent; partly because I would like some advice. I have had about 2-3 episodes of mild and short lasting (3ish days) of restless legs outside of pregnancy. I remember the restless legs to be quite bad in my first pregnancy
Hi everyone, I am not even sure why I am writing this message - partly because I want to vent; partly because I would like some advice. I have had about 2-3 episodes of mild and short lasting (3ish days) of restless legs outside of pregnancy. I remember the restless legs to be quite bad in my first pregnancy
TanjaRLS
in
Restless Legs Syndrome
4 years ago
8 days late
5 years ago i was on the nuvaring as well took it out in May and was pregnant by the begining of August. every test i took back then came out negative. finally after 2 months of not having a period, i decided to test and had a bfp. went to the Dr and was 9 weeks pregnant with twins. My twins were born
5 years ago i was on the nuvaring as well took it out in May and was pregnant by the begining of August. every test i took back then came out negative. finally after 2 months of not having a period, i decided to test and had a bfp. went to the Dr and was 9 weeks pregnant with twins. My twins were born
flogrc25
in
Pregnancy and Parenting Support
4 years ago
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