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PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
5 months ago
Are we on the right track?
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Kathyford
in
Advanced Prostate Cancer
1 month ago
ADT & Mets
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
CJ1958
in
Advanced Prostate Cancer
5 months ago
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Long term results of high dose radiation and long term ADT
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
Don_1213
in
Advanced Prostate Cancer
5 months ago
Part Rant and Zoladex Question
Oh, the glamorous world of injections and their elusive promises! There I was declaring "No more injections for me!" But those consultants have a way of making you believe that they [i]"will help to shrink the fibroids so we can reach the endometriosis easier". [/i] The next line was basically [i]"It's
Oh, the glamorous world of injections and their elusive promises! There I was declaring "No more injections for me!" But those consultants have a way of making you believe that they [i]"will help to shrink the fibroids so we can reach the endometriosis easier". [/i] The next line was basically [i]"It's
SimplyDeeDee
in
Endometriosis UK
5 months ago
AlteraAI test
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
7OaksTom
in
Advanced Prostate Cancer
5 months ago
"8mm sclerotic focus noted T12 vertebrae within left superior acetabulum"
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
jjpeabody
in
Advanced Prostate Cancer
1 month ago
PET Scan Results
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Murph256
in
Advanced Prostate Cancer
5 months ago
Mosaic Medical Functional Medicine
Hello! If anyone has had any experience of using Mosaic Medical for balancing HRT and Thyroid Medication please could you Private Message me your thoughts?
Hello! If anyone has had any experience of using Mosaic Medical for balancing HRT and Thyroid Medication please could you Private Message me your thoughts?
MissMonty
in
Thyroid UK
5 months ago
Exhausted and cold
I've not got a Thyroid diagnosis if you see my previous posts it went be hyper 2022. My cortisol levels was low on a slavia test which I don't know how to treat. My temperature has gone from being mild fever 38° to now 36.2° first thing in the mornings. I'm being treated for a embedded uti for 5 years
I've not got a Thyroid diagnosis if you see my previous posts it went be hyper 2022. My cortisol levels was low on a slavia test which I don't know how to treat. My temperature has gone from being mild fever 38° to now 36.2° first thing in the mornings. I'm being treated for a embedded uti for 5 years
France92
in
Thyroid UK
5 months ago
New data about ARASENS trial: it seems to work well after longer observation
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Maxone73
in
Advanced Prostate Cancer
5 months ago
Red Light Therapy - Only Useful for a year?
I'm considering purchasing Symbyx's Red Light Helmet, and I would greatly appreciate comments by those who've used the device, since it ain't cheap. I'd also like to hear from people who've tried other red light devices. Finally, I read a comment by some neurologist saying that the red light helmets
I'm considering purchasing Symbyx's Red Light Helmet, and I would greatly appreciate comments by those who've used the device, since it ain't cheap. I'd also like to hear from people who've tried other red light devices. Finally, I read a comment by some neurologist saying that the red light helmets
Alock2020
in
Cure Parkinson's
10 months ago
Great paper on long-term side effects of various treatments for PCa..
You may need to create a guest account to view this - but it's worth it: https://jamanetwork.com/journals/jama/fullarticle/2814131 It's a paper (2024) of a study of long term side effects, treatment effectiveness and mortality based on 4 different treatments (2 only for high-risk treatments.) The
You may need to create a guest account to view this - but it's worth it: https://jamanetwork.com/journals/jama/fullarticle/2814131 It's a paper (2024) of a study of long term side effects, treatment effectiveness and mortality based on 4 different treatments (2 only for high-risk treatments.) The
Don_1213
in
Advanced Prostate Cancer
5 months ago
What is my best treatment option?
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
davidw777
in
Advanced Prostate Cancer
5 months ago
Help, bad Decipher results, this changes everything, please advise (NE WI area but will travel)
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
AliceinW57
in
Prostate Cancer Network
5 months ago
HRT Patches Concern
I recently switched to transdermal HRT tablets from oral HRT, I'm not convinced, firstly because of my very abrupt menopause,mine was like falling off a tall building 🗼rather than a gentle decline. So I was taking 1mg estradiol and I femoston conti 1/10 tablet a day for 7 years making 2mg oestrogen
I recently switched to transdermal HRT tablets from oral HRT, I'm not convinced, firstly because of my very abrupt menopause,mine was like falling off a tall building 🗼rather than a gentle decline. So I was taking 1mg estradiol and I femoston conti 1/10 tablet a day for 7 years making 2mg oestrogen
Sparklingsunshine
in
Thyroid UK
5 months ago
Protecting our Manhood
OK, I'm going to be open and honest and looking for the same from my fellow compatriots. From what I know, ADT, once it gets going, will physically affect our family jewels. Shrinkage is one of the things that is likely to happen. What is the best way to try and reduce these effects? I see that
OK, I'm going to be open and honest and looking for the same from my fellow compatriots. From what I know, ADT, once it gets going, will physically affect our family jewels. Shrinkage is one of the things that is likely to happen. What is the best way to try and reduce these effects? I see that
CJ1958
in
Prostate Cancer Network
5 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
5 months ago
WORRIED ABOUT REOCCURRENCE???
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
JWS13
in
Advanced Prostate Cancer
4 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
5 months ago
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