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Anal fissure
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Dubher
in
IBS Network
4 months ago
Xeloda
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
YogaGRL52
in
SHARE Metastatic Breast Cancer
7 months ago
Biopsy Results
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Mindini1964
in
The Roy Castle Lung Cancer Foundation
7 months ago
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My Stuffy Head
Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to prevent my body from a period of time without enough B12 available for healing. 50 mg of B6 in the form of P-5-P twice a day to prevent B6 deficiency
Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to prevent my body from a period of time without enough B12 available for healing. 50 mg of B6 in the form of P-5-P twice a day to prevent B6 deficiency
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
AML update
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Otterfield
in
MPN Voice
7 months ago
Please help 🙏
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Irismay
in
Pernicious Anaemia Society
4 months ago
Does biopsy spread cancer?
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
Eadgbe
in
Prostate Cancer Network
7 months ago
Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
7 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Prostate Cancer Network
7 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now.
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
Docetaxel not working so stopped
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
Benkaymel
in
Advanced Prostate Cancer
7 months ago
HIFU 2023 article does not seem positive
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
A0007720
in
Prostate Cancer Network
7 months ago
Promising, especially for people with LBD mutation: NEJM Evidence publishes results from Phase I/IIa CYPIDES trial with ODM-208
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
Maxone73
in
Advanced Prostate Cancer
7 months ago
Clinical trial NCT05898399: for BRCA (ATM as well I suppose) mutations
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Maxone73
in
Advanced Prostate Cancer
7 months ago
Celiac disease or Endo?
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
KB1987
in
Endometriosis UK
4 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Terrified
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
djroo
in
Colon Cancer Connected
4 months ago
potential colorectal cancer
Hi, I am 23 and currently stressing whilst awaiting my colonoscopy. About a year about I started seeing blood in my stool. It would cause the water to go red and be intertwined with the stool. I have always been told I suffer from IBS and intolerant to wheat and gluten. For over a year and a
Hi, I am 23 and currently stressing whilst awaiting my colonoscopy. About a year about I started seeing blood in my stool. It would cause the water to go red and be intertwined with the stool. I have always been told I suffer from IBS and intolerant to wheat and gluten. For over a year and a
Sheldomtheshrimp
in
Colon Cancer Connected
4 months ago
Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
7 months ago
Hoping for some coping advice
Hi all, I’ve suffered with IBS for years, had colonoscopy, endoscopy and CT scan end 2021, all clear. Recently had proctitis (treated well) but now my bowels have gone crazy and new feelings I’ve never had!! Really bad bloating, gurgling, stomach cramps pain under left rib, going into back. IBS -
Hi all, I’ve suffered with IBS for years, had colonoscopy, endoscopy and CT scan end 2021, all clear. Recently had proctitis (treated well) but now my bowels have gone crazy and new feelings I’ve never had!! Really bad bloating, gurgling, stomach cramps pain under left rib, going into back. IBS -
Dh19
in
IBS Network
4 months ago
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