Canadian Organization for Rare Disorders | HealthUnlocked

My son has Agenesis of the Corpus collosum I was wondering if there is anyone else with the condition, or a parent of a child ?

Hi. I'm sick since one year. I just paid a doctor to run more test because my gp don't want to. Everything came back negative. The doctor told me to wait for...

Hello every one , is there anyone experience hearing voices from air conditioning , Walls or even the sky , I know it's sort of mental disorder, please if...

I have Oral Facial Digital Syndrome Type 1 with XXX Chromosomes. It causes fatality to male fetuses, of which I had 9 miscarriages and 1 stillbirth. Diagnosed...

In 1974 I was tentatively dx'd with MS. in 2004 following a collapse exiting an elevator and consequent MRI, the appearance of periventricular subcoritcal...

I was diagnosed with bronchitis in November of 2018. After 3 rounds of steroids and antibiotics I finally got better. Once the new year came in I started...

Wondering if there is a thread on this site concerning PMR and prednisone tapering experiences

Hi, I'm new to this group. Just saw a neurologist/epilepsy specialist as my neurologist wasn't sure if I was having seizures but they weren't caught during the...

Dear friends I hope you're all doing well Please anyone whose aware or knowledgeable enough about Electromagnetic hypersensitivity disorder please please...

If I have these given analysis like below, what does they exactly stand for? MCH˭ 24.9pg Fe˭ 23 Ferritin˭ 3.8ng/dl vit B12˭89pg/dl Nitrogen bridge˭ 5.61mg/dl...

Upon standing, walking, bending, etc. my HR increases into the 150 -170s'. My B/P remains normal ( in low range for me). The 'fight or flight' response is...

Hi everyone, We are a group of University students doing a volunteer project with a cancer charity, and we’re researching the methods that charities interact...

Each rare disease affects only a small number of individuals but collectively we are almost 10% of the population. But there is very little awareness of rare...

Often it's the best way of sharing is through specific questions and answers. So if there's any particular question that someone in this community could help...

Welcome and please make yourself at home. The goal of this community is to provide a place where you can share experiences, support, and information about the...