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Does this make sense to anyone?
I have 6 or 7 spinal
fractures
, all lumbar and T 12. I have chronic pain once I have been upright for a few hours. This includes pain up the left side of my back and especially my left shoulder, neck and head which has been getting worse over the last few months and keeps me awake at night.
I have 6 or 7 spinal
fractures
, all lumbar and T 12. I have chronic pain once I have been upright for a few hours. This includes pain up the left side of my back and especially my left shoulder, neck and head which has been getting worse over the last few months and keeps me awake at night.
wisewoman108
in
Bone Health and Osteoporosis UK
7 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
8 months ago
Update
The Endocrinologist who is messing with my thyroid wanted me to have another DEXA to assess where I am now and I was delighted that it reported my density was normal for my age, I had low risk of
fractures
and didn’t need treatment other than calcium that I already take.
The Endocrinologist who is messing with my thyroid wanted me to have another DEXA to assess where I am now and I was delighted that it reported my density was normal for my age, I had low risk of
fractures
and didn’t need treatment other than calcium that I already take.
EdithWales
in
PMRGCAuk
4 months ago
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Xeloda coming to an end!
But mild progression in bones with 2 rib
fractures
. But more shrinkage to liver. Doing radiation next week and meeting for treatment change . I know Enhertu was mentioned as being her next line of treatment.
But mild progression in bones with 2 rib
fractures
. But more shrinkage to liver. Doing radiation next week and meeting for treatment change . I know Enhertu was mentioned as being her next line of treatment.
Flower1513
in
SHARE Metastatic Breast Cancer
2 months ago
what to expect
Unsurprisingly I have suffered two further
fractures
. I am considering asking to be transferred to rheumatology. But don't know if there’s more support with that department. I live in the Bournemouth area if anyone on here has experience there.
Unsurprisingly I have suffered two further
fractures
. I am considering asking to be transferred to rheumatology. But don't know if there’s more support with that department. I live in the Bournemouth area if anyone on here has experience there.
philippa1412
in
Bone Health and Osteoporosis UK
8 months ago
What I use for my neuropathy
Certain alt treatment I am taking has temporary neuropathy as a listed side effect treatable with daily dosage of Benfotiamine, R-Lipoic-Acid- and optional use of Acetyl-L-Carnitine all suppliments and to add to this list I will be adding Lions Mane mushroom , having a neuroregenerative effect. also
Certain alt treatment I am taking has temporary neuropathy as a listed side effect treatable with daily dosage of Benfotiamine, R-Lipoic-Acid- and optional use of Acetyl-L-Carnitine all suppliments and to add to this list I will be adding Lions Mane mushroom , having a neuroregenerative effect. also
85745
in
Advanced Prostate Cancer
8 months ago
It's been a while
Hi, although I don't post much I do look in most days, I had a TBI in 2016 with skull
fractures
and a subarachnoid haemorrhage and although I didn't know at the time I also had damaged my cervical spine, I fell downstairs and the hospital never checked my spine until 8 months later when the scan showed
Hi, although I don't post much I do look in most days, I had a TBI in 2016 with skull
fractures
and a subarachnoid haemorrhage and although I didn't know at the time I also had damaged my cervical spine, I fell downstairs and the hospital never checked my spine until 8 months later when the scan showed
twice
in
Headway
4 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
8 months ago
pain from fractures or pmr joining the party?
have been trying to judge whether pain and weakness in upper arms is a knock on from the fractured vertebrae (t9 and L3) or is it pmr creeping in. Very reluctant to up pred but don’t want to get into PmrPro’s bucket syndrome either! So, help! Would 3 days at higher dose be long enough to test that and
have been trying to judge whether pain and weakness in upper arms is a knock on from the fractured vertebrae (t9 and L3) or is it pmr creeping in. Very reluctant to up pred but don’t want to get into PmrPro’s bucket syndrome either! So, help! Would 3 days at higher dose be long enough to test that and
Japsquar
in
PMRGCAuk
8 months ago
Kyphosis
Does anyone else find that this is one of the worst features of vertebral
fractures
from OP? I do think it must add to further strain on other parts of the back etc. why I can't stand /walk for more than a few minutes at a time.? Muscle relaxants make no difference . Exercise makes pain worse.
Does anyone else find that this is one of the worst features of vertebral
fractures
from OP? I do think it must add to further strain on other parts of the back etc. why I can't stand /walk for more than a few minutes at a time.? Muscle relaxants make no difference . Exercise makes pain worse.
fraid
in
Bone Health and Osteoporosis UK
8 months ago
Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
8 months ago
Orchiectomy and Psa
Can anyone who has had Bilateral Ochiectomy tell me if there is a certain psa level required before surgery can be done. Thanks Guys Knittingque
Can anyone who has had Bilateral Ochiectomy tell me if there is a certain psa level required before surgery can be done. Thanks Guys Knittingque
Knittingque
in
Advanced Prostate Cancer
8 months ago
Do you that have had Orchiectomy still take ATD Medication?
I’ve been told that I will be on ATD meds for life, I’m 63 and have been taking Lupron and Zytiga for going on two years. I asked my MO about Orchiectomy and he said if I did it he would still recommend Lupron. Can you guys please share your thoughts and experiences? Thank you in advance
I’ve been told that I will be on ATD meds for life, I’m 63 and have been taking Lupron and Zytiga for going on two years. I asked my MO about Orchiectomy and he said if I did it he would still recommend Lupron. Can you guys please share your thoughts and experiences? Thank you in advance
OldGuysRule
in
Advanced Prostate Cancer
8 months ago
Compression fracture or something worse?
My question for those familiar with compression
fractures
, do they result in such extreme weakness? He is getting to the place where he can't walk at all! I'm concerned about the CNS lymphoma being in his spinal column, but we won't know until the MRI.
My question for those familiar with compression
fractures
, do they result in such extreme weakness? He is getting to the place where he can't walk at all! I'm concerned about the CNS lymphoma being in his spinal column, but we won't know until the MRI.
Lynsi13
in
Advanced Prostate Cancer
4 months ago
Opinions on THC and CBD gummies for cancer pain.
Have you or do you use gummies to help manage cancer pain? Do you use THC, or CBD, or blended? How much do you take in 1 dose? How often per day do you dose? How effective has it been? Do you use it instead of opiates or as an add on? Any side effects to be aware of? Thanks in advance!
Have you or do you use gummies to help manage cancer pain? Do you use THC, or CBD, or blended? How much do you take in 1 dose? How often per day do you dose? How effective has it been? Do you use it instead of opiates or as an add on? Any side effects to be aware of? Thanks in advance!
skiingfiend
in
Advanced Prostate Cancer
8 months ago
Firmagon vs Lupron
So, the question is what are the up or downs if switching from Firmagon to Lupron. I used Orgovyx until it didn't work, switched to Firmagon. Wanted either due to family history with heart issues. Dad, uncle's, brothers, all having issues. One brother recently having a major HA... But the convenience
So, the question is what are the up or downs if switching from Firmagon to Lupron. I used Orgovyx until it didn't work, switched to Firmagon. Wanted either due to family history with heart issues. Dad, uncle's, brothers, all having issues. One brother recently having a major HA... But the convenience
Cooolone
in
Advanced Prostate Cancer
8 months ago
Pluvicto (lutetium Lu 177
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
anonymoose2
in
Advanced Prostate Cancer
8 months ago
Firmagon seems to have stopped suppressing testosterone
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
johnscats
in
Advanced Prostate Cancer
8 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
8 months ago
Has anyone knowledge if...
I have been considering trying 'Theraworx' for nocturnal leg cramps; it has many ingredients including vita. E though the E should be a small amount. Does anyone have any real knowledge if this product would effect PSA levels, or have any effect on the PCa...thank you
I have been considering trying 'Theraworx' for nocturnal leg cramps; it has many ingredients including vita. E though the E should be a small amount. Does anyone have any real knowledge if this product would effect PSA levels, or have any effect on the PCa...thank you
900312611
in
Advanced Prostate Cancer
8 months ago
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