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Treatmant for cll
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
nikolle
in
CLL America Support
6 years ago
Second day of first FCR
So second dose of FCR with the long dose of Rituximab. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now! Drinking lots of fluid as per all your wise words and looking forward
So second dose of FCR with the long dose of Rituximab. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now! Drinking lots of fluid as per all your wise words and looking forward
Mandy56
in
CLL Support
6 years ago
First. FCR treatment
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Mandy56
in
CLL Support
6 years ago
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Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
Hidden
in
CLL Support
6 years ago
Starting FCR on Monday
After lots of ups and downs, I am on the FLAIR trial and starting FCR on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go? I was hoping to book a holiday in
After lots of ups and downs, I am on the FLAIR trial and starting FCR on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go? I was hoping to book a holiday in
Mandy56
in
CLL Support
6 years ago
What should I ask?
Going on Tuesday for my second opinion @Moffitt Center in Tampa. I was there last month for initial consultation. They will go over blood work/findings and recommend which treatment. I have had CLL for over 11 years. Never staged. I have list of questions if they recommend FCR chemo and list if it's
Going on Tuesday for my second opinion @Moffitt Center in Tampa. I was there last month for initial consultation. They will go over blood work/findings and recommend which treatment. I have had CLL for over 11 years. Never staged. I have list of questions if they recommend FCR chemo and list if it's
GMa27
in
CLL Support
6 years ago
Zarzio shots causing severe horrendous pain- any proven help for muscle and bone issues?
On and off neutropenic for two months now and now taking zarzio shots every other day but causing major debilitating pain in lower back to hips and shooting down both sides of legs making me bedridden... I’m 49 yrs old and don’t wanna keep taking pain meds . The FCR didn’t work on me and nodes are
On and off neutropenic for two months now and now taking zarzio shots every other day but causing major debilitating pain in lower back to hips and shooting down both sides of legs making me bedridden... I’m 49 yrs old and don’t wanna keep taking pain meds . The FCR didn’t work on me and nodes are
Luckyliss
in
CLL Support
6 years ago
What is the best first-line treatment combination for CLL?
I’m taking the liberty of cross posting this post I wrote from the UK CLL Facebook group. I’m trying to get my own head round what are the best first line treatments for CLL. Not least because I know that I’m obviously quite likely to need treatment at some point. I believe in the power of many
I’m taking the liberty of cross posting this post I wrote from the UK CLL Facebook group. I’m trying to get my own head round what are the best first line treatments for CLL. Not least because I know that I’m obviously quite likely to need treatment at some point. I believe in the power of many
AdrianUK
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Night sweats are back
Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
cwturley
in
CLL Support
6 years ago
Chemo
Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Flabal
in
CLL Support
6 years ago
CLL and sinusitis
Hi 9 years ago I was diagnosed with CLL. I have since had FCR and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of sinusitis. Does anyone else have experience of this? Anyone got any advice or do I keep battling on?!
Hi 9 years ago I was diagnosed with CLL. I have since had FCR and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of sinusitis. Does anyone else have experience of this? Anyone got any advice or do I keep battling on?!
hammyj
in
CLL Support
6 years ago
Still neutropenic 5 months post FCR :-(
Hi all I am wondering if anyone else who has been through the FCR regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's really getting me down now. I still cannot return to work, in fact I may have to resign within the next few weeks as it's now been 11 months since
Hi all I am wondering if anyone else who has been through the FCR regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's really getting me down now. I still cannot return to work, in fact I may have to resign within the next few weeks as it's now been 11 months since
Sucee
in
CLL Support
6 years ago
The unspeakable bowel issues after chemo..... Do you ever get back to normal? From Beth, Nic, Del, and sue... And Maria
So in our very random chats with a number of friends on HU, we got talking about the issue of our bowels which just haven't returned to normal after chemo.. Fcr to be specific. So.. 1. Very loose..... 2. When you have to go, YOU HAVE TO GO! 3. YOU GO MORE... UP TO 5 TIMES A DAY! 4.COLOUR RANGE.
So in our very random chats with a number of friends on HU, we got talking about the issue of our bowels which just haven't returned to normal after chemo.. Fcr to be specific. So.. 1. Very loose..... 2. When you have to go, YOU HAVE TO GO! 3. YOU GO MORE... UP TO 5 TIMES A DAY! 4.COLOUR RANGE.
Bethan49
in
CLL Support
6 years ago
Time to share
This is my first actual post, so apologies for its length, but have responded to other post’s on here. I am one of those silent types you see mentioned, my wife , London girl on here finally got me to join and so glad I did. About my CLL , diagnosed back in 01/15 , FCR on flair trial 11/16 for 6 rounds
This is my first actual post, so apologies for its length, but have responded to other post’s on here. I am one of those silent types you see mentioned, my wife , London girl on here finally got me to join and so glad I did. About my CLL , diagnosed back in 01/15 , FCR on flair trial 11/16 for 6 rounds
Dell49
in
CLL Support
6 years ago
Treatment for unmutated ighv
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has the unmutated gene? Thank you!
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has the unmutated gene? Thank you!
Hidden
in
CLL America Support
6 years ago
48 months after last FCR Treatment!
For almost four years I finished my 6th cycle of FCR. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment. Doing much gym and walking in fresh
For almost four years I finished my 6th cycle of FCR. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment. Doing much gym and walking in fresh
seoul
in
CLL Support
6 years ago
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