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I think all autoimmune Thyroiditis suffers should go gluten-free
As per the title, this is an opinion piece. Please see the disclaimer at the bottom that has been there since the start. I’m surprised the Thyroid UK site doesn’t say this already. I’m living proof of the dramatic impact, on anti-thyroid antibodies, that switching to a gluten-free diet can have. It
As per the title, this is an opinion piece. Please see the disclaimer at the bottom that has been there since the start. I’m surprised the Thyroid UK site doesn’t say this already. I’m living proof of the dramatic impact, on anti-thyroid antibodies, that switching to a gluten-free diet can have. It
mcnaugha
in
Thyroid UK
6 years ago
Rheumatoid Factor of 96 but Negative ANA test...what does that mean?
My name is Katherine and I am a 33 year old female. I have moving joint pain in pretty much every joint in my body (elbows, fingers, back, hips, knees, feet etc). My RF came back 96 but my ANA test came out negative. Can anyone explain what that means? Thanks so much!
My name is Katherine and I am a 33 year old female. I have moving joint pain in pretty much every joint in my body (elbows, fingers, back, hips, knees, feet etc). My RF came back 96 but my ANA test came out negative. Can anyone explain what that means? Thanks so much!
stevevdh
in
NRAS
6 years ago
PA without IF antibodies?
Hello PA Hive Mind! Newbie poster but have been researching my B12 def and also lurking here digesting all the amazing advice. I feel like I may have been misdiagnosed, and I now realise, probably undertreated and essentially left to languish for the last 4 years with worsening neuro symptoms and fatigue
Hello PA Hive Mind! Newbie poster but have been researching my B12 def and also lurking here digesting all the amazing advice. I feel like I may have been misdiagnosed, and I now realise, probably undertreated and essentially left to languish for the last 4 years with worsening neuro symptoms and fatigue
Portia1974
in
Pernicious Anaemia Society
6 years ago
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Advice please
Ferritin - 31 (30 - 400) Folate - 2.2 (2.5 - 19.5) Vitamin B12 - 197 (190 - 900) Vitamin D total 25 OH - 55.3 (50 - 75 suboptimal) Intrinsic factor antibodies - positive These were checked in April 2018. I take 3000iu vitamin D since September 2017 and 1 iron tablet since February 2017. GP said folate
Ferritin - 31 (30 - 400) Folate - 2.2 (2.5 - 19.5) Vitamin B12 - 197 (190 - 900) Vitamin D total 25 OH - 55.3 (50 - 75 suboptimal) Intrinsic factor antibodies - positive These were checked in April 2018. I take 3000iu vitamin D since September 2017 and 1 iron tablet since February 2017. GP said folate
Jaye8
in
Pernicious Anaemia Society
6 years ago
Advice B vitamins
Hi everyone, I have just finished my 6 loading doses of B12 injections. I gather I should have taken Folic Acid once started with them but I didn't realise at the time. I have in the cupboard some Vitamin B tablets and I wonder of you could advise whether they are suitable to take. Each tablet contains
Hi everyone, I have just finished my 6 loading doses of B12 injections. I gather I should have taken Folic Acid once started with them but I didn't realise at the time. I have in the cupboard some Vitamin B tablets and I wonder of you could advise whether they are suitable to take. Each tablet contains
Tanzanite55
in
Pernicious Anaemia Society
6 years ago
I now don’t know where to turn !!
In short, I’ve had low b12 for over two year, yesterday I had a meeting with my gp re them refusing to giving me b12 injections, I pointed out that by refusing they are not adhering to Nice guidelines. They are standing firm and saying that if my intrinsic factor test comes back negative ( which it
In short, I’ve had low b12 for over two year, yesterday I had a meeting with my gp re them refusing to giving me b12 injections, I pointed out that by refusing they are not adhering to Nice guidelines. They are standing firm and saying that if my intrinsic factor test comes back negative ( which it
Hidden
in
Pernicious Anaemia Society
6 years ago
Help required Please for my daughter badly fatigued,breathless and dizzy!!
My daughter aged 31 has recently had some blood tests done because of the symptoms described above. I have included her results plus normal range in brackets. Vit B12 850 (200-883) I had been given her Vit B12 injections, but stopped for four months ago so it has stayed surprisingly high, not sure
My daughter aged 31 has recently had some blood tests done because of the symptoms described above. I have included her results plus normal range in brackets. Vit B12 850 (200-883) I had been given her Vit B12 injections, but stopped for four months ago so it has stayed surprisingly high, not sure
spacestar
in
Thyroid UK
6 years ago
New and confused
Hello everyone, I’ve been reading lots of posts here and found much of help, many thanks. I have recently had blood tests to discover why I had a set of symptoms including anxiety, fatigue and raised heart rate on mild exertion, dizziness, tinnitus, palpitations and tingly feet and hands. I thought it
Hello everyone, I’ve been reading lots of posts here and found much of help, many thanks. I have recently had blood tests to discover why I had a set of symptoms including anxiety, fatigue and raised heart rate on mild exertion, dizziness, tinnitus, palpitations and tingly feet and hands. I thought it
Cardigan167
in
Pernicious Anaemia Society
6 years ago
Intrinsic factor levels
I received the results of my intrinsic factor levels back today... 2u-ml (0-24) Could someone please help me understand is my result is a normal level I’m not sure if 0 means the lower end meaning 2 is not very good or if it’s a good result because it’s not right up by 24 ??? Thank you in advance
I received the results of my intrinsic factor levels back today... 2u-ml (0-24) Could someone please help me understand is my result is a normal level I’m not sure if 0 means the lower end meaning 2 is not very good or if it’s a good result because it’s not right up by 24 ??? Thank you in advance
Churchy12
in
Thyroid UK
6 years ago
Consultant wants me off ALL thyroid medication!
The consultant treating me for osteoporosis has told my Endocrinologist that I should cut down then stop off All my Thyroid medication!! The osteoporosis Consultant says being on nature thyroid is he believes causing my severe osteoporosis. I have found out recently that I have severe osteoporosis
The consultant treating me for osteoporosis has told my Endocrinologist that I should cut down then stop off All my Thyroid medication!! The osteoporosis Consultant says being on nature thyroid is he believes causing my severe osteoporosis. I have found out recently that I have severe osteoporosis
spacestar
in
Thyroid UK
6 years ago
Struggling to understand the possibilities
Hi there, I hope you guys can help. I have been having steadily worsening symptoms for about four years which include: numbness in feet, tingling in feet, balance disturbances and drunken gait, extreme tiredness, diarrhea. I feel I have been fobbed off for years with talk of slipped discs (no pain
Hi there, I hope you guys can help. I have been having steadily worsening symptoms for about four years which include: numbness in feet, tingling in feet, balance disturbances and drunken gait, extreme tiredness, diarrhea. I feel I have been fobbed off for years with talk of slipped discs (no pain
Hidden
in
Pernicious Anaemia Society
6 years ago
ACID REFLUX AND PPI's - the implications for levels of Vitamin B12.
[ Poster's comment. "Despite being the principal learned article on the subject this is an elegant and readily understood summary of the extraordinarily subtle and complex processes involved in the ingestion and acquisition of this vital, life-sustaining substance."] The Mechanism for Omeprazole Induced
[ Poster's comment. "Despite being the principal learned article on the subject this is an elegant and readily understood summary of the extraordinarily subtle and complex processes involved in the ingestion and acquisition of this vital, life-sustaining substance."] The Mechanism for Omeprazole Induced
gutlesswonder
in
Oesophageal & Gastric Cancer
6 years ago
How long does it take to see an improvement
Hello My name is Jade I started hydroxocobalamin on the NHS 18 months ago 1 monthly for few months and was then only getting them every 2-3 months. As this wasn't helping and my neurological symptoms got worse I started having them at home after getting them from b12d charity and Intravita I have been
Hello My name is Jade I started hydroxocobalamin on the NHS 18 months ago 1 monthly for few months and was then only getting them every 2-3 months. As this wasn't helping and my neurological symptoms got worse I started having them at home after getting them from b12d charity and Intravita I have been
Jadeo0909
in
Pernicious Anaemia Society
6 years ago
Is this Pernicious Anaemia?
My god-daughter has B12, folate and iron deficiencies. She has tested positive for Hashmimoto's and for perietal cell antibodies, but not for Intrinsic Factor antibodies. She is considering joining the Pernicious Anaemia Society, and suffers severely from the majority of symptoms associated with Pernicious
My god-daughter has B12, folate and iron deficiencies. She has tested positive for Hashmimoto's and for perietal cell antibodies, but not for Intrinsic Factor antibodies. She is considering joining the Pernicious Anaemia Society, and suffers severely from the majority of symptoms associated with Pernicious
njames50
in
Pernicious Anaemia Society
6 years ago
Confused
Hi everyone There are so many well informed people on this forum. I do hope you can guide me. Four years ago my blood test showed B12- 300. Intrinsic factor test was positive and parietal cells negative. As soon as I knew my B12 was slightly low and I have a family history of pernicious anaemia I used
Hi everyone There are so many well informed people on this forum. I do hope you can guide me. Four years ago my blood test showed B12- 300. Intrinsic factor test was positive and parietal cells negative. As soon as I knew my B12 was slightly low and I have a family history of pernicious anaemia I used
mocr
in
Pernicious Anaemia Society
6 years ago
Intrinsic factor
If one doesn't have an intrinsic factor, will vitamin B 12 tablets be absorbed by the stomach?
If one doesn't have an intrinsic factor, will vitamin B 12 tablets be absorbed by the stomach?
Jcilom
in
Pernicious Anaemia Society
6 years ago
Sugar low feeling, having to keep eating to stop feeling ill?
Hi All, Has anybody ever experienced a sugar low feeling - feeling like you need to eat to stop yourself feeling faint/ill, usually worst in mornings and before lunch time, body goes very cold when this happens. It's like I need to keep eating very regularly or I get very ill quickly. Endo has checked
Hi All, Has anybody ever experienced a sugar low feeling - feeling like you need to eat to stop yourself feeling faint/ill, usually worst in mornings and before lunch time, body goes very cold when this happens. It's like I need to keep eating very regularly or I get very ill quickly. Endo has checked
mistygrey
in
Thyroid UK
6 years ago
Intrinsic factor results waiting time NHS
Does anybody know how long the Intrinsic factor test results take to come back via the NHS? It will be a week tomorrow since I had the test but Gp has advised me it does take longer to come back? 🤔
Does anybody know how long the Intrinsic factor test results take to come back via the NHS? It will be a week tomorrow since I had the test but Gp has advised me it does take longer to come back? 🤔
mistygrey
in
Pernicious Anaemia Society
6 years ago
Another piece, another question (neg. ebv PCR)
This week's episode of "As the Stomach Turns" finds us with one question answered- no, I don't have 'mono' or a reactivation of Epstein Barr Virus. The question remains what caused my unusual 'positive' albeit a likely false positive. The Infectious Disease specialist has sent me back to my neuro or
This week's episode of "As the Stomach Turns" finds us with one question answered- no, I don't have 'mono' or a reactivation of Epstein Barr Virus. The question remains what caused my unusual 'positive' albeit a likely false positive. The Infectious Disease specialist has sent me back to my neuro or
DRunnerchick
in
LUPUS UK
6 years ago
Cyanocobalamin for two weeks.. Does my GP know what's going on with me or just winging it for now.
I had blood done 26/02/18 which came back positive for antibodies at my first endocrinology appt at hospital that appt I left with a script to start levothyroxine I am still awaiting an ultrasound which my GP said was for biopsy in letter to GP. I'm on levo (for life) iron (3 months) folic acid (2
I had blood done 26/02/18 which came back positive for antibodies at my first endocrinology appt at hospital that appt I left with a script to start levothyroxine I am still awaiting an ultrasound which my GP said was for biopsy in letter to GP. I'm on levo (for life) iron (3 months) folic acid (2
Gillyanna22
in
Thyroid UK
6 years ago
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