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Results/question after passing of Dad
We have finally received the Foundation One results. They listed 3 genomic findings of CDKN2A/B loss, microsatellite status MS-Stable, Tumor Mutation Burden-intermediate; 8 muts. There were no FDA approved or potential clinical trials. We have about 30 pages of medical terminology that we dont understand
We have finally received the Foundation One results. They listed 3 genomic findings of CDKN2A/B loss, microsatellite status MS-Stable, Tumor Mutation Burden-intermediate; 8 muts. There were no FDA approved or potential clinical trials. We have about 30 pages of medical terminology that we dont understand
SaratogaNYAnthony
in
Advanced Prostate Cancer
6 years ago
Arachidonic acid
Hello, I am the wife of a man who is 17 years post prostatectomy, 15 years post salvage radiation, participant in at least 4 clinical trials (not all with treatment goal) and beneficiary of one anti-CTLA 4 trial in which he was an exceptional responder....TMI? He is 68 years old, has bone metastases,
Hello, I am the wife of a man who is 17 years post prostatectomy, 15 years post salvage radiation, participant in at least 4 clinical trials (not all with treatment goal) and beneficiary of one anti-CTLA 4 trial in which he was an exceptional responder....TMI? He is 68 years old, has bone metastases,
msnik
in
Advanced Prostate Cancer
6 years ago
Side effects from Eliquis
I am now on 100 MG of Ibrance and
Faslodex
but after only 2 weeks my WBC and neutrophil count are so low I have had to hold it for 2 weeks. Has any one experienced a pulmonary embolism and been put on Eliquis and had nausea ? Does lowering the Ibrance dose improve your WBC ?
I am now on 100 MG of Ibrance and
Faslodex
but after only 2 weeks my WBC and neutrophil count are so low I have had to hold it for 2 weeks. Has any one experienced a pulmonary embolism and been put on Eliquis and had nausea ? Does lowering the Ibrance dose improve your WBC ?
Burgerde
in
SHARE Metastatic Breast Cancer
6 years ago
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Advanced prostate cancer-gleason 9 with lupron
My father was diagnosed with advanced prostate cancer-gleason 9. He had a bone scan last week that revealed 3 bone mets in his pelvis and his psa is currently at a .998. Doctors were shocked about the mets because his psa is so low. They started him on Lupron and Bicutamude under the brand name Casodex
My father was diagnosed with advanced prostate cancer-gleason 9. He had a bone scan last week that revealed 3 bone mets in his pelvis and his psa is currently at a .998. Doctors were shocked about the mets because his psa is so low. They started him on Lupron and Bicutamude under the brand name Casodex
mcom
in
Advanced Prostate Cancer
6 years ago
Possible side effects of drugs
I'm on Ibrance
Faslodex
and Xgeva. My ability to walk has been comprimised drastically and I've been experiencing numb feet at times. Has anyone else had any of these problems and if so can you offer any advice?
I'm on Ibrance
Faslodex
and Xgeva. My ability to walk has been comprimised drastically and I've been experiencing numb feet at times. Has anyone else had any of these problems and if so can you offer any advice?
Betbop
in
SHARE Metastatic Breast Cancer
6 years ago
PSA dropping but pain
My husband has been Lupron, casodex and finished upfront Docetaxel( 6 cycles finished in October). DX metastatic 2/1/2017 with PSA of 1044 at 47 yrs old. His PSA has steadily dropped to 2.4 as of 6 weeks ago. This week he’s experiencing pain in his back and ribs. Is this pain a probable sign of progression
My husband has been Lupron, casodex and finished upfront Docetaxel( 6 cycles finished in October). DX metastatic 2/1/2017 with PSA of 1044 at 47 yrs old. His PSA has steadily dropped to 2.4 as of 6 weeks ago. This week he’s experiencing pain in his back and ribs. Is this pain a probable sign of progression
Blair77
in
Advanced Prostate Cancer
6 years ago
Elevated ca125!
I have breast ca with Mets to the t2 area of the bone and have been doing well on ibrance and
faslodex
for about two years. Last month my ca125 was 30 and I was hysterical as it never went above 14! So this month is went over the normal range to 52!
I have breast ca with Mets to the t2 area of the bone and have been doing well on ibrance and
faslodex
for about two years. Last month my ca125 was 30 and I was hysterical as it never went above 14! So this month is went over the normal range to 52!
Epinto
in
SHARE Metastatic Breast Cancer
6 years ago
Thanks all
I have received quite a few replies following my posts about stopping treatment. I have since deleted the post while trying to delete the picture that accompanied it, that was a mistake. Thank you all for the positive and warm replies to my post. I realize that stopping treatment is not something that
I have received quite a few replies following my posts about stopping treatment. I have since deleted the post while trying to delete the picture that accompanied it, that was a mistake. Thank you all for the positive and warm replies to my post. I realize that stopping treatment is not something that
WayneA
in
Advanced Prostate Cancer
6 years ago
Slow recovery from Chemo, Round 4, Session 2
PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch of therapies tried, and failed. After my first chemo session of 6 cycles from 7/18/16 thru 10/31/16, along with 3 month Lupron shots and Zometa
PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch of therapies tried, and failed. After my first chemo session of 6 cycles from 7/18/16 thru 10/31/16, along with 3 month Lupron shots and Zometa
ontheroad589
in
Advanced Prostate Cancer
6 years ago
A wife's introductory post
EliasJ is my husband and in December of 2015 he was diagnosed with Advanced Prostate Cancer - pT3BM1NO/Gleason 4+3=7. His PSA level then was 1,142 - a shocking number. He was totally symptom-less until a couple of weeks prior to official diagnosis. Because he was declared as being beyond surgery and
EliasJ is my husband and in December of 2015 he was diagnosed with Advanced Prostate Cancer - pT3BM1NO/Gleason 4+3=7. His PSA level then was 1,142 - a shocking number. He was totally symptom-less until a couple of weeks prior to official diagnosis. Because he was declared as being beyond surgery and
EliasJ
in
Advanced Prostate Cancer
6 years ago
A month of Casodex monotherapy
I did 30 months ADT and stopped, with MedOnc approval, last shot on 03/31/17. Didn't want PCa to go castrate resistant. So, monthly PSA went 0.1- 0.1- 0.2 - 0.5 - 1.3 and 3.3. Did a month of Casodex monotherapy and got down to 3.0 and T at 291 - up 40 from last month. Same lab. maybe an outlier. Was
I did 30 months ADT and stopped, with MedOnc approval, last shot on 03/31/17. Didn't want PCa to go castrate resistant. So, monthly PSA went 0.1- 0.1- 0.2 - 0.5 - 1.3 and 3.3. Did a month of Casodex monotherapy and got down to 3.0 and T at 291 - up 40 from last month. Same lab. maybe an outlier. Was
dockam
in
Advanced Prostate Cancer
6 years ago
Non Standard of Care Advice!
Hi all, quick recap. Dx with PCa in February, 2017. PSA was 8.9 and G, 8 at time of dx. left seminal vesicle was grossly impacted. Right femur and right pelvis impacted as well as a few suspicious lymph nodes in pelvic region. No evidence of distant mets. Went on Lupron and Casodex end of March 2017
Hi all, quick recap. Dx with PCa in February, 2017. PSA was 8.9 and G, 8 at time of dx. left seminal vesicle was grossly impacted. Right femur and right pelvis impacted as well as a few suspicious lymph nodes in pelvic region. No evidence of distant mets. Went on Lupron and Casodex end of March 2017
Stickingaround1
in
Advanced Prostate Cancer
6 years ago
time for decisions; just finished 6 rounds of chemo (docetaxel)We had loupron ,casodex along with prednisone. we were on xgeva for the bone
only ordered 4 shots of xgeva {1} every 4 weeks.Received last one. He said we could stop the casodex or to keep taking it. we see the dr. at Hillman middle of May. His PSA dropped from 11 on Nov 23 to 0.02 . They are planning on putting him on zytiga so it is up to us weather to take {casodex} or
only ordered 4 shots of xgeva {1} every 4 weeks.Received last one. He said we could stop the casodex or to keep taking it. we see the dr. at Hillman middle of May. His PSA dropped from 11 on Nov 23 to 0.02 . They are planning on putting him on zytiga so it is up to us weather to take {casodex} or
benninger
in
Advanced Prostate Cancer
6 years ago
XTANDI SIDE EFFECTS
Hello I'm a newbie.. Here's my story. My father was diagnosed with prostate cancer in 1994, very little treatment available at that time. We started out with 38 treatments of radiation, opted out of removing the prostate since Dr. said, "cancer was detected in lymph nodes". Started taking Lupron months
Hello I'm a newbie.. Here's my story. My father was diagnosed with prostate cancer in 1994, very little treatment available at that time. We started out with 38 treatments of radiation, opted out of removing the prostate since Dr. said, "cancer was detected in lymph nodes". Started taking Lupron months
Hidden
in
Advanced Prostate Cancer
6 years ago
I am new
my name is Ross I am 59 yrs old and on Jan. 23, 2018 was diagnosed with stage IV prostrate cancer I was in the ER on am unrelated event and after 2 CT scans the reason for being in the ER got really serious, after a little looking around on the internet it was obvious that I was a Stage IV with no symptoms
my name is Ross I am 59 yrs old and on Jan. 23, 2018 was diagnosed with stage IV prostrate cancer I was in the ER on am unrelated event and after 2 CT scans the reason for being in the ER got really serious, after a little looking around on the internet it was obvious that I was a Stage IV with no symptoms
bhr17
in
Advanced Prostate Cancer
6 years ago
Why I Like Right To Try
Lets say you have a rising PSA on Xtandi..with crossover resistance Zytiga will usually work for a few months. Hello Apalutamide..the problem here is Apalutamide is very similar to Xtandi and both drugs have a chemical structure based on Casodex...so if Apalutamide works you get maybe 3 months. Darolutamide
Lets say you have a rising PSA on Xtandi..with crossover resistance Zytiga will usually work for a few months. Hello Apalutamide..the problem here is Apalutamide is very similar to Xtandi and both drugs have a chemical structure based on Casodex...so if Apalutamide works you get maybe 3 months. Darolutamide
gusgold
in
Advanced Prostate Cancer
6 years ago
Xtandi
I have been on Xtandi for two months and PSA is now down to .59 and I feel much better than when I was on Lupron and Casodex. I have read the literature and it seems that Xtandi may work from three to 22 months. They don't ever seem to tell you what the standard deviation is. Has anyone on this forum
I have been on Xtandi for two months and PSA is now down to .59 and I feel much better than when I was on Lupron and Casodex. I have read the literature and it seems that Xtandi may work from three to 22 months. They don't ever seem to tell you what the standard deviation is. Has anyone on this forum
Stelle
in
Advanced Prostate Cancer
6 years ago
Durable remission? This is from 2014 and I feel like this Dr. From the Mayo Clinic is "ahead" of my Oncologist(s)
https://www.youtube.com/watch?v=NkqizmvqJPo I'm wondering why my oncologist at U of M, (Sylvester) and my second opinion at the Moffitt Cancer Center....both said after Lupron for 10 months and 6 session of Taxoter..I'm doing so great...all of my bone mets disappeared and the few lymph nodes have either
https://www.youtube.com/watch?v=NkqizmvqJPo I'm wondering why my oncologist at U of M, (Sylvester) and my second opinion at the Moffitt Cancer Center....both said after Lupron for 10 months and 6 session of Taxoter..I'm doing so great...all of my bone mets disappeared and the few lymph nodes have either
greatjohn
in
Advanced Prostate Cancer
6 years ago
Thoughts
I have had 3 rounds of ibrance and on the
Faslodex
shots. My Dr. wants to keep me on those but wants me to do another stereotactic radiation again this will be my 2nd time for that but 4th time for radiation. Any thoughts?
I have had 3 rounds of ibrance and on the
Faslodex
shots. My Dr. wants to keep me on those but wants me to do another stereotactic radiation again this will be my 2nd time for that but 4th time for radiation. Any thoughts?
Hock15
in
SHARE Metastatic Breast Cancer
7 years ago
Help and hope
My husband has Stage IV, advanced prostate cancer with mets to the bone and intraabdominal lymph nodes. He had a PSA in September 2017 of 540 and his doctor didn't do a biopsy until late December 2017. By then, his PSA was 1250. Gleason score 10 of all 12 biopsies. He's had Casodex, Lupron shot and
My husband has Stage IV, advanced prostate cancer with mets to the bone and intraabdominal lymph nodes. He had a PSA in September 2017 of 540 and his doctor didn't do a biopsy until late December 2017. By then, his PSA was 1250. Gleason score 10 of all 12 biopsies. He's had Casodex, Lupron shot and
Brbnbrn
in
Advanced Prostate Cancer
6 years ago
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