Experiences with

Evenity

I just completed my 1 yr of Evenity and got good results on my DEXA. My Endocrinologist recommended Reclast IV. I’ve hesitated to take Bisphosphonates because of the side effects. Has anyone used Reclast after Evenity or Forteo ( in used 2016-2018). I also used Prolia from 2019 - 2023.

Hello, I took Evenity for 11 months, stopped at that point through side effects, then tried to hold on to gains with a very low dose of Actonel (instant flashing light migraine), then Al Acid (very low dose) migraine again so tried Evista (migraine).

Hello, after 5 years on Alendronic acid my osteoporosis bone count is now worse -4.1 and so I am due to start Evenity (Romosozumab) once my tooth extraction has healed. I would be pleased to hear from anyone has experience of this medication please.

Finished Evenity 3 months ago, need to get on to a drug to hold on to the gains. I already suffered migraine before Evenity chronic nearly daily but bearable and only one or two zig zag light bad ones once or twice a year.

How many of you have been prescribed Evenity (uk) Thank you for your patience. Warmest wishes to you all, Margaret. X

Took Evenity for 11 months, then Actonel low does caused bad migraine, then Raloxifine caused 5 day migraine now Alendronic Acid at only 20mg and non stop migraine for nearly a week, plus swollen feet, sleeping heavy and low mood.

I have just come off Evenity and trying low dose Actonel to keep the gains, (building up hopefully) but at the moment 10 mg a week. I am suffering zig zag horrible migraine (have had 3 of those in the last 2 weeks on Actonel) but it could be withdrawal from the Evenity, not sure.

I finished 11 months of Evenity and went onto very low dose Actonel (5 mg x 2 a week) which caused non stop bad migraine and achiness and aching teeth, I came off and was given Raloxifene. Will this be strong enough to keep the gains?

I finished with Evenity 3 months ago, tried Actonel and Raloxifine to hold on to the gains, both gave me bad migraine. My consultant is now suggesting I take nothing, just Vitamin D, will I hold on to the gains with just Vitamin D? I thought we had to have something to keep the gains.

Have tested low (below ref range) twice on Evenity, has anyone else had their ferritin tested whilst on a bone drug and seen low ferritin? I have read calcium can stop the absorbtion of iron which may be the reason, not sure. Thanks

April 18 th had my last shot of evenity. just saw doctor results not great. very disappointed I am very crippled due to spine fractures. I was aware I will need to go on another Drug. But dang all that risk ???? why? Anyone have any thoughts ? Very unsuccessful

Saw Rheumatologist and recently started Evenity, had the first 2 months. I feel alone really as people don’t understand my limitations, don’t know anyone with my condition. I’m sure there are plenty of sufferers in this support group and know where I’m coming from

Are Evenity injections scheduled monthly or every four weeks

Since then I have had a course of Evenity and an infusion of Zolendronate. One of the problems that I have had for the last two years is a bad pain in my right side at waist height. It’s not all the time but is very frequent, often when I am walking about and often after eating.

Anyone taking Evenity shots in there stomach rather than arms? If so was it less painful?

Hi, to any one with Osteoporosis whose been advised to take the Evenity (romosozumab) injections for a year , go for it. I have just had my Dexa scan results after taking the monthly injections. I am no longer in the Osteoporosis category. I'm now Osteopenic.

Despite being physically active in dance and sports my entire life, I also have severe osteoporosis and am about to go on Evenity injections for a year, then Prolia. Scary & expensive stuff.

Anyone taking Evenity shots for osteoporosis? What has you side effects been?

My GP gave me a prescription for romosozumab/Evenity. I have 6 fractures of the spine the last few months and treating lymphoma also.

I have developed osteoporosis and my doctor want me to start the evenity shots. I am very concerned about the safety of this drug.