Mary M

[Fredof]

Has anyone tried new injections Evenity and if so how have they got on

[rwlmartin1]

Didn't do anything for me. Very disappointed.

[Olliemaya in reply to rwlmartin1]

Hi rwlmartin1. I have just read your post on the eventy injection. I was advised to start them this year but have decided not to go ahead with them..can I ask why you are disappointed and how long you were on these for.

[rwlmartin1 in reply to Olliemaya]

I was on for the standard 12-month period. I was disappointed because the DEXA scan following the last injection showed no change - positive or negative.

[Freshair24]

Hi I am having eventity Injections since September, i won't know results til September 25, everyone is at a different stage when they start ,but for me it is worth trying if it means it improves my bone density. The science is good,I was assessed suitable from a panel of multi disciplinary team who looked at my suitability. I have had no side affects apart from a little discomfort at injection site for a couple of days. I would rather trust the information given just for me. There are very negative comments about this but also very possitive , but for me it's worth trying .,Hope you get good advice for your situation .

[28Harvey28]

Hello Fredof. I started Evenity in August. I was not on any treatment before, apart from pain relief. As Evenity is a bone building and maintenance drug my Vit D and calcium levels were tested prior to starting. The plan for me following this 12 month course is to have at least 3 years of a yearly infusion. I was quite anxious prior to starting this treatment but so far I have been doing ok. I do the injections myself. It is too early for me to know whether there has been increased bone density but after hearing there have been improvements for others on this drug I am hopeful. Wishing you all the best on your journey

[Doormouse100]

I have just finished. Once I have the results of my Dexa scan I will share. Message me.

[patatas in reply to Doormouse100]

Hi Doormouse100 - I am about to start and would very much appreciate it if you could sahre your DEXA results with me too?

Thank you!

[Onlymary15 in reply to patatas]

I have just finished the year on Evenity, had no problems doing it or side effects, my dexa scan showed a 10% improvement,I didn’t think that was very much but consultant was very pleased as other scans all showed deterioration,now going on domosemah hope improvement continues, good luck.

[patatas in reply to Onlymary15]

Thank you - I get confused with the percentages - can you say what difference there was in the scores? eg did it go from 2.5 to2.2?

[Onlymary15 in reply to patatas]

Hi I’m really sorry I’m not sure , just said 10% improvement in my bone density, so anything better than a loss , take care

[patatas in reply to Onlymary15]

Don't worry - I am glad that you improved your BMD. Thanks for replying!

[Doormouse100 in reply to patatas]

Will do

[patatas in reply to Doormouse100]

Many thanks Doormouse100.

[Doormouse100 in reply to patatas]

Hi, I will be posting generally but promised I would reply to you. I am pleased to say I have a 14.5% improvement in bone density.

[patatas in reply to Doormouse100]

Wow ! That's really great and I am delighted for you. Can I ask what the difference means on the DEXA scale? Have you gone back to osteopenia even? But if you don't know or are not keen to share don't worry. It is a significant improvement. I assume you will now be going to some sort of Bisphosphonate? All the very best meantime.

[Doormouse100 in reply to patatas]

Hi, yes I went back to osteopenia

[Rhubarbtr]

on it for a year, no side effects, big improvement in bone density

[Freshair24]

Thats really encouraging thankyou,especially to those of us on the eventity year of injections . So glad for you too ,it must be quite a relief to have improvedyour bone density. 😊