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Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
Partner
in
AF Association
1 year ago
diagnosed in Feb. with atrial flutter at ED
good morning, My name is Patrick McConnell and I live in Burlington Ontario Canada. I am 79 years old and a very athletic person most of my life. But my main issue is no stamina and always short of breath. I have been on a BTK blocker for 7 years to control my CLL. Chronic lymphocytic leukemia and
good morning, My name is Patrick McConnell and I live in Burlington Ontario Canada. I am 79 years old and a very athletic person most of my life. But my main issue is no stamina and always short of breath. I have been on a BTK blocker for 7 years to control my CLL. Chronic lymphocytic leukemia and
PRM54
in
AF Association
1 year ago
Difficulty turning over in bed
A few years ago l asked if any of you had trouble turning over in bed and got a lot of responses- some compared it to feeling like a beached whale ! Recently l had a shoulder replacement which made it even worse for me so my son came to my rescue. It has helped so much that l thought l would share it
A few years ago l asked if any of you had trouble turning over in bed and got a lot of responses- some compared it to feeling like a beached whale ! Recently l had a shoulder replacement which made it even worse for me so my son came to my rescue. It has helped so much that l thought l would share it
Trulyscrumpious
in
PMRGCAuk
1 year ago
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Cancelled Again
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Carnationmac
in
AF Association
1 year ago
Periodic episodes of fluctuating tachycardia while in AFib.
Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram
Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram
Arrythimicaneurysm
in
Arrhythmia Alliance
1 year ago
Bridgefeast--nice post! More on exercise
The importance of exercise, including resistance exercise is irrefutable. Bridgefeast is a UK man which made me take notice. "Strand Pulling" contests were once a sport in the UK. Strand pulling uses a chest expander. I have the booklet written by Syd Devis who was a UK strand pulling champion. I got
The importance of exercise, including resistance exercise is irrefutable. Bridgefeast is a UK man which made me take notice. "Strand Pulling" contests were once a sport in the UK. Strand pulling uses a chest expander. I have the booklet written by Syd Devis who was a UK strand pulling champion. I got
Currumpaw
in
Advanced Prostate Cancer
1 year ago
Apixaban and Ablation
Hi everyone, I am currently on a very long waiting list for Ablation. I have PAF with very symptomatic episodes lasting 30 hours approximately every 4 months. I take apixaban and sotalol but do not want to up the dose as suggested by my EP (I currently take 40mg three times daily).At the last visit to
Hi everyone, I am currently on a very long waiting list for Ablation. I have PAF with very symptomatic episodes lasting 30 hours approximately every 4 months. I take apixaban and sotalol but do not want to up the dose as suggested by my EP (I currently take 40mg three times daily).At the last visit to
Karendeena
in
AF Association
1 year ago
PIPS and heart failure
Good morning all. As a brief summary I have severe LV impairment and HF with ICD fitted. I found out this week that my EF has fallen from 35 to 21%. I've been put on dapaglaflozin with epelerone to follow. I work 25 hrs per week but feel it might be wise to drop to 20 hrs. Any advice about applying for
Good morning all. As a brief summary I have severe LV impairment and HF with ICD fitted. I found out this week that my EF has fallen from 35 to 21%. I've been put on dapaglaflozin with epelerone to follow. I work 25 hrs per week but feel it might be wise to drop to 20 hrs. Any advice about applying for
Saltwaterman
in
British Heart Foundation
1 year ago
Digoxin fears
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Ssuegos
in
AF Association
1 year ago
What to do?
Hi All, I lost a load of weight last year doing a keto diet. Subsequently I didn't have AFib for 18 months. I have Paroxysmal AFib and usually only have 1 AFib a year. I always cardiovert with Flecanide. My Chadvac is 0. However, this year I've put more weight on and blood pressure has risen and I've
Hi All, I lost a load of weight last year doing a keto diet. Subsequently I didn't have AFib for 18 months. I have Paroxysmal AFib and usually only have 1 AFib a year. I always cardiovert with Flecanide. My Chadvac is 0. However, this year I've put more weight on and blood pressure has risen and I've
CJ1971
in
AF Association
1 year ago
Flecainide stopped working
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
Koladog
in
Atrial Fibrillation Support
1 year ago
Feel like a bit of a Fraud
I had an AF episode in mid January which lasted 5 hours but by the time I got to hospital everything was normal. Stayed overnight on a heart monitor - nothing, so discharged and told I would he sent a Kardiamobile app but shoukd continue living as normal. NHS then cancelled Kardiamobile and gave me
I had an AF episode in mid January which lasted 5 hours but by the time I got to hospital everything was normal. Stayed overnight on a heart monitor - nothing, so discharged and told I would he sent a Kardiamobile app but shoukd continue living as normal. NHS then cancelled Kardiamobile and gave me
mountainwalk
in
AF Association
1 year ago
Some Success with Avoiding Afib
After seeing my Afib rate of incidence go from once every couple of months to once a month to every 2 weeks -10 days, I finally got control of the factors which I believe were driving it.Doing that included: 1. Getting off of most of my blood pressure meds. (I only take 12.5 mg metoprolol twice a day
After seeing my Afib rate of incidence go from once every couple of months to once a month to every 2 weeks -10 days, I finally got control of the factors which I believe were driving it.Doing that included: 1. Getting off of most of my blood pressure meds. (I only take 12.5 mg metoprolol twice a day
fibnum
in
AF Association
1 year ago
Should I be concerned about lower resting HR on bisoprolol?
I had my first recorded (though probably 3rd in 3 years) AF incident on Sunday and have got 1.25mg of bisoprolol and 5 mg x 2 pd of apixaban. I am a runner so my resting overnight HR is usually low, say mid 40s. My heart returned to its normal rhythm on Sunday night after about 19 hours in AF. So now
I had my first recorded (though probably 3rd in 3 years) AF incident on Sunday and have got 1.25mg of bisoprolol and 5 mg x 2 pd of apixaban. I am a runner so my resting overnight HR is usually low, say mid 40s. My heart returned to its normal rhythm on Sunday night after about 19 hours in AF. So now
Sixtyslidogirl
in
Atrial Fibrillation Support
1 year ago
Need to restage cancer
Due to being castration resistant and PSA rising while on Xtandi/Lupron, his MO says she needs scan(s) to restage his cancer. The problem is that my husband can't tolerate lying on his back for the duration and/or keep his arms raised above his head. He tried to have a PET scan last year but had to cut
Due to being castration resistant and PSA rising while on Xtandi/Lupron, his MO says she needs scan(s) to restage his cancer. The problem is that my husband can't tolerate lying on his back for the duration and/or keep his arms raised above his head. He tried to have a PET scan last year but had to cut
Shamrock46
in
Advanced Prostate Cancer
1 year ago
Cardioversion - preparation and aftercare - advice please!
Hi everyone, and hope a day of sunshine has raised spirits!I've been placed on a waiting list for cardioversion by my EP which I'm really happy about. I was diagnosed with AF last September or October (got a cat on my knee so can't get up to check the date!) and this rapidly progressed to persistent.
Hi everyone, and hope a day of sunshine has raised spirits!I've been placed on a waiting list for cardioversion by my EP which I'm really happy about. I was diagnosed with AF last September or October (got a cat on my knee so can't get up to check the date!) and this rapidly progressed to persistent.
Rainfern
in
AF Association
1 year ago
What is wrong with these drs?
Still doing great on Sotalol, so thankful for my new EP. I went to a new primary care last week, and we discussed my AF briefly. He said "why aren't you on anticoagulants?" "My EP said I don't need it at my age and with how little I get AF." He then brought it up again a short time later, "you might
Still doing great on Sotalol, so thankful for my new EP. I went to a new primary care last week, and we discussed my AF briefly. He said "why aren't you on anticoagulants?" "My EP said I don't need it at my age and with how little I get AF." He then brought it up again a short time later, "you might
ChasMartin
in
AF Association
1 year ago
Fifth Ablation Done
The EP at Lovelace Heart in Albuquerque, Dr. Bestswros, (aka TopGun Maverick) zapped everything in sight after trying the usual suspects. His notes: “Pulmonary vein isolation was performed at the level of the antrum. Successful PVI of LSVP. PVI x 3 confirmed. Rotor ablation for atrial fibrillation.
The EP at Lovelace Heart in Albuquerque, Dr. Bestswros, (aka TopGun Maverick) zapped everything in sight after trying the usual suspects. His notes: “Pulmonary vein isolation was performed at the level of the antrum. Successful PVI of LSVP. PVI x 3 confirmed. Rotor ablation for atrial fibrillation.
DKBX
in
AF Association
1 year ago
Afib medications
HiI've been reading all the posts for 5 years but never asked anything until today. I was diagnosed with lone perm afib 6 years ago, i was 64. I was totally asymtomatic but advised to take a anticoagulant and beta blocker. I tried a couple of anticoags before settling on eliquis. I could not tolerate
HiI've been reading all the posts for 5 years but never asked anything until today. I was diagnosed with lone perm afib 6 years ago, i was 64. I was totally asymtomatic but advised to take a anticoagulant and beta blocker. I tried a couple of anticoags before settling on eliquis. I could not tolerate
fodgreen
in
AF Association
1 year ago
Flax Seeds and A-fib
Hi everyone, I was thinking of introducing milled flax seeds in to my diet as a health thing after watching a programme on them. However, after doing a Google search I am finding that certain sites are pointing towards it not being a good thing when on Anticoagulants. I’m on Apixiban,Bisoprolol and digoxin
Hi everyone, I was thinking of introducing milled flax seeds in to my diet as a health thing after watching a programme on them. However, after doing a Google search I am finding that certain sites are pointing towards it not being a good thing when on Anticoagulants. I’m on Apixiban,Bisoprolol and digoxin
Ailsablue
in
AF Association
1 year ago
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