Search
Search
About
Log in
Join
Experiences with
Efalizumab
Posts
Communities
57 public posts
Filter results
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
Biological User (e.g. Omalizumab / other MAB)??
Would appreciate your reply to my 2 Questions below, if you’ve been using a Biological (Example Only, Omalizumab / Other) ‘for at least 3 Months’. Leaving aside what happens during colds / infections, If you’re someone who has been using a Biological (for at least 3 months) PLUS are an Asthmatic historically
Would appreciate your reply to my 2 Questions below, if you’ve been using a Biological (Example Only, Omalizumab / Other) ‘for at least 3 Months’. Leaving aside what happens during colds / infections, If you’re someone who has been using a Biological (for at least 3 months) PLUS are an Asthmatic historically
Matman
in
Asthma Community Forum
6 years ago
omalizumab
Anyone tried it and any horror stories? Iv been offered it but the only thing that's putting me off is reading people carry epipens with them? I don't want to do that. Anyway I have a appointment in 8 weeks to discuss. Thanks
Anyone tried it and any horror stories? Iv been offered it but the only thing that's putting me off is reading people carry epipens with them? I don't want to do that. Anyway I have a appointment in 8 weeks to discuss. Thanks
DeanSamson
in
Asthma Community Forum
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
NEW Responses to questions from webinar
RESPONSES TO QUESTIONS FROM WEBINAR ON C3G CLINICAL DEVELOPMENT PROGRAMS IN PHARMA; June 6, 2018 QUESTIONS TO CHEMOCENTRYX RESPONDENT: Peter Staehr, MD VP, Clinical Development and Translational Medicine, ChemoCentryx QUESTION: How is avacopan similar/different to the intent/outcome of eculizumab
RESPONSES TO QUESTIONS FROM WEBINAR ON C3G CLINICAL DEVELOPMENT PROGRAMS IN PHARMA; June 6, 2018 QUESTIONS TO CHEMOCENTRYX RESPONDENT: Peter Staehr, MD VP, Clinical Development and Translational Medicine, ChemoCentryx QUESTION: How is avacopan similar/different to the intent/outcome of eculizumab
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
Hello!
Hello, everyone! I was diagnosed with C3GN almost five years ago at age 33. My C3GN is hereditary, which is extremely unusual. Many of my family members have been affected, including my father and my son. My father went through four kidney transplants before passing away. My son is thirteen, and his
Hello, everyone! I was diagnosed with C3GN almost five years ago at age 33. My C3GN is hereditary, which is extremely unusual. Many of my family members have been affected, including my father and my son. My father went through four kidney transplants before passing away. My son is thirteen, and his
linfuller
Ambassador
in
C3 Glomerulopathy
6 years ago
I'm looking for preventative advice to minimise asthma related problems and infections.... can you help?
Hey Up...I'm a newbie and on a mission. I stumbled across this site whilst googling for help and advice and it looks mighty supportive. Basically I was diagnosed with asthma at 24 (now 52). I also have scoliosis which affects my lung capacity (which is currently at 30%) but I am a "glass half full
Hey Up...I'm a newbie and on a mission. I stumbled across this site whilst googling for help and advice and it looks mighty supportive. Basically I was diagnosed with asthma at 24 (now 52). I also have scoliosis which affects my lung capacity (which is currently at 30%) but I am a "glass half full
Wheezebag13
in
Asthma Community Forum
7 years ago
How safe is the asthma Xolair or Omalizumab injection? Which you have done every 3 weeks in hospital.
Hello everyone. I would like to hear from people of their experiences if they went on this injection treatment. I am unsure if i want to take this medicine. With the list of possible side effects, and more serious side effects. I had a bad asthma flare up early on in the year. I saw the Respiratory
Hello everyone. I would like to hear from people of their experiences if they went on this injection treatment. I am unsure if i want to take this medicine. With the list of possible side effects, and more serious side effects. I had a bad asthma flare up early on in the year. I saw the Respiratory
becky3344
in
Asthma Community Forum
7 years ago
New injection Mepolizumab (Nucala)
Hi All, I started on the new injection today Mepolizumab (Nucala), they stopped the Omalizumab (Xolair) in March, I was lucky not to have any exacerbations while not having the jabs, so I hope this is going to give me some relief and normality back. Will have to wait and see how long this takes to kick
Hi All, I started on the new injection today Mepolizumab (Nucala), they stopped the Omalizumab (Xolair) in March, I was lucky not to have any exacerbations while not having the jabs, so I hope this is going to give me some relief and normality back. Will have to wait and see how long this takes to kick
TuckBox2
in
Lung Conditions Community Forum
7 years ago
Two Years on: Up Date.
Hi everyone, just to give you all an update on whats going on with my asthma. Final got to see my asthma team on the 13th of April and they ask my to have some blood taken to see if am able to be put on Omalizumab as my asthma is still serve uncontrolled and bordering on brittle asthma type 1. The Doctors
Hi everyone, just to give you all an update on whats going on with my asthma. Final got to see my asthma team on the 13th of April and they ask my to have some blood taken to see if am able to be put on Omalizumab as my asthma is still serve uncontrolled and bordering on brittle asthma type 1. The Doctors
asthmatim
in
Asthma Community Forum
7 years ago
Omalizumab and asthma worsening
Hi I've been on xolair 2 years 4 injections every 2 weeks. For several weeks I've had worsening of my asthma symtoms which they class as unstable and the respiratory nurse who gives my injections in the hospital doesn't seem to agree. I have never coughed and it's keeping me awake, blood tests normal
Hi I've been on xolair 2 years 4 injections every 2 weeks. For several weeks I've had worsening of my asthma symtoms which they class as unstable and the respiratory nurse who gives my injections in the hospital doesn't seem to agree. I have never coughed and it's keeping me awake, blood tests normal
Matti1
in
Asthma Community Forum
8 years ago
Omalizumab - Xolair
Hi everyone I have had Asthma all my life and now I am approaching 50 I have been referred back again to a consultant for further investigations as my Asthma has become more "troublesome" and whereby I normally expect October to March to be the tricky months, I am finding every month is bringing its
Hi everyone I have had Asthma all my life and now I am approaching 50 I have been referred back again to a consultant for further investigations as my Asthma has become more "troublesome" and whereby I normally expect October to March to be the tricky months, I am finding every month is bringing its
AuntSally19
in
Asthma Community Forum
9 years ago
Xolair
How many people here are on Xolair? I've been on it for three years now and am due to be reviewed; I was told I wouldn't be on it for longer than three years as they don't yet know the long-term implications for its use. I'm really hoping they'll let me stay on it as I'm terrified of going back to the
How many people here are on Xolair? I've been on it for three years now and am due to be reviewed; I was told I wouldn't be on it for longer than three years as they don't yet know the long-term implications for its use. I'm really hoping they'll let me stay on it as I'm terrified of going back to the
pucageorgie
in
Asthma Community Forum
9 years ago
Biological drugs
Is there anyone on Etanercept for RA and Omalizumab for asthma? I have been on Etanercept for about 8 years, but have had uncontrollable asthma for the last 2 years. I am on every drug the hospital can prescribe so am possibly going to start Omalizumab in the new year. It is a new drug and no one seems
Is there anyone on Etanercept for RA and Omalizumab for asthma? I have been on Etanercept for about 8 years, but have had uncontrollable asthma for the last 2 years. I am on every drug the hospital can prescribe so am possibly going to start Omalizumab in the new year. It is a new drug and no one seems
helenlw7
in
NRAS
10 years ago
Omalizumab
Has anyone been prescribed this for atopic asthma?
Has anyone been prescribed this for atopic asthma?
helenlw7
in
Lung Conditions Community Forum
10 years ago
Omalizumab (Xolair)
Hi! I'm a 25 year old mum with a 4 month old and have qualified for Omalizumab (Xolair). I will start in a few weeks but was just wondering if anyone my age is on it and can reassure me everyone will be ok or give me any advice.,,...thanks so much :)
Hi! I'm a 25 year old mum with a 4 month old and have qualified for Omalizumab (Xolair). I will start in a few weeks but was just wondering if anyone my age is on it and can reassure me everyone will be ok or give me any advice.,,...thanks so much :)
Hidden
in
Asthma Community Forum
11 years ago
Teenager - Omalizumab
I have a 13 year old daughter who for the last 2 years has had servere asthma attacks, they have suggested that she moves from 10mg of prednisolone aday to injections of the above. I have researched on the web but wondered if anyone out there has any real life eperience of this drug? being so poorly
I have a 13 year old daughter who for the last 2 years has had servere asthma attacks, they have suggested that she moves from 10mg of prednisolone aday to injections of the above. I have researched on the web but wondered if anyone out there has any real life eperience of this drug? being so poorly
Hidden
in
Asthma Community Forum
11 years ago
immune suppressants
Hi i've just registered on here thought it would be a good place to get some advice, I've had 6 hospital admissions this year with my asthma, i got out of hospital on monday from my latest one. I've been given new inhalers, Fostair and Spiriva, and i'm back reducing my steroids from 40mg to my normal
Hi i've just registered on here thought it would be a good place to get some advice, I've had 6 hospital admissions this year with my asthma, i got out of hospital on monday from my latest one. I've been given new inhalers, Fostair and Spiriva, and i'm back reducing my steroids from 40mg to my normal
Hidden
in
Asthma Community Forum
12 years ago
Omalizumab - fro a 5yr old?
Hi, My son is 5yrs old and has been in and out of hospital most of his life. Following a bad attack when he was 2, needing resucitation and time in intensive care, he was put on slo phylin as well as extensive inhalers, etc. His asthma is still not controlled despite all this and he regularly has
Hi, My son is 5yrs old and has been in and out of hospital most of his life. Following a bad attack when he was 2, needing resucitation and time in intensive care, he was put on slo phylin as well as extensive inhalers, etc. His asthma is still not controlled despite all this and he regularly has
Hidden
in
Asthma Community Forum
14 years ago
Adrenal suppression
Hi everyone again, After being to the consultation on Thursday, we are tring to get my 10 year old son off his steroids, we have got down from 50mg daily to 5mg every other day...... we are now going to reduce this further by 1mg a week for a month.... I was given a information leaflet about Adrenal
Hi everyone again, After being to the consultation on Thursday, we are tring to get my 10 year old son off his steroids, we have got down from 50mg daily to 5mg every other day...... we are now going to reduce this further by 1mg a week for a month.... I was given a information leaflet about Adrenal
Hidden
in
Asthma Community Forum
16 years ago
chronic asthma methotrexate
Hi I know it has been ages since I have been on line. Marriage break up and move of house twice has absorbed all my time along with my son. We have been trying for omalizumab (Xolair) but now his IgE is out of range, so there is no joy there. He is not responding to IV Amonophollin,Steroids no longer
Hi I know it has been ages since I have been on line. Marriage break up and move of house twice has absorbed all my time along with my son. We have been trying for omalizumab (Xolair) but now his IgE is out of range, so there is no joy there. He is not responding to IV Amonophollin,Steroids no longer
Hidden
in
Asthma Community Forum
16 years ago
1
2
3
Next page
Filter results
Clear filters
Posted in
All communities
Asthma Community Forum
44 results
C3 Glomerulopathy
4 results
Lung Conditions Community Forum
2 results
View top 10 communities
Sort by
Most Relevant
Newest