I started on the new injection today Mepolizumab (Nucala), they stopped the Omalizumab (Xolair) in March, I was lucky not to have any exacerbations while not having the jabs, so I hope this is going to give me some relief and normality back. Will have to wait and see how long this takes to kick in.
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TuckBox2
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Did the Xolair stop working for you, TuckBox? I remember you having to go into hospital, earlier in the year. I very much hope this new one sets you straight, as poorly controlled asthma makes life so miserable.
Yes, I it seemed to stop helping me, since I had a bout of pneumonia I was having so many exacerbations and courses of steroids they thought Mepolizumab would help me as it is for the type of asthma I have. I have not had any problems yet.
I'm in the states. My insurance has refused to pay for the NUCALA although the allergist feels I need it badly. I am asking now for an outside review. I have high eosinophil counts in my bronchial specimens. Any suggestions?
I'm still trying to get the NUCALA approved by my insurance. If I am self pay it will be 32k per year! I just don't feel I can do that. Please let me know how you do on the NUCALA. I have a high eosinophil count so it is suppose to be what I need. I'm very interested in your outcome.
One of the reasons I was swapped to Nucala was that I had high eosinophil count, I also had high reading with the FeNo test my 1st reading was 83, then I had a 54, I had a couple of readings of 12 & 13 but I have had recent readings of 40, 25, 39.
I have now had 4 Nucala injections (1 injection every 4 weeks) and I have had no ill effects from any of them.
I have had 1 bad day with my asthma a couple of days after one of my injections. I woke up coughing more than usual, took my morning meds and things calmed down a bit but my wife insisted I went to my GP. My appointment was at 11.50 when I saw the Dr (one I'd not normally see in the practice) I explained what had happened talking OK to him and he advised that as I know my illness if it gets worse to go to A&E, I then started to cough could not stop, took my reliever inhaler, still couldn't stop coughing. He said don't worry he'll get me to A&E and called an ambulance. The paramedic arrived 1st and gave me a nebuliser then the ambulance arrived, they continued the neb in the ambulance and I was able to talk to them better. I showed them my 'Asthma passport' which had all my details on and my meds etc. this helped a lot while I was having difficulty talking, and also saved a lot of waiting time at A&E to be seen. As my peak flow was staying above my critical levels and I self monitor at home (pf, bp & O2 sats) they let me go home and if things changed to come back in. Happily I have had no more problems since. I still don't know what caused the coughing either at home or in the Dr's surgery.
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