Search
Search
About
Log in
Join
Experiences with
Eczmol
Posts
Communities
85 public posts
Filter results
Feel helpless
How do you get through your days?! I can barley function... Where do I begin. Myself, fiancé and our 3 boys tested for covid 2 weeks a go. Since the 23rd Jan my fiancé has been in hospital, eventually went on to ECMO on 1st Feb. Just feel like our world is falling apart and I don’t know what I can do
How do you get through your days?! I can barley function... Where do I begin. Myself, fiancé and our 3 boys tested for covid 2 weeks a go. Since the 23rd Jan my fiancé has been in hospital, eventually went on to ECMO on 1st Feb. Just feel like our world is falling apart and I don’t know what I can do
Keepingfaith2021
in
ICUsteps
4 years ago
Is ECMO too soon??
Hi all I'm finding such comfort in reading your posts.. My brother-in-law is 6 days in ICU (after 9 days on CPAP) My sis is taking the calls from the hospital (so hard to do) and the docs were today asking her questions relating to his suitability to fit the criteria of going to ECMO (which is is in
Hi all I'm finding such comfort in reading your posts.. My brother-in-law is 6 days in ICU (after 9 days on CPAP) My sis is taking the calls from the hospital (so hard to do) and the docs were today asking her questions relating to his suitability to fit the criteria of going to ECMO (which is is in
Claudiad
in
ICUsteps
4 years ago
Day 30 on ECMO and Ventilator
My brother is on day 30! Finally his Covid test came back negative but we need two more negatives before we are allowed to see him. Both Ecmo and ventilator are set at 100% today. All his organs are still good. I’m trying not to lose hope for me, my mom and family. As my mom is suffering through all
My brother is on day 30! Finally his Covid test came back negative but we need two more negatives before we are allowed to see him. Both Ecmo and ventilator are set at 100% today. All his organs are still good. I’m trying not to lose hope for me, my mom and family. As my mom is suffering through all
Jackydel2020
in
ICUsteps
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Covid and on Ecmo day 26
My brother is on day 26 both ventilator and Ecmo. Doctor said he stable but Ecmo and ventilator are both set at 100% 😔. He doesn’t seem to come down any! Sometimes he drops to 80, 65 and then today back up to 100%. I’m so worried about him and about my mom. My mom just lost her sister to Covid 2 months
My brother is on day 26 both ventilator and Ecmo. Doctor said he stable but Ecmo and ventilator are both set at 100% 😔. He doesn’t seem to come down any! Sometimes he drops to 80, 65 and then today back up to 100%. I’m so worried about him and about my mom. My mom just lost her sister to Covid 2 months
Jackydel2020
in
ICUsteps
4 years ago
Covid and Ecmo day 17
covid and on Ecmo my brother is on day 17 of ventilator and Ecmo! His lungs are not functioning. The doctors have called is 2 days now telling us to make a decision as a family! Mind you all his organs are working fine up to today. We stand firm and will not make a decision soo soon. Has anyone else
covid and on Ecmo my brother is on day 17 of ventilator and Ecmo! His lungs are not functioning. The doctors have called is 2 days now telling us to make a decision as a family! Mind you all his organs are working fine up to today. We stand firm and will not make a decision soo soon. Has anyone else
Jackydel2020
in
ICUsteps
4 years ago
Double Lung Transplant
My uncle got a double lung transplant September 11, 2020. He is currently in ICU. He had to have 2 emergency surgeries due to one of the lungs not working properly. He was put on an ECMO machine and ventilator. 2 days later they put him on dyalisis. I've been visiting him daily. It's so hard to see him
My uncle got a double lung transplant September 11, 2020. He is currently in ICU. He had to have 2 emergency surgeries due to one of the lungs not working properly. He was put on an ECMO machine and ventilator. 2 days later they put him on dyalisis. I've been visiting him daily. It's so hard to see him
DeisyD
in
Power2Save Transplant Community
4 years ago
Not following command
My uncle got a double lung transplant September 11, 2020. He is currently in ICU. He had to have 2 emergency surgeries due to one of the lungs not working properly. He was put on an ECMO machine and ventilator. 2 days later they put him on dyalisis. I've been visiting him daily. It's so hard to see him
My uncle got a double lung transplant September 11, 2020. He is currently in ICU. He had to have 2 emergency surgeries due to one of the lungs not working properly. He was put on an ECMO machine and ventilator. 2 days later they put him on dyalisis. I've been visiting him daily. It's so hard to see him
DeisyD
in
ICUsteps
4 years ago
Waking up from deep sedatives in ICU.
Waking up from sedation...what should I expect? My Dad went in for bypass surgery which went fine and on the day he was to come home he had a reaction to Heparin which was HIT type II rare response. They found clots in his heart and he had a heart attack shortly after in the ICU. He went in for emergency
Waking up from sedation...what should I expect? My Dad went in for bypass surgery which went fine and on the day he was to come home he had a reaction to Heparin which was HIT type II rare response. They found clots in his heart and he had a heart attack shortly after in the ICU. He went in for emergency
Eclips2luv
in
ICUsteps
4 years ago
Miracles do happen 🙏🏻 Tony - Covid19: 1-0
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
MarthaKos
in
ICUsteps
4 years ago
Miracles do happen 🙏🏻 Tony - Covid19: 1-0
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
MarthaKos
in
ICUsteps
4 years ago
Triiodothyronine for the Treatment of Critically Ill Patients With COVID-19 Infection: A Structured Summary of a Study Protocol for an RCT
There have been several posts/responses in which posters have asked about the possibility of using thyroid hormones in the treatment of COVOID-19. It certainly seems an obvious question. Hence, I am pleased to post about an upcoming trial. I'm quite sure I'll not be the only one here shouting "Get a
There have been several posts/responses in which posters have asked about the possibility of using thyroid hormones in the treatment of COVOID-19. It certainly seems an obvious question. Hence, I am pleased to post about an upcoming trial. I'm quite sure I'll not be the only one here shouting "Get a
helvella
Thyroid UK
in
Thyroid UK
4 years ago
ECMO Machine
Hi, does anyone have any experiences of the ECMO machine. What is the process of someone being on the machine and how does the patient cope with this?
Hi, does anyone have any experiences of the ECMO machine. What is the process of someone being on the machine and how does the patient cope with this?
MathsFanatic
in
ICUsteps
4 years ago
Covid-19 Update: Remdesivir US Trial Results fail to live up to expectations, or does it? It depends on what you want to believe.
My observations are my own and based on my extensive experience conducting clinical trials. I am sure not everyone will agree with my perspective. I have tried my best to present an "objective" review of this very important Trial. MY SUMMARY: An antiviral drug which was historically ineffective in
My observations are my own and based on my extensive experience conducting clinical trials. I am sure not everyone will agree with my perspective. I have tried my best to present an "objective" review of this very important Trial. MY SUMMARY: An antiviral drug which was historically ineffective in
sharoncrayn
in
Cure Parkinson's
4 years ago
What We Did Right: Israeli Doctors Explain How They Beat the Coronavirus
In the lull following the first infection wave, physicians tell Haaretz how they adjusted on the fly – and helped push Israel's number of new cases per day into the low double-digits 'We’ve also learned that you don’t have to rush into employing invasive ventilation methods. Eventually we began to
In the lull following the first infection wave, physicians tell Haaretz how they adjusted on the fly – and helped push Israel's number of new cases per day into the low double-digits 'We’ve also learned that you don’t have to rush into employing invasive ventilation methods. Eventually we began to
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Risk group for Covid?
Hi, everyone. Two years ago I had a very serious pneumonia. I had to be put in an induced coma for 8 days while I was on ECMO (extra corporal membrane oxigenation). Took me some months to recover completely and two years later I feel fine. However, I would like to know if I am a person of risk in this
Hi, everyone. Two years ago I had a very serious pneumonia. I had to be put in an induced coma for 8 days while I was on ECMO (extra corporal membrane oxigenation). Took me some months to recover completely and two years later I feel fine. However, I would like to know if I am a person of risk in this
gasparito
in
ICUsteps
4 years ago
Practical links moving forward
Useful links and positive outcomes The journey from Induced coma to waking up in ICU to rehabilitation in hospital and beyond. Some practical guidance and stories of hope : Guide for Patients and Families https://icusteps.org/assets/files/IntensiveCareGuide.pdf ICU Delerium https://icusteps.org
Useful links and positive outcomes The journey from Induced coma to waking up in ICU to rehabilitation in hospital and beyond. Some practical guidance and stories of hope : Guide for Patients and Families https://icusteps.org/assets/files/IntensiveCareGuide.pdf ICU Delerium https://icusteps.org
AKAICUsurvivor
in
ICUsteps
4 years ago
Extracorporeal Membrane Oxygenation (ECMO) for pneumonia caused by coronavirus.
There's a better way of surviving pneumonia caused by the coronavirus that has not gotten any mention by any health officials or news outlets. It's extracorporeal membrane oxygenation that oxygenates your blood through a vein or artery versus using a ventilator to try and push oxygen in through your
There's a better way of surviving pneumonia caused by the coronavirus that has not gotten any mention by any health officials or news outlets. It's extracorporeal membrane oxygenation that oxygenates your blood through a vein or artery versus using a ventilator to try and push oxygen in through your
Rod98168
in
Advanced Prostate Cancer
4 years ago
Overcoming ecmo and everything else
Hello, I wrote a few weeks ago about my partner, who was put in an induced coma after a chest infection and sepsis. If there is a God - and I have prayed to him constantly to give him strength, to give the medical staff vision and hope - I will be forever grateful. Les has survived Ecmo, a rare bone
Hello, I wrote a few weeks ago about my partner, who was put in an induced coma after a chest infection and sepsis. If there is a God - and I have prayed to him constantly to give him strength, to give the medical staff vision and hope - I will be forever grateful. Les has survived Ecmo, a rare bone
Hidden
in
ICUsteps
5 years ago
Ecmo and icu
Hello, my partner was admitted to A&E a week ago and put on a ventilator with severe pneumonia. Nothing helped until medical staff flew down from London to put him on ecmo and transferred him to London. He hasn't woken up after they stopped sedative 4 days ago, but he has eye movement, breathes alongside
Hello, my partner was admitted to A&E a week ago and put on a ventilator with severe pneumonia. Nothing helped until medical staff flew down from London to put him on ecmo and transferred him to London. He hasn't woken up after they stopped sedative 4 days ago, but he has eye movement, breathes alongside
Hidden
in
ICUsteps
5 years ago
Alagille Syndrome/TOF with Pulmonary Atresia
Hi everyone, my son was diagnosed with alagille syndrome when he was one month old. At first they thought it was only tetralogy of fallot (TOF). At one month old he was having tet spell and had to have open heart surgery. They put a cardiac central shunt to allow better blood flow to his lung. That procedure
Hi everyone, my son was diagnosed with alagille syndrome when he was one month old. At first they thought it was only tetralogy of fallot (TOF). At one month old he was having tet spell and had to have open heart surgery. They put a cardiac central shunt to allow better blood flow to his lung. That procedure
Youyou
in
Children's Liver Disease Foundation
5 years ago
1
2
3
...
5
Next page
Filter results
Clear filters
Posted in
All communities
ICUsteps
61 results
Lung Conditions Community Forum
4 results
Asthma Community Forum
2 results
View top 10 communities
Sort by
Most Relevant
Newest