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disheartened
My 25 year old partner is currently in the ICU 2.5hrs away from home for the last 35 days. He has cardiomyopathy, severe heart failure and is awaiting a transplant. He has been on ECMO for 13 days but LVAD being considered if he has not received an offer by the end of the week :( meaning he’ll be off
My 25 year old partner is currently in the ICU 2.5hrs away from home for the last 35 days. He has cardiomyopathy, severe heart failure and is awaiting a transplant. He has been on ECMO for 13 days but LVAD being considered if he has not received an offer by the end of the week :( meaning he’ll be off
pinkshark
in
British Heart Foundation
3 days ago
My ICU Journey
Hello everybody, I'm new here however wanted to post my journey and express how reading other survivors stories made me realise I am not alone in this. I was admitted to ICU on July 9th 2023 in the UK with Respiratory Failure as an effect of Covid and Pneumonia. I was immediately placed in an induced
Hello everybody, I'm new here however wanted to post my journey and express how reading other survivors stories made me realise I am not alone in this. I was admitted to ICU on July 9th 2023 in the UK with Respiratory Failure as an effect of Covid and Pneumonia. I was immediately placed in an induced
Hidden
in
ICUsteps
5 months ago
Agitation will waking from sedation in ICU on vent and ecmo
Hi my uncle had a low oxygen stroke on 18 Dec and diagnosed with pnemonia and put on a vent machine and Ecmo on 20th Dec. He still has low recovery on lungs but he has not been able to come out of sedation. He is getting aggressive and agitated as soon as the sedatives are reduced. Its been 2 weeks now
Hi my uncle had a low oxygen stroke on 18 Dec and diagnosed with pnemonia and put on a vent machine and Ecmo on 20th Dec. He still has low recovery on lungs but he has not been able to come out of sedation. He is getting aggressive and agitated as soon as the sedatives are reduced. Its been 2 weeks now
shivnajain
in
ICUsteps
7 months ago
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Continued fatigue/weakness.
Hi all.I was in icu hospital for 3 months this time 4 years ago with acute respiratory failure and pneumonia. I was on ECMO for 25 days with 4 failed attempts to have it removed before I finally managed without it on the 5th try. I experienced all the common effects of this , learning to walk again,
Hi all.I was in icu hospital for 3 months this time 4 years ago with acute respiratory failure and pneumonia. I was on ECMO for 25 days with 4 failed attempts to have it removed before I finally managed without it on the 5th try. I experienced all the common effects of this , learning to walk again,
Sleepalotmore
in
ICUsteps
8 months ago
Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
10 months ago
My our Journey so far.
A BIG Hi to you all. I’d like to introduce myself. My nick name is Big H and my journey started in 2021 with a covid pneumonia. I was in a pub when we were allowed to go out, it’s the only place I had attended before contracting Covid Pneumonia. I just remember it was like having the worse flu and
A BIG Hi to you all. I’d like to introduce myself. My nick name is Big H and my journey started in 2021 with a covid pneumonia. I was in a pub when we were allowed to go out, it’s the only place I had attended before contracting Covid Pneumonia. I just remember it was like having the worse flu and
BigH63
in
ICUsteps
11 months ago
Advice please
Ecmo 2016 ...ventilated every 6 months from then.even tho on.biologics and 40mg pred daily...Now 2023 on benra and 17.5mg pred with pheno over 200 ... Not.been.in.itu.since 2019 ...but crap day by day ...all energy in mornings then no energy etc from.approx 3pm. Life shit But.my.concern.is my severe
Ecmo 2016 ...ventilated every 6 months from then.even tho on.biologics and 40mg pred daily...Now 2023 on benra and 17.5mg pred with pheno over 200 ... Not.been.in.itu.since 2019 ...but crap day by day ...all energy in mornings then no energy etc from.approx 3pm. Life shit But.my.concern.is my severe
Davenpos
in
Asthma Community Forum
1 year ago
ICU and osteoporosis
I have quite a basket of post-ICU/ECMO/covid/coma health issues, but the majority of them have been known to me since I left hospital, eg denuded lungs, heart, neurology issues, muscle waste, fatigue etc etc. However, a small bombshell has landed in my lap just recently. I have now also been diagnosed
I have quite a basket of post-ICU/ECMO/covid/coma health issues, but the majority of them have been known to me since I left hospital, eg denuded lungs, heart, neurology issues, muscle waste, fatigue etc etc. However, a small bombshell has landed in my lap just recently. I have now also been diagnosed
Gooddaysunshine
in
ICUsteps
2 years ago
ecmo at birth
Hi My daughter had ECMO at birth for meconium aspiration. . Developed seizures at the age of 15. Awaiting MRI head. I was told possible hypoxic injury from ECMO caused a scar , acting as focus of epilepsy. Anyone on same boat?
Hi My daughter had ECMO at birth for meconium aspiration. . Developed seizures at the age of 15. Awaiting MRI head. I was told possible hypoxic injury from ECMO caused a scar , acting as focus of epilepsy. Anyone on same boat?
Upsydaisy2005
in
ICUsteps
2 years ago
ICU and teeth/dental hygiene gums
Hello, this might seem a strange one, given all the other major after-effects of intensive care, but I got a bit of a shock yesterday to be told I have gum disease. Given my regular daily brushing it was a bit of a shock When I thought about it I realised I did not brush my teeth for nearly three
Hello, this might seem a strange one, given all the other major after-effects of intensive care, but I got a bit of a shock yesterday to be told I have gum disease. Given my regular daily brushing it was a bit of a shock When I thought about it I realised I did not brush my teeth for nearly three
Gooddaysunshine
in
ICUsteps
2 years ago
Physiotherapy after coma
Hi my husband spent 7 weeks in an induced coma,he had covid pneumonia which caused respatory failure and he was put on ECMO for a month he had kidney trouble needing dialysis he had to have a biopsy on his liver ... he is now medically fit after 4 months in hospital ... he is now in a physiotherapy hospital
Hi my husband spent 7 weeks in an induced coma,he had covid pneumonia which caused respatory failure and he was put on ECMO for a month he had kidney trouble needing dialysis he had to have a biopsy on his liver ... he is now medically fit after 4 months in hospital ... he is now in a physiotherapy hospital
Potter321
in
ICUsteps
2 years ago
Fatigue
Can anyone shed any light on fatigue? Two years now since I was in icu on a ventilator/ trachiotomy and on ECMO. I was sedated from 30/12/19 until 28/1/20. But in icu 18/12/19 to 9/2/20. Not covid related. But with acute respiratory failure./ pneumonia. I am still feeling weak and lethargic as well
Can anyone shed any light on fatigue? Two years now since I was in icu on a ventilator/ trachiotomy and on ECMO. I was sedated from 30/12/19 until 28/1/20. But in icu 18/12/19 to 9/2/20. Not covid related. But with acute respiratory failure./ pneumonia. I am still feeling weak and lethargic as well
Sleepalotmore
in
ICUsteps
2 years ago
ARDs/Covid/Family looking for advice
It’s day 14 that my boyfriend had been in ICU and day 6 on ECMO r/t Covid. I hate seeing him so uncomfortable. I can’t take his suffering away. I have been there everyday and I feel like I’m failing in life. His survival rate is 40-50% . He is supposed to get a Trach Friday. I hope this helps with his
It’s day 14 that my boyfriend had been in ICU and day 6 on ECMO r/t Covid. I hate seeing him so uncomfortable. I can’t take his suffering away. I have been there everyday and I feel like I’m failing in life. His survival rate is 40-50% . He is supposed to get a Trach Friday. I hope this helps with his
CovidEcmofamily
in
ICUsteps
3 years ago
Post ICU feelings.
Does anyone else feel isolated after being seriously I'll on a ventilator, life support machine and a trachy? I was in an induced coma and put on ECMO in January 2020 for a month and previous to that ,on ventilator for week. Total of 7 weeks in icu and hospital for 3months. Then home 5 days before lockdown
Does anyone else feel isolated after being seriously I'll on a ventilator, life support machine and a trachy? I was in an induced coma and put on ECMO in January 2020 for a month and previous to that ,on ventilator for week. Total of 7 weeks in icu and hospital for 3months. Then home 5 days before lockdown
Sleepalotmore
in
ICUsteps
3 years ago
Day 4 of husbands single lung transplant
Friday 13th - what a lucky day forMy husband . He was I believe quite close to death and docs were querying whether to put him on a machine to take over breathing, ECMO I think they call it . IPF had finally got the better of him and ironically he was taken in to A & E just as he was about to sign the
Friday 13th - what a lucky day forMy husband . He was I believe quite close to death and docs were querying whether to put him on a machine to take over breathing, ECMO I think they call it . IPF had finally got the better of him and ironically he was taken in to A & E just as he was about to sign the
Woolfe31
in
Lung Conditions Community Forum
3 years ago
Challenging/appealing Passive euthanasia resulting from patient's own will.
My would-have-been husband got severe covid in mid Feb. Damage was extensive, so they put him under medically induced coma. End of July will be 4 months in that state. He's on ECMO, ventilator and dialysis. I don't have information on exact kind of life support. He's never awakened but he can hear but
My would-have-been husband got severe covid in mid Feb. Damage was extensive, so they put him under medically induced coma. End of July will be 4 months in that state. He's on ECMO, ventilator and dialysis. I don't have information on exact kind of life support. He's never awakened but he can hear but
DivSin
in
ICUsteps
3 years ago
Are doctors always right when they say there's no chance of survival or miracles happen?
Do you know anyone, who doctors had left all hopes of surviving but they did? Does being young (29) and extra fit help? He had a severe case of covid and what seems like pneumonia and the infection has reached all major systems with DNR set for 31st August. Sorry, I have no information except he'd been
Do you know anyone, who doctors had left all hopes of surviving but they did? Does being young (29) and extra fit help? He had a severe case of covid and what seems like pneumonia and the infection has reached all major systems with DNR set for 31st August. Sorry, I have no information except he'd been
DivSin
in
ICUsteps
3 years ago
Info to support my employer.
Can anyone recommend any links or pamphlets I can give my employer to help them understand how I may be recovering after being in icu and on a ventilator and ECMO gor 23 days. They have been good in helping me settle back at work but I am feeling like a fraud when I say I'm still getting tired easily
Can anyone recommend any links or pamphlets I can give my employer to help them understand how I may be recovering after being in icu and on a ventilator and ECMO gor 23 days. They have been good in helping me settle back at work but I am feeling like a fraud when I say I'm still getting tired easily
Sleepalotmore
in
ICUsteps
3 years ago
Does anyone have any experiences with ECMO removal and the chance of survival?
My significant other is coming to the point where he’s been on VV ECMO for too long and it is starting to cause complications. There is a chance that his heart will stop so the doctor would like someone to be at bedside with him. Once ECMO is removed, the hospital will not put him on it again. Prior
My significant other is coming to the point where he’s been on VV ECMO for too long and it is starting to cause complications. There is a chance that his heart will stop so the doctor would like someone to be at bedside with him. Once ECMO is removed, the hospital will not put him on it again. Prior
Xyluh
in
ICUsteps
3 years ago
Transferring because of ECMO Machine
Hello all, please wanted to ask if it is possible to move a critical ill patient on ventilator to another hospital that has ECMO Machine, as the hospital my husband is in doesn't have an ECMO Machine.
Hello all, please wanted to ask if it is possible to move a critical ill patient on ventilator to another hospital that has ECMO Machine, as the hospital my husband is in doesn't have an ECMO Machine.
esteeossy
in
ICUsteps
4 years ago
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