Dyskinesia?: Hi I am a 40 yr old, have... - Parkinson's New Z...

Parkinson's New Zealand

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Dyskinesia?

steven-c profile image
6 Replies

Hi I am a 40 yr old, have had PD for a year and am having problems with dyskinesia.

I have very bad foot stomping and at times walking is quite hard.

Just wondering if anyone has any ideas on how to deal with this?

Thanks

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steven-c profile image
steven-c
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6 Replies
cafelatte profile image
cafelatte

is this a reaction to the medication?

I'd be tempted to go back to the specialist and discuss this.

michelle40 profile image
michelle40

i have just turned 41 and have been on sinemet and other pd meds since age 13years old. neroligist say the dyskenisa is side effects of having sinemet for so long. Sometimes i find the side effects of meds are worse than the parkinsons. i wpuld go back to nero and ask about dbs, which i think is about the only thing that helps thre dyskensia?

Hikoi profile image
Hikoi

Hi Steven, i wonder what you mean by dyskinesia? You say something about foot stomping but i didnt quite follow what that is. I ask because Its unusual to have dyskinesia after only one year. dyskinesia is a side effect of long term medication use. Are you having trouble walking and what treatment are you on for your Parkinsons? I found it took over a year to get sorted on medication that helped me.

Hikoi profile image
Hikoi

Steven by any chance is this what you are describing?

.... your toes curl into a claw-like position. Your foot may also turn in at your ankle and your big toe may extend.

parkinsons.org.uk/PDF/FS43_...

Zac33 profile image
Zac33 in reply toHikoi

Hi just wondering if you suffer dystonia. I do in my left leg / foot to the point I'm unable to walk. It strikes quite randomly but has happened more often recently. Would be interested to hear your experience? Thanks.

Zac33 profile image
Zac33

Hi. I'm in my 40's recently diagnosed. Trouble walking sometimes too. Cramping in left foot with toes in claw like position. Sound familiar?

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