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Experiences with
Dyskinesia
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things could be worse....
Smoking pot just slows me down some more and I do think drinking hard liquor makes my
dyskinesia
worse. It is tough on one's love life too. Viagra has been work well for the last 18 yrs but is starting to flag. Injections is the next stage...and so far, they work great.. Just got to keep truckin.
Smoking pot just slows me down some more and I do think drinking hard liquor makes my
dyskinesia
worse. It is tough on one's love life too. Viagra has been work well for the last 18 yrs but is starting to flag. Injections is the next stage...and so far, they work great.. Just got to keep truckin.
stormco
in
Cure Parkinson's
9 years ago
Night Terror and Vivid dreams
Hello, My Mom is 70 yo and she has parkinson for 15 years, she is currently taking Amantadine 2/day, selegelin 2/day, mirapex 3/day and trihexyphenidyl 1/day. She has Night Terros every night for the past few years and she is getting worse, she talks, screams and fights during the night, My dad can
Hello, My Mom is 70 yo and she has parkinson for 15 years, she is currently taking Amantadine 2/day, selegelin 2/day, mirapex 3/day and trihexyphenidyl 1/day. She has Night Terros every night for the past few years and she is getting worse, she talks, screams and fights during the night, My dad can
leelit
in
Cure Parkinson's
9 years ago
L-Dopa or Azilect (rasagiline) positively affecting mental states?
Has anyone tried going off L-DOPA (or carbidopa) or Azilect (rasagiline) and noticed a change in thinking such as being more critical of people or more easily irritated?
Has anyone tried going off L-DOPA (or carbidopa) or Azilect (rasagiline) and noticed a change in thinking such as being more critical of people or more easily irritated?
zawy
in
Cure Parkinson's
9 years ago
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livido reticularis
Hi there. I am experiencing some kind of flare of vasculitis. Was diagnosed and treated for CNSV. I have developed libidos reticularis and get it over my entire body in heat such as steam bath and tub. I have looked it up and it can scary - thrombosis,ulcers etc. would anyone share their knowledge about
Hi there. I am experiencing some kind of flare of vasculitis. Was diagnosed and treated for CNSV. I have developed libidos reticularis and get it over my entire body in heat such as steam bath and tub. I have looked it up and it can scary - thrombosis,ulcers etc. would anyone share their knowledge about
Kat13
in
Hughes Syndrome APS Forum
9 years ago
Dyskinesia
But I get constant
dyskinesia
- writhing of the head, shoulders and arms, worst at mealtimes. So I'm asking for help - is this a good combination or should I not take RequipXL along with Stalevo?? Many many thanks.
But I get constant
dyskinesia
- writhing of the head, shoulders and arms, worst at mealtimes. So I'm asking for help - is this a good combination or should I not take RequipXL along with Stalevo?? Many many thanks.
John3419
in
Cure Parkinson's
9 years ago
IM SURPRISED THAT SOMEONE ELSE H MSA ,I THINK IT'S FAR WORSE THAN ANY OF THE OTHER COUSINS....................
THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATIONS. HOW DO YOU USE CINNAMEN ? MY DR TOLD ME THAT PAPAYA IS GOOD IT HELPS W/ DIGESTION & LOT'S OF GOOD INGREDIENTS . I 'M NEW AT THIS.............. MSA SO ....... ANYONE THAT HAS ANY SUGGESTIONS ON HOW TO COPE
THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATIONS. HOW DO YOU USE CINNAMEN ? MY DR TOLD ME THAT PAPAYA IS GOOD IT HELPS W/ DIGESTION & LOT'S OF GOOD INGREDIENTS . I 'M NEW AT THIS.............. MSA SO ....... ANYONE THAT HAS ANY SUGGESTIONS ON HOW TO COPE
GenaBenedict
in
PSP Association
9 years ago
Little Imaginary Friends
My husband is taking Stalevo 200 mg a day and with second dose takes Azilect 1 mg.He has gone from being relatively stable to having our home taken over by the little things he sees everywhere from a family to a dog unde r the bed.At night his dreams are so horrid he wakes up screaming loud enough to
My husband is taking Stalevo 200 mg a day and with second dose takes Azilect 1 mg.He has gone from being relatively stable to having our home taken over by the little things he sees everywhere from a family to a dog unde r the bed.At night his dreams are so horrid he wakes up screaming loud enough to
bartogirl
in
Cure Parkinson's
9 years ago
Mucuna Purens as a source of dopamine
I am seriously contemplating mucuna purens for my P D--==PROBABLY CONTRARY TO MY NEURO'S ADVICE. Has anyone used M P successfully and at what doses.? Now I take sinemet , azilect, and comtan. I would appreciate any advice or suggestions or warnings,etc.
I am seriously contemplating mucuna purens for my P D--==PROBABLY CONTRARY TO MY NEURO'S ADVICE. Has anyone used M P successfully and at what doses.? Now I take sinemet , azilect, and comtan. I would appreciate any advice or suggestions or warnings,etc.
rustjudge
in
Cure Parkinson's
9 years ago
Stopping Stalevo and Sifrol
After 5 years of these meds i am really wanting to have a break from the Levedopo induced
Dyskinesia
and reference how bad and stiff i am with out any meds whatsoever. What was the way you stopped the meds if you you successfully did so? Cheers Andrew
After 5 years of these meds i am really wanting to have a break from the Levedopo induced
Dyskinesia
and reference how bad and stiff i am with out any meds whatsoever. What was the way you stopped the meds if you you successfully did so? Cheers Andrew
andrewdebsmith
in
Cure Parkinson's
9 years ago
PAGF
HI all I have been diagnosed with this wierd problem (pure akinesia gaite freezing) after first being dx'd with Parkinsons then PSP. I am on 100 mg of Amantadine 4 times a day. Does anyone else have this problem and how do you cope?
HI all I have been diagnosed with this wierd problem (pure akinesia gaite freezing) after first being dx'd with Parkinsons then PSP. I am on 100 mg of Amantadine 4 times a day. Does anyone else have this problem and how do you cope?
Ken_Butler
in
Cure Parkinson's
9 years ago
Why start treatment with levodopa?
The aim was to delay taking levodopa as long as possible which in turn would delay onset of motor fluctuations and
dyskinesia
. Inevitably, the loss of dopamine was not matched by agonist and MAOb, and then levodopa was introduced.
The aim was to delay taking levodopa as long as possible which in turn would delay onset of motor fluctuations and
dyskinesia
. Inevitably, the loss of dopamine was not matched by agonist and MAOb, and then levodopa was introduced.
grey
in
Cure Parkinson's
9 years ago
Hospital Assessment
Hi Everyone, Des has been in hospital for 10 days now. I am seeing a social worker this afternoon and hope to get carers coming in when they send him home.If they need 2 carers to move him do they not see that 1 72year old is struggling at home?. Some days have been good but Sunday they said there were
Hi Everyone, Des has been in hospital for 10 days now. I am seeing a social worker this afternoon and hope to get carers coming in when they send him home.If they need 2 carers to move him do they not see that 1 72year old is struggling at home?. Some days have been good but Sunday they said there were
loppylugs5
in
PSP Association
9 years ago
The Day Parkinson's Moved In By:Mary Bannister
With It's strange names.
dyskinesia
and Dystonia. What does that mean? What does that do? Oh God.....We had no clue!! It robbed us of all our dreams, It robbed us of our plans. But Parkinson's did show us something. Our love will always stand! It's strong! It's bound so tight!!
With It's strange names.
dyskinesia
and Dystonia. What does that mean? What does that do? Oh God.....We had no clue!! It robbed us of all our dreams, It robbed us of our plans. But Parkinson's did show us something. Our love will always stand! It's strong! It's bound so tight!!
lmbanni
in
Cure Parkinson's
9 years ago
DBS
I had DBS surgery in August & chose the asleep method done at UCSF. It's been slow going as my Graves Disease came to life again after being removed with radioactive iodine 10 yrs ago. We are still fine tuning & keep hoping for solutions. I take comtan & car/levo every hour & 45 minutes. The only
I had DBS surgery in August & chose the asleep method done at UCSF. It's been slow going as my Graves Disease came to life again after being removed with radioactive iodine 10 yrs ago. We are still fine tuning & keep hoping for solutions. I take comtan & car/levo every hour & 45 minutes. The only
wynn7
in
Cure Parkinson's
9 years ago
Levodopa Induced Dyskinesia
This thread is extracted from another thread which was large and cumbersome to use,
This thread is extracted from another thread which was large and cumbersome to use,
grey
in
Cure Parkinson's
9 years ago
Requip
The sinemet gives me swallowing problems and
dyskinesia
. Also anyone take LDN with requip? I am also having major problems with off times when I can't walk and at night when I have to get up for the bathroom. Please help!
The sinemet gives me swallowing problems and
dyskinesia
. Also anyone take LDN with requip? I am also having major problems with off times when I can't walk and at night when I have to get up for the bathroom. Please help!
michaela13
in
Cure Parkinson's
9 years ago
Stalevo meds for pd
Hi ,I've been stalevo for quite a few months ,I think I'm better on stalevo than sinemet I had pain every time I took the pain four times a day.went bk to neurologist he put me on higher dose age every 3 hours 150/25 I know take it 6 times a day and was missing my times and not being very punctual
Hi ,I've been stalevo for quite a few months ,I think I'm better on stalevo than sinemet I had pain every time I took the pain four times a day.went bk to neurologist he put me on higher dose age every 3 hours 150/25 I know take it 6 times a day and was missing my times and not being very punctual
Shol
in
Cure Parkinson's
9 years ago
Daily living
So frustrating! G is a smart man and sometimes that can be good and at others down right bad. We've both been sick since thanksgiving. We've had the norro-virus. Started feeling better from that on Tuesday. Then on Wednesday we both started with an upper respiratory virus. Not fun. Needless to say,
So frustrating! G is a smart man and sometimes that can be good and at others down right bad. We've both been sick since thanksgiving. We've had the norro-virus. Started feeling better from that on Tuesday. Then on Wednesday we both started with an upper respiratory virus. Not fun. Needless to say,
vsm0001
in
PSP Association
9 years ago
Help!
I tried selegeline but had so much
dyskinesia
I had to stop. I tried the patch for 2 months with no result, but only got worse. Now my new neuro prescribed Requip. But i didn't realize that they were large pills and i can't swallow them. And they're timed release so i can't cut them.
I tried selegeline but had so much
dyskinesia
I had to stop. I tried the patch for 2 months with no result, but only got worse. Now my new neuro prescribed Requip. But i didn't realize that they were large pills and i can't swallow them. And they're timed release so i can't cut them.
michaela13
in
Cure Parkinson's
9 years ago
My schedule of meds
I was prescribe w/PD in 2010 and all know the sin toms that we experience, im taking 4 times a day CARDIDOPA.LEVADOPA 1 tab every morning AMANTADINE, and at lunch 1 tab of BENZTROPINE for stiffness unti my wife found that CO cures PD I just started and my question is shall i still take the meds with
I was prescribe w/PD in 2010 and all know the sin toms that we experience, im taking 4 times a day CARDIDOPA.LEVADOPA 1 tab every morning AMANTADINE, and at lunch 1 tab of BENZTROPINE for stiffness unti my wife found that CO cures PD I just started and my question is shall i still take the meds with
serg
in
Cure Parkinson's
9 years ago
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