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Unexplained lack of PMR pains!
Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from Pmrpro . since then.I've had a few complications, constipation, low sodium and potassium but they seem to have been sorted out . My question is that my Pmr pains all seem to have gone away .! Do you think
Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from Pmrpro . since then.I've had a few complications, constipation, low sodium and potassium but they seem to have been sorted out . My question is that my Pmr pains all seem to have gone away .! Do you think
Comben
in
PMRGCAuk
11 months ago
double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
5 months ago
Radiation Proctitis looking for advise please.
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
Bettys-rose
in
Pelvic Radiation Disease Association
5 months ago
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What TSH level is too low on NDT + low sodium
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Juliet_22
in
Thyroid UK
11 months ago
Chronic diarrhea after chemo; any suggestions?
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Sybil71
in
My Ovacome
6 months ago
Burning intestines not GERD or heartburn
Hi, I wanted to ask if anyone experiences burning intestines when they have violent liquid bowels? It’s what I would call nerve pain as it prickles and burns in my upper abdomen not my stomach this is not GERD or heartburn it is my intestines that burn and the burning goes through to my back. It is
Hi, I wanted to ask if anyone experiences burning intestines when they have violent liquid bowels? It’s what I would call nerve pain as it prickles and burns in my upper abdomen not my stomach this is not GERD or heartburn it is my intestines that burn and the burning goes through to my back. It is
MyStar86
in
IBS Network
6 months ago
Radiation and diarrhea/ GI issues/ please help
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
alysona828
in
Advanced Prostate Cancer
6 months ago
Night sweats
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Birdlady2021
in
MPN Voice
11 months ago
IBS (d) worse on holiday
Husband & I decided to have a few days break after new year & booked 3 nights in a hotel. Fine the first day & then off I went. First movement normal & then becoming more liquid plus clear mucus, nausea, cramps & burping. Thank god for Imodium & Buscopan. I did not eat foolishly, don’t drink or smoke
Husband & I decided to have a few days break after new year & booked 3 nights in a hotel. Fine the first day & then off I went. First movement normal & then becoming more liquid plus clear mucus, nausea, cramps & burping. Thank god for Imodium & Buscopan. I did not eat foolishly, don’t drink or smoke
maccafan1954
in
IBS Network
6 months ago
iron deficiency
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Birdlady2021
in
MPN Voice
11 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
11 months ago
IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
7 months ago
Just need to talk.
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
AndreaBabyC
in
Kidney Disease
11 months ago
Has anyone been using TUDCA or Restore Gold? Have you seen slowing or halting of progression of symptoms?
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
kathy775
in
Cure Parkinson's
11 months ago
Change of diet
Wanted to share that I was also told at my LSE clinic to rethink my diet. They advised the following:- Peel all fruit and vegetables before eating Try to decrease the amount of food on my plate by say a third Avoid wholemeal or seeded bread stick to white Avoid nuts and seeds together and limit the
Wanted to share that I was also told at my LSE clinic to rethink my diet. They advised the following:- Peel all fruit and vegetables before eating Try to decrease the amount of food on my plate by say a third Avoid wholemeal or seeded bread stick to white Avoid nuts and seeds together and limit the
Hidden
in
Pelvic Radiation Disease Association
7 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
11 months ago
Light headed.
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
benmaise
in
AF Association
11 months ago
Newly diagnosed; so scared, confused, and depressed
Hello. I'm so glad to have found this supportive and helpful community! I apologize for the long post. I first noticed when I received routine bloodwork results a year ago that my eGFR was flagged as low at 80. Since I didn't know what an eGFR was, I started researching and was alarmed to read that
Hello. I'm so glad to have found this supportive and helpful community! I apologize for the long post. I first noticed when I received routine bloodwork results a year ago that my eGFR was flagged as low at 80. Since I didn't know what an eGFR was, I started researching and was alarmed to read that
GracieMom
in
Kidney Disease
10 months ago
My 80 year-old dad with MPCa, broke his leg and now seems to be giving up. Advice on best anti-anxiety meds desperately needed.
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Lemonpower
in
Advanced Prostate Cancer
14 days ago
repeat blood test re U&E's
hiya, i received a phone call regarding my blood test (from yesterday) and I have been told the dr needs to repeat my U&E's but no explanation. can anyone give me a reason why they are asking for this plz Urea and electrolytes Serum sodium level 129 mmol/L [133.0 - 146.0]; Below low reference limit
hiya, i received a phone call regarding my blood test (from yesterday) and I have been told the dr needs to repeat my U&E's but no explanation. can anyone give me a reason why they are asking for this plz Urea and electrolytes Serum sodium level 129 mmol/L [133.0 - 146.0]; Below low reference limit
sussie666
in
Thyroid UK
11 months ago
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