Experiences with

Dimethyl fumarate

This article about DMF was released on 2020 : https://adrenoleukodystrophynews.com/2020/01/28/dimethyl-fumarate-earns-orphan-drug-designation-ald-european-medicines-agency/#:~:text=Dimethyl%20fumarate%20%E2%80%94%20an%20approved%20therapy%20for%20multiple,Medicines%20Agency%20for%20the%20treatment%20of

I am currently on Dimethyl Fumarate and it helps a bit so I'm a bit more active. However, I still have a hard time getting around, and I've been sleeping 20+ hours a day for the past few months. It isn't even good sleep, very interruped.

Received an email about this today: European Commission decision supports Biogen's pursuit of market exclusivity The European Commission (EC) has withdrawn its marketing authorizations for generic versions of Tecfidera (dimethyl fumarate), an oral therapy approved in Europe for relapsing-remitting

Hi guys, Had a blood test at my GP after a 3 month course of 305mg Ferrous Fumarate and got results this morning Serum ferritin level: 30 ng/ml [30 - 150]; Note raised CRP. The Ferritin value may be lower than this once; the acute phase response is over.; Ferritin 15-30ug/L may suggest depletion of

Hi everyone, Firstly I'd just ike to say how great you all are with the info, help & support you provide on this site. I've always been someone who likes to know everything I can about a condition and to make sure I do all I can to help myself when I'm faced with anything new health wise whether it

This is my first post in this part of Health Unlocked after 15 months in the British Heart Foundation section. In 2014, I had a nasty insect bite when working next to our Atomic Weapons Establishment (!). This was more a chew than a tick bite but I had symptoms similar to Lyme Disease (exhaustion,

Hello everyone I have just had a ferritin blood test and been a bit blown away by the result. It was a staggering 155 with a range of 13-150. I haven’t achieved such giddy heights since childhood. It means that the ferrous fumarate is working. Sadly my hair is still falling out, so it can’t be the ferritin

Hello again. I’ve taken my last Ropinirole after warning off just 1 mg. Augmentation has gone in the day but OMG my legs are so bad in the night. Dr gave me 15mg codeine, I took 2 at 12.45am. Think I slept for 90 minutes. Had to take 2 co-codamol at 5am but never helped. I’ve stated taking ferrous fumarate

Hi there, so I've been on gabapentin for nearly 5 weeks, now 500mg..haven't noticed a great deal of difference, maybe not as restless but still not sleeping great..hope they start to work soon.. My question is though, my ferritin levels were at 24 so my gp gave me ferrous fumarate 210mg for my iron levels

Blood results from the local NHS neurologist say: “Iron level 22 falls within normal range” Is this ferritin?! This was after 2 weeks of being on ferrous fumarate and it was 24! 🙄🙄🙄 I know the levels should be over 100 at least as per Mayo. 😡 Transferrin Saturations 26% Transferrin level 3.4

In May of this year my Ferritin level was 11 (range 15-200) and I was given Ferrous Fumarate and told to have bloods done again in a few months. My recent results were 19. I know Ferritin levels are notoriously slow to rise but I was surprised at the very slow progress....Does this seem right?

Saw the local consultant here in Aberdeen (not a RLS specialist) had a thick pile of paperwork, journals etc to give him. However, these were not needed (yet!) I gave him my last week symptom severity scale and monitor (from RLS-UK.ORG) which he will scan into my notes and encouraged me to bring new

Hi!Can anyone shed any light on these please? May well be being v dim, but I think Ferritin should be higher...what does just out of range Transferrin mean please? CRP is less than 4. On GP's advice I've been taking ferrous fumarate for 3 months - ferritin was 7 in May, so at least that's improving..

Hi,I posted recently a bit confused due to ferritin results... March 25th 48 (nhs) 8wks later after loading dose-37 (nhs) 2wks ago 85 (medichecks pinprk) after 1 wk not taking iron-advanced thyroid check. Last wk 110 (medichecks Iron Panel-no.other results worked) I've only been taking 1 ferrous fumarate

So I got my yearly iron panel check, and my ferritin had dropped to 42! even though I eat iron rich foods and take vitamin C with meals! All my vitamin levels are now optimal I take an expensive powder form of probiotic by Biomel and the Rheal gut feel greens powder, all supporting my gut health and

Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid

just wanted to share my latest results..previously ferritin was 24 that was early May..started with ferrous fumarate and then 3 arrows also removed gluten. I didn’t take the 3 arrows for 2 days before this test to see if my level dropped as it was 84 the week before. i had to wait for a retest as

I just tried the dimethyl fumarate (generic Tecfidera) which made me break out in severe hives. So right now I am on no drugs and must say I feel really good being drug free. My neurologist feels that she wants me on a DMT for at least a few more years (I am 64).

I’ve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here first… For ref, my levo was increased from 125 to 150mcg in February 24. I’ve been feeling

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