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Experiences with
Deep brain stimulation (DBS)
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When is it time to have DBS surgery?
merlethegirl
in
Cure Parkinson's
12 years ago
I HAVE A DBS,THE SENSATION, I HATE CANT BEAR IT, ANY ONE ELSE FEEL THIS ,,,,,,ANY SUGGESTIONS PROFESSOR
professor
in
Cure Parkinson's
12 years ago
fibromyalgia book
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
electricjaws
in
Fibromyalgia Action UK
12 years ago
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DBS??
Hi need ur input on this.... my family thinks I shud consider
DBS
and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it....
Hi need ur input on this.... my family thinks I shud consider
DBS
and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it....
SuKas
in
Cure Parkinson's
12 years ago
PARKINSONS CURE WHIT ,IM QUITE RAATTY LOOKING
GROUNDS OF BEING DOWN THE PAN AND THATS NOT SO FAR OFF THE MARK A CURE , I RECKON THERE IS ONE BUT IT REMAINS UNANOUNCED UNTIL A CHEAPER SOLUTION IS FOUND,YEA BABY MEDICAL TRIALS F ANYONE HAS TRIED TO BE A TRIALIST COLOUR RELIGION HEIGHT WEIGHT.HAD DIAHORHEA, LESS THAN 5 TIMES,BJT NO
DBS
GROUNDS OF BEING DOWN THE PAN AND THATS NOT SO FAR OFF THE MARK A CURE , I RECKON THERE IS ONE BUT IT REMAINS UNANOUNCED UNTIL A CHEAPER SOLUTION IS FOUND,YEA BABY MEDICAL TRIALS F ANYONE HAS TRIED TO BE A TRIALIST COLOUR RELIGION HEIGHT WEIGHT.HAD DIAHORHEA, LESS THAN 5 TIMES,BJT NO
DBS
professor
in
Cure Parkinson's
12 years ago
My DBS Story
On the way down to Phoenix for my surgery, I was re-reading about
DBS
.
On the way down to Phoenix for my surgery, I was re-reading about
DBS
.
SherriW
in
Cure Parkinson's
12 years ago
Another treatment with exciting results - Duodopa (levadopa-carbidopa gel)
I was thinking on
DBS
and reading the Postings on it. What an amazing procedure. The neuro surgeon i last heard talking about it does it under general anaesthetic using a DAT scan ( there isa scanner in the theatre!) for positioning of the probes.
I was thinking on
DBS
and reading the Postings on it. What an amazing procedure. The neuro surgeon i last heard talking about it does it under general anaesthetic using a DAT scan ( there isa scanner in the theatre!) for positioning of the probes.
Hikoi
in
Cure Parkinson's
12 years ago
Does anyone suffer from an insatiable sweet tooth
Before I had
DBS
I had lost 50lbs since Dx. Then
DBS
and I stacked that 50 right back on and I can't get rid of it doesn't matter how hard I try. Even if I consume 1000 calories a day. Anyone else have similar problems and/or solutions. Thanks
Before I had
DBS
I had lost 50lbs since Dx. Then
DBS
and I stacked that 50 right back on and I can't get rid of it doesn't matter how hard I try. Even if I consume 1000 calories a day. Anyone else have similar problems and/or solutions. Thanks
NoSringsAussie
in
Cure Parkinson's
12 years ago
Newbie w/DBS
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
Thumbpick
in
Cure Parkinson's
12 years ago
Happy days ... re-implantation date in site
Then in late 2010 my wonderful wife got me into a world leading
DBS
program at Ohio State Medical Center. I was short tracked for the
DBS
in-plant.
Then in late 2010 my wonderful wife got me into a world leading
DBS
program at Ohio State Medical Center. I was short tracked for the
DBS
in-plant.
NoSringsAussie
in
Cure Parkinson's
12 years ago
To have or to have not
So it was determined that I would be a good candidate for
DBS
. I was scheduled for September. With much trepidation I was admitted to the hospital and prepped for the surgery. Everything went well and in two week I was scheduled to be turned on.
So it was determined that I would be a good candidate for
DBS
. I was scheduled for September. With much trepidation I was admitted to the hospital and prepped for the surgery. Everything went well and in two week I was scheduled to be turned on.
Sadiesadie
in
Cure Parkinson's
12 years ago
MY KNEW NEUROLOGIST DIAGNOSIS. ???
Adanced parkinson's disease Bilateral STN
DBS
Dopamine Disregulation Syndrome Hyper Somnolence. Can any one tell me what she is talking about . your EXPORT.
Adanced parkinson's disease Bilateral STN
DBS
Dopamine Disregulation Syndrome Hyper Somnolence. Can any one tell me what she is talking about . your EXPORT.
export
in
Cure Parkinson's
12 years ago
How did I get turned off?
Somehow both of my stimulators (
DBS
) were turned off on saturday (I think) and I had a miserable 4 days before the doc turned me back on. The thing is I don't know how this happened after 7 years . I didn't leave the house . Very bizzare and scary to see how sick I really am
Somehow both of my stimulators (
DBS
) were turned off on saturday (I think) and I had a miserable 4 days before the doc turned me back on. The thing is I don't know how this happened after 7 years . I didn't leave the house . Very bizzare and scary to see how sick I really am
Rick
in
Cure Parkinson's
12 years ago
Poem No. 3
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
FifteenyearsPD
in
Cure Parkinson's
13 years ago
My Experience With Deep Brain Stimulation
One of the first things that bothered me about
DBS
was the fact that the first surgery was performed, not on me, but on a laptop computer. Not on lab rats, space monkeys or even crash pad dummies, but a freeking laptop. That's sounds like a practice swing to me.
One of the first things that bothered me about
DBS
was the fact that the first surgery was performed, not on me, but on a laptop computer. Not on lab rats, space monkeys or even crash pad dummies, but a freeking laptop. That's sounds like a practice swing to me.
jeffjennings
in
Cure Parkinson's
13 years ago
I was dx 9 years ago, had DBS last year. Recently all toes and fingers feel ridged and sometimes lose my grip. Is this a PD progression?
Pelley
in
Cure Parkinson's
12 years ago
Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
13 years ago
RE: On being Affaid
The day of my first surgery came up and if you don know what
DBS
surgery is, goggle it .. Its not a pleasant operation to say the least .your awake during the whole process ..
The day of my first surgery came up and if you don know what
DBS
surgery is, goggle it .. Its not a pleasant operation to say the least .your awake during the whole process ..
Captsteve
in
Cure Parkinson's
13 years ago
Something new
It's happening on the left side. the side he's complain to the neuro in B'ham about the wires being too tight from the
dbs
surgery. Was told to give it time. It's been about 3 years. Will ask again when we go back on the 15th. With these results maybe something will be done.
It's happening on the left side. the side he's complain to the neuro in B'ham about the wires being too tight from the
dbs
surgery. Was told to give it time. It's been about 3 years. Will ask again when we go back on the 15th. With these results maybe something will be done.
DANIEL
in
Cure Parkinson's
13 years ago
Is it really a disease?
In the case of the frozen woman I met with the
DBS
, she had recently had a tuning of the
DBS
and the technicians had made a mistake with the device, so the week after she was fine again. But even when she couldn’t walk on the ground, she could run up the stairs! WYH? Dalo
In the case of the frozen woman I met with the
DBS
, she had recently had a tuning of the
DBS
and the technicians had made a mistake with the device, so the week after she was fine again. But even when she couldn’t walk on the ground, she could run up the stairs! WYH? Dalo
dalo
in
Cure Parkinson's
13 years ago
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