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Experiences with
Deep brain stimulation (DBS)
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When is it time to have DBS surgery?
merlethegirl
in
Cure Parkinson's
12 years ago
I HAVE A DBS,THE SENSATION, I HATE CANT BEAR IT, ANY ONE ELSE FEEL THIS ,,,,,,ANY SUGGESTIONS PROFESSOR
professor
in
Cure Parkinson's
12 years ago
fibromyalgia book
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
electricjaws
in
Fibromyalgia Action UK
12 years ago
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DBS??
Hi need ur input on this.... my family thinks I shud consider
DBS
and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it....
Hi need ur input on this.... my family thinks I shud consider
DBS
and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it....
SuKas
in
Cure Parkinson's
12 years ago
PARKINSONS CURE WHIT ,IM QUITE RAATTY LOOKING
GROUNDS OF BEING DOWN THE PAN AND THATS NOT SO FAR OFF THE MARK A CURE , I RECKON THERE IS ONE BUT IT REMAINS UNANOUNCED UNTIL A CHEAPER SOLUTION IS FOUND,YEA BABY MEDICAL TRIALS F ANYONE HAS TRIED TO BE A TRIALIST COLOUR RELIGION HEIGHT WEIGHT.HAD DIAHORHEA, LESS THAN 5 TIMES,BJT NO
DBS
GROUNDS OF BEING DOWN THE PAN AND THATS NOT SO FAR OFF THE MARK A CURE , I RECKON THERE IS ONE BUT IT REMAINS UNANOUNCED UNTIL A CHEAPER SOLUTION IS FOUND,YEA BABY MEDICAL TRIALS F ANYONE HAS TRIED TO BE A TRIALIST COLOUR RELIGION HEIGHT WEIGHT.HAD DIAHORHEA, LESS THAN 5 TIMES,BJT NO
DBS
professor
in
Cure Parkinson's
12 years ago
My DBS Story
On the way down to Phoenix for my surgery, I was re-reading about
DBS
.
On the way down to Phoenix for my surgery, I was re-reading about
DBS
.
SherriW
in
Cure Parkinson's
12 years ago
Another treatment with exciting results - Duodopa (levadopa-carbidopa gel)
I was thinking on
DBS
and reading the Postings on it. What an amazing procedure. The neuro surgeon i last heard talking about it does it under general anaesthetic using a DAT scan ( there isa scanner in the theatre!) for positioning of the probes.
I was thinking on
DBS
and reading the Postings on it. What an amazing procedure. The neuro surgeon i last heard talking about it does it under general anaesthetic using a DAT scan ( there isa scanner in the theatre!) for positioning of the probes.
Hikoi
in
Cure Parkinson's
12 years ago
Does anyone suffer from an insatiable sweet tooth
Before I had
DBS
I had lost 50lbs since Dx. Then
DBS
and I stacked that 50 right back on and I can't get rid of it doesn't matter how hard I try. Even if I consume 1000 calories a day. Anyone else have similar problems and/or solutions. Thanks
Before I had
DBS
I had lost 50lbs since Dx. Then
DBS
and I stacked that 50 right back on and I can't get rid of it doesn't matter how hard I try. Even if I consume 1000 calories a day. Anyone else have similar problems and/or solutions. Thanks
NoSringsAussie
in
Cure Parkinson's
12 years ago
MY KNEW NEUROLOGIST DIAGNOSIS. ???
Adanced parkinson's disease Bilateral STN
DBS
Dopamine Disregulation Syndrome Hyper Somnolence. Can any one tell me what she is talking about . your EXPORT.
Adanced parkinson's disease Bilateral STN
DBS
Dopamine Disregulation Syndrome Hyper Somnolence. Can any one tell me what she is talking about . your EXPORT.
export
in
Cure Parkinson's
12 years ago
Happy days ... re-implantation date in site
Then in late 2010 my wonderful wife got me into a world leading
DBS
program at Ohio State Medical Center. I was short tracked for the
DBS
in-plant.
Then in late 2010 my wonderful wife got me into a world leading
DBS
program at Ohio State Medical Center. I was short tracked for the
DBS
in-plant.
NoSringsAussie
in
Cure Parkinson's
12 years ago
How did I get turned off?
Somehow both of my stimulators (
DBS
) were turned off on saturday (I think) and I had a miserable 4 days before the doc turned me back on. The thing is I don't know how this happened after 7 years . I didn't leave the house . Very bizzare and scary to see how sick I really am
Somehow both of my stimulators (
DBS
) were turned off on saturday (I think) and I had a miserable 4 days before the doc turned me back on. The thing is I don't know how this happened after 7 years . I didn't leave the house . Very bizzare and scary to see how sick I really am
Rick
in
Cure Parkinson's
12 years ago
Newbie w/DBS
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
Thumbpick
in
Cure Parkinson's
12 years ago
To have or to have not
So it was determined that I would be a good candidate for
DBS
. I was scheduled for September. With much trepidation I was admitted to the hospital and prepped for the surgery. Everything went well and in two week I was scheduled to be turned on.
So it was determined that I would be a good candidate for
DBS
. I was scheduled for September. With much trepidation I was admitted to the hospital and prepped for the surgery. Everything went well and in two week I was scheduled to be turned on.
Sadiesadie
in
Cure Parkinson's
12 years ago
Poem 5Have had 3 procedures of DBS and awaiting programming
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
FifteenyearsPD
in
Cure Parkinson's
12 years ago
When all you have is luck... but then you loose hope for luck
Did a bilateral
DBS
within 4months of our first visit. I thought then as I do now that this man was a hero and my saviour. The surgery que for Rezai was in 2010 2 years, it is now 3-4. Placement occurred in April 2011. I had amazing results.
Did a bilateral
DBS
within 4months of our first visit. I thought then as I do now that this man was a hero and my saviour. The surgery que for Rezai was in 2010 2 years, it is now 3-4. Placement occurred in April 2011. I had amazing results.
NoSringsAussie
in
Cure Parkinson's
12 years ago
HI DOES ANY ONE GET VERY BAD PAIN IN THE FACE ???
Face swollen My GP can see my face HAS ANY ONE WHO HAS A
DBS
HAD BAD PAIN WHICH THEY PUT DOWN TO THE
DBS
. CAN
DBS
GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
Face swollen My GP can see my face HAS ANY ONE WHO HAS A
DBS
HAD BAD PAIN WHICH THEY PUT DOWN TO THE
DBS
. CAN
DBS
GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
export
in
Cure Parkinson's
12 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
12 years ago
A little bit down
I'm definitely not too keen on the idea of deep brain stimulation (
DBS
). I'm going to go have a shower because I was at work today and I have somehow managed, despite changing clothes, to retain the smell of hamster whizz, possibly in my hair so I am going for shower two now!
I'm definitely not too keen on the idea of deep brain stimulation (
DBS
). I'm going to go have a shower because I was at work today and I have somehow managed, despite changing clothes, to retain the smell of hamster whizz, possibly in my hair so I am going for shower two now!
LittleClapham
in
Tourettes Action
12 years ago
DBS I WOULD LIKE TO HERE FROM ANY ONE WHO HAS ONE.
Hi would like to here from any one who has a
DBS
and know,s how many volts . Since you have had the
DBS
Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
Hi would like to here from any one who has a
DBS
and know,s how many volts . Since you have had the
DBS
Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
export
in
Cure Parkinson's
12 years ago
DBS
Abstract BACKGROUND: The effects of constant-current deep brain stimulation (
DBS
) have not been studied in controlled trials in patients with Parkinson's disease. We aimed to assess the safety and efficacy of bilateral constant-current
DBS
of the subthalamic nucleus.
Abstract BACKGROUND: The effects of constant-current deep brain stimulation (
DBS
) have not been studied in controlled trials in patients with Parkinson's disease. We aimed to assess the safety and efficacy of bilateral constant-current
DBS
of the subthalamic nucleus.
Hidden
in
Cure Parkinson's
12 years ago
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