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Cyclophosphamide
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Neutrophils have bottomed out.
I am supposed to have finished my 4th round of FCR last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4. Here we are now two weeks after I was supposed to start round 4 and my neutrophils now read
I am supposed to have finished my 4th round of FCR last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4. Here we are now two weeks after I was supposed to start round 4 and my neutrophils now read
CallmeT
in
CLL Support
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran)
Cyclophosphamide
(Cytoxan) (oral) TNF biologics
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran)
Cyclophosphamide
(Cytoxan) (oral) TNF biologics
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
These medications include: Methotrexate JAK inhibitors (ex: Xeljanz, Olumiant, Rinvoq) Abatacept (Orencia), injectable or IV form Rituximab (Rituxan)
Cyclophosphamide
infusion Even if your doctor decides you should not taper off any of these medications, it’s still worth it to get the vaccine.
These medications include: Methotrexate JAK inhibitors (ex: Xeljanz, Olumiant, Rinvoq) Abatacept (Orencia), injectable or IV form Rituximab (Rituxan)
Cyclophosphamide
infusion Even if your doctor decides you should not taper off any of these medications, it’s still worth it to get the vaccine.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
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Advice, please
APS and multiple sclerosis after a positive lumbar puncture and MRI had previously suffered multiple miscarriages multiple thrombotic events including iliofemoral DVT and pulmonary embolism They decided to treat my condition as a combined case of MS and APS Prednisilone drip, azathioprine, and then
cyclophosphamide
APS and multiple sclerosis after a positive lumbar puncture and MRI had previously suffered multiple miscarriages multiple thrombotic events including iliofemoral DVT and pulmonary embolism They decided to treat my condition as a combined case of MS and APS Prednisilone drip, azathioprine, and then
cyclophosphamide
mully
in
Hughes Syndrome APS Forum
3 years ago
What’s the next step.
Hi folks Bloods have doubled over past few months and was Tod yesterday I’ve relapsed. I’m 8 years post FCR and now being prepped to commence one of three options in the next few weeks after ct scan etc. Options are 1/ Venetoclax. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely.
Hi folks Bloods have doubled over past few months and was Tod yesterday I’ve relapsed. I’m 8 years post FCR and now being prepped to commence one of three options in the next few weeks after ct scan etc. Options are 1/ Venetoclax. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely.
Billys60
in
CLL Support
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
Cyclophosphamide
infusion: Time administration so it’s one week after each COVID-19 vaccine dose Other Recommendations for Before and After Getting a COVID-19 Vaccine The guidance also includes these additional pointers to keep in mind for before and after getting the vaccine: There’s no preference
Cyclophosphamide
infusion: Time administration so it’s one week after each COVID-19 vaccine dose Other Recommendations for Before and After Getting a COVID-19 Vaccine The guidance also includes these additional pointers to keep in mind for before and after getting the vaccine: There’s no preference
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Australian current treatment legislation
Is it correct that in Australia currently for a SLL /CLL patient, if you are NOT 17p del but still unmutated igvh and mutated tp53 ( meaning FCR is unlikely to be effective) , you will still need to go through FCR before having an option like ventoclax or or a BTK inhibitor?
Is it correct that in Australia currently for a SLL /CLL patient, if you are NOT 17p del but still unmutated igvh and mutated tp53 ( meaning FCR is unlikely to be effective) , you will still need to go through FCR before having an option like ventoclax or or a BTK inhibitor?
Waves01
in
CLL Support
3 years ago
any ideas
hi post 3mnths fcr haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou
hi post 3mnths fcr haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou
kel555
in
CLL Support
3 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free survival (PFS) compared to patients treated with fludarabine,
cyclophosphamide
approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free survival (PFS) compared to patients treated with fludarabine,
cyclophosphamide
AussieNeil
Administrator
in
CLL Support
3 years ago
Painful feet with Lupus?
I was diagnosed with lupus nephritis last week and started
cyclophosphamide
yesterday. I have noticed this week that when I have a bath it is really painful on my feet, like it is when you submerge a burnt body part in hot water.
I was diagnosed with lupus nephritis last week and started
cyclophosphamide
yesterday. I have noticed this week that when I have a bath it is really painful on my feet, like it is when you submerge a burnt body part in hot water.
Lupuslost
in
LUPUS UK
3 years ago
bmb showing partial remission after 6mnths fcr treatment
hi all ive had my bone marrow results which shows. pr. partial remission after 6 cycles of fcr finished in Jan 2021...unmutated,,,bloods show ..hb..112...plts.55...neuts..0.7 ..wbc..2.0...my question his,,is this a bad thing the p.r.and as anyone else who is un mutated had the same ,,,thank you ..kell
hi all ive had my bone marrow results which shows. pr. partial remission after 6 cycles of fcr finished in Jan 2021...unmutated,,,bloods show ..hb..112...plts.55...neuts..0.7 ..wbc..2.0...my question his,,is this a bad thing the p.r.and as anyone else who is un mutated had the same ,,,thank you ..kell
kel555
in
CLL Support
3 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus
cyclophosphamide
and rituximab
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus
cyclophosphamide
and rituximab
Jm954
Administrator
in
CLL Support
3 years ago
Ageing pet’s effect on my health
Our son has come home for a visit and is appalled at the smell of our old dog. She is incontinent and wears nappies or lies on sheets I change several times a day. She insists on sleeping in our room at night, or barks all night long. I love her dearly, but I have noticed I cough a lot when I get up
Our son has come home for a visit and is appalled at the smell of our old dog. She is incontinent and wears nappies or lies on sheets I change several times a day. She insists on sleeping in our room at night, or barks all night long. I love her dearly, but I have noticed I cough a lot when I get up
Mandy56
in
CLL Support
3 years ago
VACCINE ANTIBOBY TEST STUDY
During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine
During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine
steve5441
in
CLL Support
3 years ago
In need of positive vibes!
🤦♀️ I posted a couple of months ago asking about ILD which I had just been diagnosed with and asked if anyone had received
cyclophosphamide
treatment for it. Well... I should have started treatment a month ago but due to one infection after another and two teeth extracted it has been delayed.
🤦♀️ I posted a couple of months ago asking about ILD which I had just been diagnosed with and asked if anyone had received
cyclophosphamide
treatment for it. Well... I should have started treatment a month ago but due to one infection after another and two teeth extracted it has been delayed.
Susieliz39
in
LUPUS UK
3 years ago
Nausea with FCR
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Daisy1993
in
CLL Support
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
Jm954
in
Leukaemia CARE
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
Inevitable, but still a blow and a huge disappointment
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Rich316
in
CLL Support
3 years ago
Lupus and Bowel Bleeding
She has had Rituximab and
cyclophosphamide
infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.
She has had Rituximab and
cyclophosphamide
infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.
chezevo
in
LUPUS UK
3 years ago
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