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Experiences with
Cyclophosphamide
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Part of my treatment regime is
cyclophosphamide
, exactly the same treatment as, for example, ladies with breast cancer are given. Like any oncology patient, my prognosis without this treatment is very poor.
Part of my treatment regime is
cyclophosphamide
, exactly the same treatment as, for example, ladies with breast cancer are given. Like any oncology patient, my prognosis without this treatment is very poor.
Wellsie
in
Vasculitis UK
12 years ago
Hi. I have Takayasu's Arteritis and over the last 18 months my disease activity has progressed despite a recent course of cyclophosphamide.
There is now talk of me starting infliximab. I'm interested to hear what people's experiences are with this drug - good or bad! Thanks. Jane
There is now talk of me starting infliximab. I'm interested to hear what people's experiences are with this drug - good or bad! Thanks. Jane
JElsom
in
Vasculitis UK
12 years ago
Mycophenolate..HELP
Mycophenolate,
Cyclophosphamide
and one other. Is this correct? And has anyone else found that Mycophenolate just made them worse? EG> Breathlessness, chest pains, bowel problems, rashes? Thanks for reading! xx
Mycophenolate,
Cyclophosphamide
and one other. Is this correct? And has anyone else found that Mycophenolate just made them worse? EG> Breathlessness, chest pains, bowel problems, rashes? Thanks for reading! xx
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
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Do you feel better after completing cyclophosphide treatment?
Hello - does everyone feel better when they have completed their
cyclophosphamide
treatment? I finished mine two weeks ago and dont feel any better than I did before I started. Before starting the treatment I was on hydroxychloriquine and the weakness in my legs had gone.
Hello - does everyone feel better when they have completed their
cyclophosphamide
treatment? I finished mine two weeks ago and dont feel any better than I did before I started. Before starting the treatment I was on hydroxychloriquine and the weakness in my legs had gone.
Mooka
in
Vasculitis UK
12 years ago
Progress and chemo cycle 3
However, I have been assured that the ONLY treatment option I have with PAN is
cyclophosphamide
, so I guess I must be on the right stuff. My prognosis without it may only be 18 - 24 months at best. Apparently I am only the second patient UHCW have treated with PAN in 14 years.
However, I have been assured that the ONLY treatment option I have with PAN is
cyclophosphamide
, so I guess I must be on the right stuff. My prognosis without it may only be 18 - 24 months at best. Apparently I am only the second patient UHCW have treated with PAN in 14 years.
Wellsie
in
Vasculitis UK
12 years ago
Lower Intestinal Bleed
Is it possible to have vasculitis flare/spread during
cyclophosphamide
treatment ? Does anyone have any experience similar?
Is it possible to have vasculitis flare/spread during
cyclophosphamide
treatment ? Does anyone have any experience similar?
Wellsie
in
Vasculitis UK
12 years ago
Son of 14 just diagnosed with WG, any advice?
Treatment continues and
cyclophosphamide
starts on Monday. Are there any other young sufferers of this awful condition in the West Country?
Treatment continues and
cyclophosphamide
starts on Monday. Are there any other young sufferers of this awful condition in the West Country?
julesfarm
in
Vasculitis UK
12 years ago
Wegeners
years ago but recovered after being on a high dose of pred after about 8 months, at that time no-one could be sure if it had been Wegeners, i would say i was then 70% back to feeling my normal self. then 3 weeks ago i had another flare up this time its positive Wegeners Gran, im now on 60 pred and 6
Cyclophosphamide
years ago but recovered after being on a high dose of pred after about 8 months, at that time no-one could be sure if it had been Wegeners, i would say i was then 70% back to feeling my normal self. then 3 weeks ago i had another flare up this time its positive Wegeners Gran, im now on 60 pred and 6
Cyclophosphamide
prudence
in
Vasculitis UK
12 years ago
Keeping your consultant team
I've just started
cyclophosphamide
treatment and am really don't reluctant to change my healthcare team, given that getting transport to Coventry is not currently an issue.
I've just started
cyclophosphamide
treatment and am really don't reluctant to change my healthcare team, given that getting transport to Coventry is not currently an issue.
Wellsie
in
Vasculitis UK
12 years ago
Dad diagnosed with Wegener's Granulomatosis
Now on therapy with prednisone (50mg per day and cutting down 5 mg every week) and a monthly dose of
cyclophosphamide
(I believe called Cytoxan). Any help on how to understand what he is going through and support him both mentally and physically would be very appreciated.
Now on therapy with prednisone (50mg per day and cutting down 5 mg every week) and a monthly dose of
cyclophosphamide
(I believe called Cytoxan). Any help on how to understand what he is going through and support him both mentally and physically would be very appreciated.
zmajevi
in
Vasculitis UK
12 years ago
First cyclophosphamide pulse
On the menu today was ondansetron 8mg, methyl prednisilone 500mg,
cyclophosphamide
1g and Mesna 600mg. Was in for a total of 5 hours. Feeling pretty weak and washed out now. Have a low grade temperature and ache all over.
On the menu today was ondansetron 8mg, methyl prednisilone 500mg,
cyclophosphamide
1g and Mesna 600mg. Was in for a total of 5 hours. Feeling pretty weak and washed out now. Have a low grade temperature and ache all over.
Wellsie
in
Vasculitis UK
12 years ago
PAN
I wondered if anyone has ant good references material and experience of
Cyclophosphamide
pluse therapy in the treatment of PAN?
I wondered if anyone has ant good references material and experience of
Cyclophosphamide
pluse therapy in the treatment of PAN?
Wellsie
in
Vasculitis UK
12 years ago
Has anyone had their eggs frozen before starting Cyclophosphamide infusions?
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
Spots/Rash on my arms
The lupus has damaged my lungs and I have had several medication including
Cyclophosphamide
but nothing has helped. I am now down to Prednisolone 10mg. Whilst sitting down on Tuesday I suddenly felt an itching on my arms and to my amazement there were these spots on my arms in clusters.
The lupus has damaged my lungs and I have had several medication including
Cyclophosphamide
but nothing has helped. I am now down to Prednisolone 10mg. Whilst sitting down on Tuesday I suddenly felt an itching on my arms and to my amazement there were these spots on my arms in clusters.
Maureenpearl
in
LUPUS UK
12 years ago
Some good news at last....
but it was a good one and now as I approach my 5th treatment of Cisplatin,
cyclophosphamide
, doxorubicon I had an 11cm tumour between the bladder and bowel, couldn't operate, but it has shrunk and they said it has changed and is dying from the centre!
but it was a good one and now as I approach my 5th treatment of Cisplatin,
cyclophosphamide
, doxorubicon I had an 11cm tumour between the bladder and bowel, couldn't operate, but it has shrunk and they said it has changed and is dying from the centre!
daisycandoit
in
My Ovacome
12 years ago
rituximab and vasculitis.
when i got admitted to hospital and diagnosed, i under went 7 plasma exchanges and the course of
Cyclophosphamide
. i have been on azathioprine and steriods since oh not forgetting the warfarin for multiple PE's. I must say the treatment i have received has been first class and life saving.
when i got admitted to hospital and diagnosed, i under went 7 plasma exchanges and the course of
Cyclophosphamide
. i have been on azathioprine and steriods since oh not forgetting the warfarin for multiple PE's. I must say the treatment i have received has been first class and life saving.
alan-lee
in
Vasculitis UK
12 years ago
Unusual tremor
My daughter is 9 and was dIagnosed in february with lupus nephritis, she is currently on predisolone and
cyclophosphamide
, she had developed a tremor which is worse in her left hand, Had anyone come across this before?
My daughter is 9 and was dIagnosed in february with lupus nephritis, she is currently on predisolone and
cyclophosphamide
, she had developed a tremor which is worse in her left hand, Had anyone come across this before?
Jacks99
in
LUPUS UK
12 years ago
Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
remission
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
quinnster
in
Vasculitis UK
12 years ago
Early days - my story so far
The response to treatment (Pred. and
Cyclophosphamide
)seems to be going OK but the side effects (lack of sleep, night sweats leg cramps, mouth ulcers, bouts of tiredness etc.) are not a barrel of laughs. However compared to how I felt before the treatment it is a fair trade at the moment.
The response to treatment (Pred. and
Cyclophosphamide
)seems to be going OK but the side effects (lack of sleep, night sweats leg cramps, mouth ulcers, bouts of tiredness etc.) are not a barrel of laughs. However compared to how I felt before the treatment it is a fair trade at the moment.
Chris-Bromsgrove
in
Vasculitis UK
12 years ago
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