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Cyclophosphamide
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Complete Remission!
I posted here some months ago when our world fell apart and a number of you lifted us and helped us to get our head around the shocking news. We then had the bombshell that no watch and wait, FCR was starting the following week... Well we are through the other side and on Wednesday we got the fantastic
I posted here some months ago when our world fell apart and a number of you lifted us and helped us to get our head around the shocking news. We then had the bombshell that no watch and wait, FCR was starting the following week... Well we are through the other side and on Wednesday we got the fantastic
Summer5
in
CLL Support
10 years ago
Headaches
Prior to having successful FCR treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the FCR treatment they disappeared. In December last year a CT Scan showed that the lymph nodes under my arms had enlarged and were just over 2 cm. Earlier this month the headaches
Prior to having successful FCR treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the FCR treatment they disappeared. In December last year a CT Scan showed that the lymph nodes under my arms had enlarged and were just over 2 cm. Earlier this month the headaches
Mick491
in
CLL Support
10 years ago
ASH 2013: Dr. Jeff Sharman Discusses FCR versus BR in CLL
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
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Update on my status 3 month post chemo (FCR)- doing well - no malignant B cells in my MRD test
Had my 3 month post FCR visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last visit 3 months ago. I feel like I did 5 years ago and am in good health. I am an avid downhill skier and just completed a double black diamond skiing
Had my 3 month post FCR visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last visit 3 months ago. I feel like I did 5 years ago and am in good health. I am an avid downhill skier and just completed a double black diamond skiing
Musicguy
in
CLL Support
10 years ago
Chronic Hypersensitivity Pneumonitis?
They want to treat it with low dose chemo (
cyclophosphamide
) and steroids. Have others experienced this?
They want to treat it with low dose chemo (
cyclophosphamide
) and steroids. Have others experienced this?
mary1956
in
Lung Conditions Community Forum
10 years ago
Diagnosed Dec 2013 I have been told I need to start FCR treatment; based on blood results and mild night sweats. Otherwise I feel fine.
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
romarin
in
CLL Support
10 years ago
my haematologist has suggested that they may split my treatment, anyone got thoughts/knowledge?
i.e. by giving me Fludarabine and
Cyclophosphamide
to reduce my leucocyte count before putting me on the Rituximab to reduce the possibility of a reaction to the Rituximab. Is this a recent consideration?
i.e. by giving me Fludarabine and
Cyclophosphamide
to reduce my leucocyte count before putting me on the Rituximab to reduce the possibility of a reaction to the Rituximab. Is this a recent consideration?
djgolding
in
CLL Support
10 years ago
1st Rituximab went like a dream
No reaction nor effects on the day. Last month's F&C brought WCC down from ~200 to ~7 so it was looking good and no need for an overnighter in hospital. Sat almost waiting for contraindications and was gratified to have none but an excellent service from the team made the day a semi-pleasurable sojourn
No reaction nor effects on the day. Last month's F&C brought WCC down from ~200 to ~7 so it was looking good and no need for an overnighter in hospital. Sat almost waiting for contraindications and was gratified to have none but an excellent service from the team made the day a semi-pleasurable sojourn
djgolding
in
CLL Support
10 years ago
Ongoing Treatment
In the meantime,
cyclophosphamide
pulses will now move to 6-weekly infusions for 3 months, then onto 8-weekly doses for a further 6 months, subject to review in the summer. the plan is to get me off
cyclophosphamide
and onto something else by the end of the year, providing I hold.
In the meantime,
cyclophosphamide
pulses will now move to 6-weekly infusions for 3 months, then onto 8-weekly doses for a further 6 months, subject to review in the summer. the plan is to get me off
cyclophosphamide
and onto something else by the end of the year, providing I hold.
Wellsie
in
Vasculitis UK
10 years ago
What to expect??
she then had a mild heart attack caused by the vasculitis and was in hospital until a week before xmas. she has had two infusions of
cyclophosphamide
and has her third on Tuesday. we know that the condition is rare but we know so little of what to expect or what help my mum is entitled to. can anyone
she then had a mild heart attack caused by the vasculitis and was in hospital until a week before xmas. she has had two infusions of
cyclophosphamide
and has her third on Tuesday. we know that the condition is rare but we know so little of what to expect or what help my mum is entitled to. can anyone
nadz84
in
Vasculitis UK
10 years ago
I'm looking for resources re: when/if to stop FCR, what information should the patient discuss with the medical provider? Thank you!
LAinNYC
in
CLL Support
10 years ago
Cllcanada just posted trial commencing in Mass.USA of Ibrutinib + R v FCR. Can anyone answer the question 'What has happened to the Flair T
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
SimplyauburnUK
in
CLL Support
10 years ago
What next - Cerebral Vasculitis
Diagnosis confirmed, started IV of methyl pred today with the likely hood of
Cyclophosphamide
next week. Pretty scary and not sure what to expect next.... Any advice and information gratefully received.... Thanks Steve
Diagnosis confirmed, started IV of methyl pred today with the likely hood of
Cyclophosphamide
next week. Pretty scary and not sure what to expect next.... Any advice and information gratefully received.... Thanks Steve
SteveJarvis
in
Vasculitis UK
10 years ago
clinical trial done at MD Anderson on Cll patients giving high doses of Curcumin c3 complex and green tea extract. Input. Anyone?
Going to ask my Oncologist if I can do this on my own while having g fcr treatments.
Going to ask my Oncologist if I can do this on my own while having g fcr treatments.
becks1111
in
CLL Support
10 years ago
I have been asked to share my story. Make yourself comfy and I will begin .......
Cyclophosphamide
and prednisolone did the trick. A month later I was home, back to my husband and 2 year old daughter. Over the next few years, I had a few hiccups but nothing too bad.
Cyclophosphamide
and prednisolone did the trick. A month later I was home, back to my husband and 2 year old daughter. Over the next few years, I had a few hiccups but nothing too bad.
Moley1
in
Vasculitis UK
10 years ago
iwCLL 2013: Dr. Michael Hallek Discusses Clinical Trials in Germany versus the USA and BR versus FCR
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
Kidneys leaking protein
My daughter was diagnosed with wegeners granulomatosis in August has just 5 out of to be 9 doses of
cyclophosphamide
along with steroids. Her kidneys are leaking protein due to the damage done to them from disease - docs have prescribed ramipril to reduce leak of protein to urine.
My daughter was diagnosed with wegeners granulomatosis in August has just 5 out of to be 9 doses of
cyclophosphamide
along with steroids. Her kidneys are leaking protein due to the damage done to them from disease - docs have prescribed ramipril to reduce leak of protein to urine.
Bailey24
in
Vasculitis UK
10 years ago
Does anybody follow a healthy eating plan or know of diets which can help this condition. I have been diagnosed and being treated for WG.
I am taking 75mg of prednisone daily and have had my first
cyclophosphamide
a week ago. I have noticed some foods are not so appetising any more and wondered if there is a tried and tested diet. I have no allergies or diet requirements. Thanks.
I am taking 75mg of prednisone daily and have had my first
cyclophosphamide
a week ago. I have noticed some foods are not so appetising any more and wondered if there is a tried and tested diet. I have no allergies or diet requirements. Thanks.
Hidden
in
Vasculitis UK
10 years ago
Musicguy's finished 6 month's treatment with FCR
Thought I would give an update on my status, Chemo is done!!!! Completed 6 month's of FCR, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling
Thought I would give an update on my status, Chemo is done!!!! Completed 6 month's of FCR, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling
Musicguy
in
CLL Support
10 years ago
Nerve damage. .........
Now on
cyclophosphamide
, had 2 so far and have my next at the end of the month. Well the last few days the nerve pain has started again in my index finger on my left hand but now it is also in my right index finger and right foot. Im so scared it is going to happen to my right side.
Now on
cyclophosphamide
, had 2 so far and have my next at the end of the month. Well the last few days the nerve pain has started again in my index finger on my left hand but now it is also in my right index finger and right foot. Im so scared it is going to happen to my right side.
Mags88
in
Vasculitis UK
10 years ago
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