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Cyclophosphamide
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Reply to issues with Spleen
Hi, I agree with most of these comments on here that the enlargement of your spleen is an indication perhaps that you are ready for some form of treatment, not removal. I had chemotherapy in 2020 and my spleen was massive. After a treatment cycle of FCR for 6 months and neutropenia sepsis for 10
Hi, I agree with most of these comments on here that the enlargement of your spleen is an indication perhaps that you are ready for some form of treatment, not removal. I had chemotherapy in 2020 and my spleen was massive. After a treatment cycle of FCR for 6 months and neutropenia sepsis for 10
Roseneath69
in
CLL Support
6 months ago
Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
6 months ago
uMRD 6
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
skipro
in
CLL Support
6 months ago
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Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
7 months ago
Solutions needed to manage nerve pains ( Post herpetic neuralgia ) after shingles .
I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir. The sores and blisters have gone but the nerve pains( especially
I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir. The sores and blisters have gone but the nerve pains( especially
Oldscores1
in
CLL Support
7 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
7 months ago
Shingrix side effects
just wondered what people’s experiences are with side effects after Shingrix? I had the first vaccine and was ill the next day with headaches, chills and feeling awful. However after the second vaccine the side effects have been worse, add in : headaches, unable to concentrate, weakness and wave upon
just wondered what people’s experiences are with side effects after Shingrix? I had the first vaccine and was ill the next day with headaches, chills and feeling awful. However after the second vaccine the side effects have been worse, add in : headaches, unable to concentrate, weakness and wave upon
Mandy56
in
CLL Support
7 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+
Cyclophosphamide
+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+
Cyclophosphamide
+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
1 year ago
UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today
[/i] [i]
A: During scoping consultation, a consultee highlighted an urgent need for access to novel treatments for younger, fitter patients with chronic lymphocytic leukaemia as currently only fludarabine,
and rituximab (FCR) or venetoclax plus obinutuzumab via the Cancer Drugs
[/i] [i]
A: During scoping consultation, a consultee highlighted an urgent need for access to novel treatments for younger, fitter patients with chronic lymphocytic leukaemia as currently only fludarabine,
and rituximab (FCR) or venetoclax plus obinutuzumab via the Cancer Drugs
Jm954
Administrator
in
CLL Support
1 year ago
splashsplash
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
splashsplash
in
CLL Support
9 months ago
Unrelenting pain post chemo dose
Commenced on 3 weekly epirubicin and
cyclophosphamide
. I'm on my 2nd cycle but during the 2 cycles I have the most horrendous, unrelenting pain in my upper back area which is also very tender. I have 15mg slow release morphine and more for breakthrough but despite this the pain continues.
Commenced on 3 weekly epirubicin and
cyclophosphamide
. I'm on my 2nd cycle but during the 2 cycles I have the most horrendous, unrelenting pain in my upper back area which is also very tender. I have 15mg slow release morphine and more for breakthrough but despite this the pain continues.
Cazdf
in
SHARE Metastatic Breast Cancer
2 years ago
Ibrutinib stopped working, what’s next
Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January Rituximab and Ventoclax for 2 years, just wondering if there are any alternatives? Thanks all
Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January Rituximab and Ventoclax for 2 years, just wondering if there are any alternatives? Thanks all
Stacky66
in
CLL Support
9 months ago
hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
steve5441
in
CLL Support
9 months ago
Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease
From the New England Journal of Medicine 10th December 2023 [i]"The CLL treatment landscape has been transformed by targeted drugs. Continuous BTK inhibitor therapy has improved outcomes in patients with CLL. Fixed-duration venetoclax in combination with obinutuzumab or ibrutinib has also been shown
From the New England Journal of Medicine 10th December 2023 [i]"The CLL treatment landscape has been transformed by targeted drugs. Continuous BTK inhibitor therapy has improved outcomes in patients with CLL. Fixed-duration venetoclax in combination with obinutuzumab or ibrutinib has also been shown
Jm954
Administrator
in
CLL Support
10 months ago
R-CHOP Treatment
After FCR chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4. I'm
After FCR chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4. I'm
scorpio74944
in
CLL Support
10 months ago
secondary cancers
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
skipro
in
CLL Support
10 months ago
tapering off azathioprine
Initially had
cyclophosphamide
infusions and have been maintained on azathioprine since, Last rituximab was 2 yrs ago, been in remission for 2 yrs now.
Initially had
cyclophosphamide
infusions and have been maintained on azathioprine since, Last rituximab was 2 yrs ago, been in remission for 2 yrs now.
stuc
in
Vasculitis UK
2 years ago
IFN-1 levels before treatment may be biomarker of SLE activity: Study
Organ damage also was associated with the use of methylprednisolone pulse therapy or intravenous (into-the-vein)
cyclophosphamide
(IVCY) pulse therapy.
Organ damage also was associated with the use of methylprednisolone pulse therapy or intravenous (into-the-vein)
cyclophosphamide
(IVCY) pulse therapy.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Cyclophosphamide & Niraparib
Cyclophosphamide
& Niraparib Has anyone any experience with either? I’ve never even heard of
Cyclophosphamide
as a chemo infusion. Anne
Cyclophosphamide
& Niraparib Has anyone any experience with either? I’ve never even heard of
Cyclophosphamide
as a chemo infusion. Anne
Hidden
in
OvaCare
2 years ago
Cyclophosphamide & Niraparib
Cyclophosphamide
& Niraparib Has anyone any experience with either? I’ve never even heard of
Cyclophosphamide
as a chemo infusion. Anne
Cyclophosphamide
& Niraparib Has anyone any experience with either? I’ve never even heard of
Cyclophosphamide
as a chemo infusion. Anne
Hidden
in
My Ovacome
2 years ago
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