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Experiences with
Cyclophosphamide
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Treatment of Reynauds
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
Floxxy
in
CLL Support
3 years ago
Four Years!
I’ve been on
Cyclophosphamide
for three months - it hasn’t done anything and my tumours have all grown a bit. I’ve been having quite a few bowel issues - there seems to be an ever present threat of a blockage.
I’ve been on
Cyclophosphamide
for three months - it hasn’t done anything and my tumours have all grown a bit. I’ve been having quite a few bowel issues - there seems to be an ever present threat of a blockage.
Alifit
in
My Ovacome
4 years ago
Ibrutinib plus fludarabine, cyclophosphamide, and rituximab as initial treatment for younger patients with CLL
[/i] [i]Ibrutinib was given orally for 7 days, then up to six 28-day cycles were administered intravenously of fludarabine,
cyclophosphamide
and rituximab with continuous oral ibrutinib (420 mg/day).
[/i] [i]Ibrutinib was given orally for 7 days, then up to six 28-day cycles were administered intravenously of fludarabine,
cyclophosphamide
and rituximab with continuous oral ibrutinib (420 mg/day).
Jm954
Administrator
in
CLL Support
4 years ago
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FCR oral versus iv
Hi I have read that
cyclophosphamide
and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
Hi I have read that
cyclophosphamide
and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
CarpeDiem03
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
Me2AsWell
in
CLL Support
3 years ago
Antibodies test CLL
I had my yearly appointment with the haematologist over the phone yesterday. I explained that I am worried about covid and cll as I am still prone to getting sinusitis which then sometimes ends up with chest infection. Also have some minor other issues. She then said that I should have an antibodies
I had my yearly appointment with the haematologist over the phone yesterday. I explained that I am worried about covid and cll as I am still prone to getting sinusitis which then sometimes ends up with chest infection. Also have some minor other issues. She then said that I should have an antibodies
Ellebele
in
CLL Support
3 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
ANCA PR3 Rising after finishing Cyclophosphamide and transferring to Azathioprine.
Hi Anybody out there, I have been doing really well reducing my ANCA PR3 Levels since diagnosis of GPO in December, they were off the scale but after 4 treatments of
Cyclophosphamide
it had a marker reading of 56, I then was transferred to Azathioprine and after 6 weeks of it my marker reduced to 40
Hi Anybody out there, I have been doing really well reducing my ANCA PR3 Levels since diagnosis of GPO in December, they were off the scale but after 4 treatments of
Cyclophosphamide
it had a marker reading of 56, I then was transferred to Azathioprine and after 6 weeks of it my marker reduced to 40
Investigator1
in
Vasculitis UK
4 years ago
In remission after FCR treatment for CLL 7yrs ago. Should I be shielding because of Covid? I did not have a letter from my GP. I am 63yrs.
Now in a household with 2 frontline health workers.
Now in a household with 2 frontline health workers.
Jessian2
in
CLL Support
4 years ago
V+O or FCR
Hi folks, I've been reading your posts for some time, but due to a lack of experience, I haven't been able to provide a response myself. but now I would like to ask your advice. briefly about the background: my husband was diagnosed in 2015 and has been on w & w since then. Due to a slowly but steadily
Hi folks, I've been reading your posts for some time, but due to a lack of experience, I haven't been able to provide a response myself. but now I would like to ask your advice. briefly about the background: my husband was diagnosed in 2015 and has been on w & w since then. Due to a slowly but steadily
Germanguest
in
CLL Support
4 years ago
Cyclophosphamide ??
Has anyone tried this old drug after chemo failed ? Sometimes surprising results can be obtained..
Has anyone tried this old drug after chemo failed ? Sometimes surprising results can be obtained..
Fairwind
in
Advanced Prostate Cancer
4 years ago
Pneumococcal vaccine
Hello all. I had the pneumococcal vaccine two or three years ago, then had FCR chemotherapy which finished in October 2018. I’ve been invited for a second pneumococcal jab next week. My haematologist is aware. I thought I’d check to see if anyone else has done the same, and if there’s any reason I shouldn
Hello all. I had the pneumococcal vaccine two or three years ago, then had FCR chemotherapy which finished in October 2018. I’ve been invited for a second pneumococcal jab next week. My haematologist is aware. I thought I’d check to see if anyone else has done the same, and if there’s any reason I shouldn
Graham2222
in
CLL Support
4 years ago
fatigue
Hi again. Different topic - fresh post. So here I am 2yrs and 4 mths post FCR (6 cycles) and several months of bone marrow not producing red cells (recovered from that 8mths ago) and I'm still struggling with erratic and intermittent debilitating fatigue. I understand this affects different cancer groups
Hi again. Different topic - fresh post. So here I am 2yrs and 4 mths post FCR (6 cycles) and several months of bone marrow not producing red cells (recovered from that 8mths ago) and I'm still struggling with erratic and intermittent debilitating fatigue. I understand this affects different cancer groups
Jotame
in
CLL Support
4 years ago
Myelodyplastic Syndrome (MDS)
Hi. In my previous post I wrote about reaching a point 18months after completing FCR where my bone marrow stopped producing red cells. This got a diagnosis of MDS which was expected to be irreversible. After several months and 6 blood transfusions I'm thrilled to say my marrow is back in action and
Hi. In my previous post I wrote about reaching a point 18months after completing FCR where my bone marrow stopped producing red cells. This got a diagnosis of MDS which was expected to be irreversible. After several months and 6 blood transfusions I'm thrilled to say my marrow is back in action and
Jotame
in
CLL Support
4 years ago
Younger, Fit Patients With CLL: Goal Remains Undetectable Minimal Residual Disease and Time-Limited Therapy
This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing ibrutinib/rituximab, followed by ibrutinib to disease progression vs 6 months of FCR among patients withCLL younger than age 70. [i]"Although the study was not stratified by IgHV mutation status, the results
This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing ibrutinib/rituximab, followed by ibrutinib to disease progression vs 6 months of FCR among patients withCLL younger than age 70. [i]"Although the study was not stratified by IgHV mutation status, the results
Jm954
Administrator
in
CLL Support
4 years ago
Time-to-progression after front-line FCR for CLL: a retrospective, multicohort study
It has been known for some time that FCR can produce very long remissions (perhaps cures) for some patients with mutated CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760129/ This study looks at unmutated patients and could be an important study for CLL patients or, on the other hand, completely
It has been known for some time that FCR can produce very long remissions (perhaps cures) for some patients with mutated CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760129/ This study looks at unmutated patients and could be an important study for CLL patients or, on the other hand, completely
Jm954
Administrator
in
CLL Support
4 years ago
ILD & scleroderma
Now talking of
cyclophosphamide
treatment. I’m obviously shielding at the moment due to Covid19 but as I am new to this do you ordinarily need to shield when taking
cyclophosphamide
in ‘normal’ times? Many thanks for any advice.
Now talking of
cyclophosphamide
treatment. I’m obviously shielding at the moment due to Covid19 but as I am new to this do you ordinarily need to shield when taking
cyclophosphamide
in ‘normal’ times? Many thanks for any advice.
cheryldn
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Cyclophosphamide
Peripheral Neuropathy, and Auto Immune Encephalitis My Immunologist and Neurologist put me on
Cyclophosphamide
for two years and without this I wouldn’t be here as well as I am today. It can be tablet or via infusion. I had both as didn’t live in the same city as my medical team.
Peripheral Neuropathy, and Auto Immune Encephalitis My Immunologist and Neurologist put me on
Cyclophosphamide
for two years and without this I wouldn’t be here as well as I am today. It can be tablet or via infusion. I had both as didn’t live in the same city as my medical team.
Vrainbird
in
Vasculitis UK
4 years ago
Duvelisib + FCR (DFCR) frontline therapy for younger CLL patients - study results (Aug. 2020)
"In summary, our phase 1b/2 study identified a recommended phase 2 dose of duvelisib 25 mg bid when given in combination with FCR in younger CLL patients receiving frontline therapy. We observed deep responses, including achievement of BM-uMRD in about two-thirds of patients,irrespective of IGHV mutation
"In summary, our phase 1b/2 study identified a recommended phase 2 dose of duvelisib 25 mg bid when given in combination with FCR in younger CLL patients receiving frontline therapy. We observed deep responses, including achievement of BM-uMRD in about two-thirds of patients,irrespective of IGHV mutation
avzuclav
in
CLL Support
4 years ago
Feeling Deflated
My 15 year old daughter has been doing so well on her medication, her brain activity is back to normal and she seems her old self again but yesterday (at what we thought was her last
Cyclophosphamide
Infusion) we were told that her ESR levels have risen again so now her consultant wants her to have another
My 15 year old daughter has been doing so well on her medication, her brain activity is back to normal and she seems her old self again but yesterday (at what we thought was her last
Cyclophosphamide
Infusion) we were told that her ESR levels have risen again so now her consultant wants her to have another
chezevo
in
LUPUS UK
4 years ago
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