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Hundreds Die in UK Every Year Just Because People Don't Talk
I read this article in the UK's Telegraph newspaper today and wept. http://www.telegraph.co.uk/science/2017/09/04/hundreds-dying-families-block-organ-donation-even-relatives/ The NHS Blood and Transplant (NHSBT) authority now think that 177 organ donations every year are stopped by family members because
I read this article in the UK's Telegraph newspaper today and wept. http://www.telegraph.co.uk/science/2017/09/04/hundreds-dying-families-block-organ-donation-even-relatives/ The NHS Blood and Transplant (NHSBT) authority now think that 177 organ donations every year are stopped by family members because
joncarrbrown
Administrator
in
MyDirectives: Make your medical wishes known!
7 years ago
You Are Not Alone!
Hi All. This is my first time here. Hope to make some friends and help those who feel like there is no hope at all. Know you are not alone. Been there. My goal/journey is to let people with chronic Kidney disease that there is HOPE. I want to help those who have been denied to be put on the organ
Hi All. This is my first time here. Hope to make some friends and help those who feel like there is no hope at all. Know you are not alone. Been there. My goal/journey is to let people with chronic Kidney disease that there is HOPE. I want to help those who have been denied to be put on the organ
ddwebangel
in
Kidney Disease
7 years ago
Sleeping problems
My husband has PD ( diagnosed in 2010) doing pretty well on meds prescribed by neuro docs...one thing though is sleeping problems...of course, at 80 he needs to get up for bathroom visits a few times a night...but getting back to sleep is a chore. He works many hours a week on physical jobs so lack of
My husband has PD ( diagnosed in 2010) doing pretty well on meds prescribed by neuro docs...one thing though is sleeping problems...of course, at 80 he needs to get up for bathroom visits a few times a night...but getting back to sleep is a chore. He works many hours a week on physical jobs so lack of
missybee
in
Cure Parkinson's
7 years ago
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Experience with Comtan?
My Neuro has recommended I add Comtan to my med plan. I am taking 25/250 CD /LD every 3 hours and still have irregular down times. Does anyone have experience with Comtan they would like to share?
My Neuro has recommended I add Comtan to my med plan. I am taking 25/250 CD /LD every 3 hours and still have irregular down times. Does anyone have experience with Comtan they would like to share?
Don_oregon_duck
in
Cure Parkinson's
7 years ago
Best Hospitals for liver transplant
I need to find best places around the world to do a liver transplant for personal friend.Heard that Aster Medcity in India is a good option.Anyone has experience with best Organ Transplant hospitals?.
I need to find best places around the world to do a liver transplant for personal friend.Heard that Aster Medcity in India is a good option.Anyone has experience with best Organ Transplant hospitals?.
mathewlsgeorge
in
British Liver Trust
7 years ago
Dyskinesia
I am 71 years old, been diagnosed 5 1/2 years Started out on Azilect and Requip. Never really felt great on this but my neurologist wanted to keep me on the least amount of medication for as long as possible. In Jan 2013 I felt terrible so he put me on Carbidopa Levadopa 25/100 three times a day I did
I am 71 years old, been diagnosed 5 1/2 years Started out on Azilect and Requip. Never really felt great on this but my neurologist wanted to keep me on the least amount of medication for as long as possible. In Jan 2013 I felt terrible so he put me on Carbidopa Levadopa 25/100 three times a day I did
larry1945
in
Cure Parkinson's
8 years ago
Liquid Sinemet
My doctor prescribed me to take Sinemet and Comtan every 2 hours, but I am afraid to have dyskinesia because it just sinemet over 13 pills + sinemet ER at night. I already have dyskinesia, but not all the time. I understand that to take every 2 hours sinemet it no time to have a meal. Has anybody tried
My doctor prescribed me to take Sinemet and Comtan every 2 hours, but I am afraid to have dyskinesia because it just sinemet over 13 pills + sinemet ER at night. I already have dyskinesia, but not all the time. I understand that to take every 2 hours sinemet it no time to have a meal. Has anybody tried
luba1
in
Cure Parkinson's
8 years ago
ENTACAPONE. ORAL. 200 MG
Common name Comtan. This is a COMT inhibitor drug. Dose anyone have an opinion or experience on this drug. I have just been given a scrip for it. I plan on starting it with my C/L next week.
Common name Comtan. This is a COMT inhibitor drug. Dose anyone have an opinion or experience on this drug. I have just been given a scrip for it. I plan on starting it with my C/L next week.
dannydarling
in
Cure Parkinson's
8 years ago
Just another issue to fight though...
I was born in 1958 with a congenital heart defect. I spend my child hood in hospitals off and on until I became a teen. I had open-heart surgery in the summer of 1976 to fix the issue and went on with my life, gave birth without complications in 1977 to my now 38 year old daughter. In 1995, (after
I was born in 1958 with a congenital heart defect. I spend my child hood in hospitals off and on until I became a teen. I had open-heart surgery in the summer of 1976 to fix the issue and went on with my life, gave birth without complications in 1977 to my now 38 year old daughter. In 1995, (after
Hidden
in
ICUsteps
8 years ago
Comtan increasing off times
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Dylpup
in
Cure Parkinson's
8 years ago
HELPED AS A RESULT OF DEEP BRAIN SURGERY(NEW)
Hi My real name is Darryl and I come from South Africa .My brothers gave me the ridiculous nickname Dal Pop.Iam 63 years old but Iam young at heart and despite the fact that i have had Parkinsons forthe last 17 years Iam still able to go to gym on a regular basis ,am able to work and I am able to play
Hi My real name is Darryl and I come from South Africa .My brothers gave me the ridiculous nickname Dal Pop.Iam 63 years old but Iam young at heart and despite the fact that i have had Parkinsons forthe last 17 years Iam still able to go to gym on a regular basis ,am able to work and I am able to play
dalpop
in
Cure Parkinson's
8 years ago
Adding meds
I've had PD for almost 9 years. I've had nothing but Carbidopa/Levodopa 25/100,starting low with 1 1/2 tabs 3 times /daily. Now, 9 years later, I'm taking 2 tabs 5 times/daily. This doesn't cover me through the night, so, my doc ordered C/P 6 times/daily. He also ordered Comtan (entacapone) 1 tab 6 times
I've had PD for almost 9 years. I've had nothing but Carbidopa/Levodopa 25/100,starting low with 1 1/2 tabs 3 times /daily. Now, 9 years later, I'm taking 2 tabs 5 times/daily. This doesn't cover me through the night, so, my doc ordered C/P 6 times/daily. He also ordered Comtan (entacapone) 1 tab 6 times
si-simary
in
Cure Parkinson's
8 years ago
Medication Question
I was diagnosed with PD two years ago, but I've had symptoms for decades. I'm an American living in Thailand and I have no medical insurance, so at the moment am not seeing a doctor. I have a question about medication. I take 1/2 Madopar 250 & 1/2 Comtan 200 twice per day. It takes about an hour for
I was diagnosed with PD two years ago, but I've had symptoms for decades. I'm an American living in Thailand and I have no medical insurance, so at the moment am not seeing a doctor. I have a question about medication. I take 1/2 Madopar 250 & 1/2 Comtan 200 twice per day. It takes about an hour for
jdc3
in
Cure Parkinson's
8 years ago
FDA PUBLIC MEETING
Join the U.S. Food and Drug Administration at their public meeting for organ transplant patients! REGISTRATION CLOSES SEPTEMBER 20TH, 2016.
Join the U.S. Food and Drug Administration at their public meeting for organ transplant patients! REGISTRATION CLOSES SEPTEMBER 20TH, 2016.
HFIAdmin
in
HFI Connect - Hepatitis
8 years ago
How do I cope..
Hi all, My son is 30 yrs and was diagnosed with Cryptococcal meningitis around 3 months ago. It has been a long journey for him and as he was previously a healthy adult without aides, organ transplant recipient or cancer, he was a rare case with doctors not knowing how to treat him and all of them saying
Hi all, My son is 30 yrs and was diagnosed with Cryptococcal meningitis around 3 months ago. It has been a long journey for him and as he was previously a healthy adult without aides, organ transplant recipient or cancer, he was a rare case with doctors not knowing how to treat him and all of them saying
SharonAustralia
in
Meningitis Now
8 years ago
Supplements and Safety; PBS Frontline + New York Times. Follow-on from New York Attorney General's actions against major retailers last yr
A year ago, on the basis of DNA barcoding technology tests conducted on top-selling store brands of herbal supplements at four national retailers in New York State — GNC, Target, Walgreens and Walmart, the New York State attorney general’s office demanded that retailers remove the products from their
A year ago, on the basis of DNA barcoding technology tests conducted on top-selling store brands of herbal supplements at four national retailers in New York State — GNC, Target, Walgreens and Walmart, the New York State attorney general’s office demanded that retailers remove the products from their
AussieNeil
Partner
in
CLL Support
8 years ago
Help pain for 3 years
I'm 69 been diagnosed 8 years I'm on 4 250/25 a day and 4 comtan a day The problem is I have excruciating in spasms after taking the medication which can last up to 2 hours I was told by a gp they are off periods The pain is so bad I'm off endone and I take panadol osteo The more stressed the worse
I'm 69 been diagnosed 8 years I'm on 4 250/25 a day and 4 comtan a day The problem is I have excruciating in spasms after taking the medication which can last up to 2 hours I was told by a gp they are off periods The pain is so bad I'm off endone and I take panadol osteo The more stressed the worse
Shol
in
Cure Parkinson's
9 years ago
Out of the frying pan ........
Hi all, wondering if anyone had a bit of info on this. Had my last CV (4th one and 2 ablations) 2 months ago and I was fine with an NSR of 65 resting, 2 weeks ago I started getting Tachycardias again but without the AFib, NSR of 120 resting. Went to see my GP and she put me back on Atenolol (horrible
Hi all, wondering if anyone had a bit of info on this. Had my last CV (4th one and 2 ablations) 2 months ago and I was fine with an NSR of 65 resting, 2 weeks ago I started getting Tachycardias again but without the AFib, NSR of 120 resting. Went to see my GP and she put me back on Atenolol (horrible
Hidden
in
AF Association
9 years ago
Organ transplant awareness
Sorry peeps the page is Organ transplant awareness I was having a moment ..please visit and tell ur stories..Help me raise awareness ..ty😊
Sorry peeps the page is Organ transplant awareness I was having a moment ..please visit and tell ur stories..Help me raise awareness ..ty😊
janerayne
in
British Liver Trust
9 years ago
New liver, new personality/memories?
I've heard of people having organ transplants and they take on some of the donors personality or memories. Also a man who took up boxing who was before a whimp yet only to find out the doner was a keen boxer. Has this or similar happened to you?
I've heard of people having organ transplants and they take on some of the donors personality or memories. Also a man who took up boxing who was before a whimp yet only to find out the doner was a keen boxer. Has this or similar happened to you?
acjb007
in
British Liver Trust
9 years ago
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