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Into the 4th year, updates and next step
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
Juliane314
in
Advanced Prostate Cancer
9 months ago
Need help in understanding PSA level recurrence after treatment.
In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During that treatment, my PSA fell to < 0.01 and remained there until the end of the treatment. I had a blood test taken last Friday and it shows that
In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During that treatment, my PSA fell to < 0.01 and remained there until the end of the treatment. I had a blood test taken last Friday and it shows that
Mascouche
in
Advanced Prostate Cancer
9 months ago
Erleada side effects
Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that. Want to hear real
Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that. Want to hear real
wilcoxsaw
in
Advanced Prostate Cancer
9 months ago
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QOL … how about a fun lighthearted uplifting post about “ manziers “ …
manziers …. Love ‘em ….hate them. Don’t use one , never thought about it ? Most of men here have big man boobs, some of us giant boobs … some have had them reduced / controlled with shots or radiation. If you are a male member of this group, you probably have had this issue on your mind more than
manziers …. Love ‘em ….hate them. Don’t use one , never thought about it ? Most of men here have big man boobs, some of us giant boobs … some have had them reduced / controlled with shots or radiation. If you are a male member of this group, you probably have had this issue on your mind more than
Kaliber
in
Advanced Prostate Cancer
9 months ago
Intermittent ADT
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
John347
in
Advanced Prostate Cancer
9 months ago
hysterectomy?
hello ladies Can I ask those have had a hysterectomy have any of you regretted the decision to have one? I am due to have on next month due to fibroids and heavy bleeding, but my symptoms have drastically improved in the last 9-12 months as I had a Merina coil fitted whilst I have been waiting for
hello ladies Can I ask those have had a hysterectomy have any of you regretted the decision to have one? I am due to have on next month due to fibroids and heavy bleeding, but my symptoms have drastically improved in the last 9-12 months as I had a Merina coil fitted whilst I have been waiting for
Toddyboy12
in
Menopause and Perimenopause Support
9 months ago
Is creatine safe?
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Coggeshall
in
Prostate Cancer Network
9 months ago
Living life after a prostatectomy
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
Studio1954
in
Prostate Cancer And Gay Men
9 months ago
Help please with thyroid test interpretation and supplements guidance
Hello everyone, I am new here and learning such a lot from the hugely valuable resource that is this forum - thank you all for the time you take to help people like me. Please could I have some help in interpreting my recent Medichecks advanced thyroid panel and how to move forward from this assessment
Hello everyone, I am new here and learning such a lot from the hugely valuable resource that is this forum - thank you all for the time you take to help people like me. Please could I have some help in interpreting my recent Medichecks advanced thyroid panel and how to move forward from this assessment
eggsforlunch
in
Thyroid UK
9 months ago
Medical oncologist and radiology oncologist
Good morning fellow travelers. We are returning to Phoenix Mayo next month for his 3 month visit post RARP. Expecting that husband may be given a treatment plan that includes ADT and radiation, maybe chemo. Gleason 9, bladder neck and seminal vesicular invasion , N1. My question- if you are receiving
Good morning fellow travelers. We are returning to Phoenix Mayo next month for his 3 month visit post RARP. Expecting that husband may be given a treatment plan that includes ADT and radiation, maybe chemo. Gleason 9, bladder neck and seminal vesicular invasion , N1. My question- if you are receiving
Lokicliff
in
Advanced Prostate Cancer
9 months ago
Bleeding on HRT
Have been on continuous combined HRT for about 3 years with no problems. (Had a fibroid removed in 2021).3 months ago the GP recommended I increase oestrogel pumps from x2 to x3 daily as I was complaining of fatigue. 5 days ago I started bleeding with period pain/cramps. GP advised I stop HRT and review
Have been on continuous combined HRT for about 3 years with no problems. (Had a fibroid removed in 2021).3 months ago the GP recommended I increase oestrogel pumps from x2 to x3 daily as I was complaining of fatigue. 5 days ago I started bleeding with period pain/cramps. GP advised I stop HRT and review
Hel66
in
Menopause and Perimenopause Support
9 months ago
Supraphysiological Androgens [SPA] Promote Tumor Suppressive Activity of the AR Through cMYC Repression and Recruitment of the DREAM Complex
New study [1]. I have struggled to understand how Denmeade’s BAT (Bipolar Androgen Therapy) depends on supraphysiological levels of androgen (testosterone = ~2,000 ng/dL), considering that Morgentaler’s saturation model has it that androgen receptors [ARs] have all the testosterone they can use at
New study [1]. I have struggled to understand how Denmeade’s BAT (Bipolar Androgen Therapy) depends on supraphysiological levels of androgen (testosterone = ~2,000 ng/dL), considering that Morgentaler’s saturation model has it that androgen receptors [ARs] have all the testosterone they can use at
pca2004
in
Fight Prostate Cancer
11 months ago
Decipher and Prolaris and Oncotype...oh my.
In reading about the many uses of these genomic tests, it seems that there is a wide consensus/opinions on how they should be used for decision making. Looks like these tests can change how the prostate cancer is treated or not treated. Also, seems to be a wide consensus/opinion to go with ADT or not
In reading about the many uses of these genomic tests, it seems that there is a wide consensus/opinions on how they should be used for decision making. Looks like these tests can change how the prostate cancer is treated or not treated. Also, seems to be a wide consensus/opinion to go with ADT or not
TFU589
in
Prostate Cancer Network
9 months ago
Advice on results please
(All my blood tests were taken fasting and early morning. I stop biotin a week before and all other supplements 5 days before (to be safe!). I take T4 and T3 - currently 100mcg T4 and 20mcg T3). I generally take my last dose of T3 24hrs then 12 hrs before my blood test, but this time it was about
(All my blood tests were taken fasting and early morning. I stop biotin a week before and all other supplements 5 days before (to be safe!). I take T4 and T3 - currently 100mcg T4 and 20mcg T3). I generally take my last dose of T3 24hrs then 12 hrs before my blood test, but this time it was about
MiniMum97
in
Thyroid UK
9 months ago
Orchiectomy
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
woppaginny
in
Advanced Prostate Cancer
9 months ago
Anyone find PVCs are accompanied by a feeling of mucus in your throat?
I had constant PVCs 24/7 for 6-8 months two years ago. At the time I mentioned to my GP and cardiologist that I felt like I had mucus in the left side of my throat, like post-nasal drip, but they both ignored that and didn't give me any kind of explanation. After starting on HRT (I am in perimenopause
I had constant PVCs 24/7 for 6-8 months two years ago. At the time I mentioned to my GP and cardiologist that I felt like I had mucus in the left side of my throat, like post-nasal drip, but they both ignored that and didn't give me any kind of explanation. After starting on HRT (I am in perimenopause
CurlyPretzel
in
Arrhythmia Alliance
9 months ago
ADT or not for favourable intermediate risk with SBRT
Currently on AS, have repeat tp biopsy in October, this is routine for AS.Treatment advice, if I choose is SBRT but no ADT due to CVD risk as I have chads score 2, had 1 previous stroke in Feb 18 with full recovery, diagnosed May 2020 with paroxysmal AF, had 1 episode since so low burden, bisoprolol
Currently on AS, have repeat tp biopsy in October, this is routine for AS.Treatment advice, if I choose is SBRT but no ADT due to CVD risk as I have chads score 2, had 1 previous stroke in Feb 18 with full recovery, diagnosed May 2020 with paroxysmal AF, had 1 episode since so low burden, bisoprolol
pd63
in
Prostate Cancer Network
9 months ago
Feeling like a failure as a women
44 years old, had hysterectomy at 39 kept cervix and ovaries, everything was brilliant fir about 18 months, I was actually living life after suffering with endometriosis and andomyosis for over 20 years. Sex life with husband had increased dramatically, mood swings had gone, no more bleeding and no more
44 years old, had hysterectomy at 39 kept cervix and ovaries, everything was brilliant fir about 18 months, I was actually living life after suffering with endometriosis and andomyosis for over 20 years. Sex life with husband had increased dramatically, mood swings had gone, no more bleeding and no more
Nubian28
in
Endometriosis UK
9 months ago
MRIdian/ViewRay compared to Ethos/Varian
I'm looking at 20 IMRT treatments from one of the above delivery mechanisms. Based on my limited understanding, MRIdian will track the position of the prostate in real time and stop the radiation if any movement of the prostate occurs. The Ethos benefit appears to be the ability of doctors to create
I'm looking at 20 IMRT treatments from one of the above delivery mechanisms. Based on my limited understanding, MRIdian will track the position of the prostate in real time and stop the radiation if any movement of the prostate occurs. The Ethos benefit appears to be the ability of doctors to create
LongevityAT
in
Advanced Prostate Cancer
1 year ago
A little humor?
Everyone might have heard this before but I hadn't. Before ADT I had a six pack, now I have a keg.
Everyone might have heard this before but I hadn't. Before ADT I had a six pack, now I have a keg.
spencoid2
in
Advanced Prostate Cancer
9 months ago
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